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I am an observation patient, how will I know when it's time to seek treatment?
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The Ohio State University Wexner Medical Center is seeking participants for three online surveys. The Financial survey is open to everyone. The Dizziness Post Radiation and Dizziness Post Surgery surveys are open to those patients who have received that treatment. You can participate in one or more of these surveys.
1. Financial Survey for all AN/VS Patients to evaluate the financial impact of AN/VS diagnosis and treatment
With this survey, we seek to evaluate the impact the diagnosis and treatment of a vestibular schwannoma has on your ability to work and your financial situation.
Financial Toxicity of Vestibular Schwannoma Management
Who can participate: All acoustic neuroma patients, irrespective of their treatment status, including those undergoing surveillance.
Access Survey
2. Long-term Dizziness Survey for AN/VS Patients that had Radiation Treatment
With this survey, we seek to evaluate how radiation treatment affects your balance and dizziness symptoms in the short and long term.
Long-term Dizziness after Radiation for Vestibular Schwannoma Survey
Who can participate: Acoustic neuroma patients who have undergone radiation treatment.
Access Survey
3. Long-term Dizziness Survey for AN/VS Patients that had Microsurgery Treatment
With this survey, we seek to evaluate how surgery affects your balance and dizziness symptoms in the short and long term.
Long-term Dizziness after Microsurgical Resection of Vestibular Schwannoma Survey
Who can participate: Acoustic neuroma patients who have undergone microsurgery treatment. *If you had prior radiation followed by microsurgery, you are eligible to participate.
Access Survey
*There is no direct benefit or compensation for participation in the studies.
If you would like to learn more about these research studies or have questions, please feel free to contact us.
Robert Macielak, MD
Robert.Macielak@osumc.edu
Desi Schoo, MD
Desi.Schoo@osumc.edu
614-685-0703
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Washington University Quality of Life Comparison Study
At Washington University, with the support of the Acoustic Neuroma Association, we are conducting a study to compare two different quality of life (QoL) surveys. Our goals are to:
1) to better understand patient experience after a vestibular schwannoma diagnosis and/or treatment,
2) to see how different QoL surveys compare in their measurements of patient experience.
We invite you to participate in this study by completing the online survey.
Your responses will be confidential.
There is no cost or appointment necessary to participate.
To complete the survey, you can enter the web address listed below or scan the QR code using a smartphone camera. The survey takes approximately 20-30 minutes to complete. Questions may appear similar because there is some overlap between the two surveys.
If you would like to learn more about this research study or have questions about your participation, feel free to contact us at (314) 273-1589 and indicate that you are calling about the vestibular schwannoma quality of life study. We greatly appreciate your participation and hope that it will improve future care for patients with vestibular schwannomas.
Sincerely,
Cameron C. Wick, MD
Department of Otolaryngology – Head & Neck Surgery
University Hospitals Cleveland Medical Center
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Understanding Barriers to Vestibular Rehabilitation Therapy
Who Can Participate: Adults between the ages of 18 - 70 that have been diagnosed with vestibular dysfunction and have been recommended vestibular rehabilitation therapy in the past.
Study Purpose: The purpose of this study is to identify barriers that have influenced the successful completion of vestibular therapy treatment. Participation in this study will take about 15 minutes. Following consent, participants will be asked to complete a questionnaire that includes information about their vestibular diagnosis and symptoms, demographic information (such as race and ethnicity), and questions about vestibular rehabilitation. There are no foreseeable risks or benefits to participating in this study except discomfort when answering some of the questions, but responses may help us understand how to treat these conditions more appropriately in the future. There is no cost to you, nor is there compensation for completion.
Total number of participants: We are collecting up to n=200 responses for this preliminary study.
Enrollment dates: Open until the total responses have been met.
Study Contact Information: If you have questions for one of the researchers conducting this study, you may contact Erin Williams, MSBE, CCRP (erin.williams@miami.edu) or Devin Kennedy, BS (djk157@med.miami.edu). If you have questions regarding your rights as a research participant, you may contact the University of Miami, Human Subject Research Office at (305) 243-3195.
