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Published: February 10, 2021

Patient Perspectives in Vestibular Schwannoma Surveillance

You are being invited to participate in a research study titled Patient Perspectives in Vestibular Schwannoma Surveillance. This study is being conducted by  Jay Piccirillo, MD, Principal Investigator.

Study Information:

The researchers want to interview patients who are either actively undergoing observation or underwent observation before ultimately receiving treatment for their vestibular schwannoma. They hope that in conducting these interviews they can not only gain insight into the important factors in this decision making process but also help guide future research for patients considering to undergo observation for their vestibular schwannoma.

Am I Eligible to Participate?

Participants are eligible for this study if they are 18 years or older, live in the United States, speak English, have access to a phone for a 30 minute conversation, have chosen to observe their vestibular schwannoma, and have not been diagnosed with NF2.

What Does Participating in This Study Involve?

• Completion of one screening survey (5 minutes)
• Completion of one follow up survey (10 minutes)
• Completion of one phone interview (30 minutes)

Participants who are interested will be asked to fill out an initial screening survey via REDCap, those who are eligible will be instructed to fill out one additional survey as well as be contacted to coordinate an interview time.

As a thank you for helping advance the collective knowledge of this condition, the research team is offering a $20 reimbursement for anyone who completes the interview.

In order to determine if you meet the eligibility criteria for the study please complete the Screening Survey.

Screening Survey

If you are eligible, we will contact you with additional questions and coordinate the interview for the study.

If you have questions please email otooutcomes@wustl.edu or call Jay Piccirillo, MD, Principal Investigator, at (314) 362-4356.

Recruitment Flyer

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Published: December 23, 2020

ANA Peer Mentor Program
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Published: January 12, 2021

Research Grant Program

The Mission

The ANA is dedicated to furthering all aspects of scientific knowledge related to acoustic neuromas, including its cause(s), development, and treatment, thus improving the lives of individuals living with AN, and finding its ultimate cure.

Our Interest Areas of Funding

We encourage investigators to submit grant proposals across the broad spectrum of acoustic neuroma.  These areas may be original research drawn from disciplines such as audiology, biology, psychology, sociology, or pharmacology. 

For 2023, our Research Committee has additionally identified three broad areas of interest:

Causes and Cures: This includes such areas as chromosomal, cellular, genetic studies, etc.

Technological, Cultural, and Social Interventions: The use of technology in post-treatment, including health apps in monitoring health conditions, and the effectiveness of online self-directed therapies for depression, fatigue, cognitive skills, physical strength/stability, biofeedback, cochlear implant, etc.

Quality of Life: Consideration given to Pain Management – including headaches – and issues related to facial paralysis, social, emotional, cognitive, etc.

Eligibility

The ANA will consider funding researchers and/or centers who have a formal affiliation with nonprofit, academic, medical, or research institutions.  The principal investigator must have an appropriate level of background, training, and institutional engagement to support the proposed research. 

Amounts Available for Funding

Individual awards are typically up to $25,000 in a given year.  Multi-year projects may be considered if they are consistent with our research initiative.  Funding beyond the first year will be on a year-to-year basis, and multi-year projects are subject to annual review for ongoing funding.

Our Annual Grant Cycle 

The grant cycle is straightforward: a Request for Proposals (RFP), our review of submissions, and our announcement of grants awarded.

The RFP will typically be announced at least once annually, during the second quarter of the year.  Typically, multiple RFPs will have a different mission and may not be made on a predetermined basis.  The time from our announcement to our proposal deadline will be of a reasonable length to allow for the preparation of a thorough RFP.

In addition, there may be an opportunity for an ‘out of cycle’ request for research funding that will be considered independently and at the discretion of the ANA leadership. Information on the timelines of the grant cycle will be made available through select ANA publication, digital, and communications platforms. 

For further information, please contact Jim Shea, CEO, at jimshea@anausa.org.

Proposal Guidelines

Our Research Task Force has established strong guidelines for those applying for a grant. Included within these guidelines (five-page limit for proposal) are requests for:

1. Summary of most recent/relevant research and a statement of primary purpose
2. A concise Statement of Goals
3. An Impact Statement
4. Research Strategy including Participants, Study Design, Analysis Method, and Potential Outcomes       
5. Budget, including a statement that the ANA does not provide funding for indirect costs
6. Project Timeframe
7. List of Personnel Support

Proposal detail requirements can be found here, and helpful applicant guidelines can be found here. Please submit all proposals to researchgrantprogram@anausa.org.

Award Review Process

All grant submissions are reviewed by our Research Committee and reviewing parties include ANA Board members and third-party scientists with specialization in the area of acoustic neuroma. All grant submissions are considered using a blind review process and a funding recommendation will be confirmed by a decision of the ANA Board of Directors.

Schedule for 2023: 

• Request for Proposals - Sept 15 - Oct 16
• Full Proposal deadline -  Oct 16
• Review of Proposals - Oct 16 - Nov 30
• Announcement of Grant Funding - December 1

Details

Published: November 20, 2020

Giving Tuesday is the global movement that encourages millions of people all over the world to give back, inspire others,
and take action to generate change. This year, there are three ways to participate that we think will make a difference in the AN community. 
Explore our page to see how you can join us! 

GIVE BACK

Giving Tuesday Presentation

We're giving back to the AN community with a presentation from Dr. Marc Bennett and Dr. Kareem Tawfik of Vanderbilt University on Hearing Preservation Options. 

Please join us at 1:30 pm ET on Giving Tuesday - everyone is welcome! 

 INSPIRE OTHERS

#MyANStory

More than 3,500 patients will be diagnosed with an acoustic neuroma this year. These diagnoses can be frightening, overwhelming, and life-altering.
Where will these patients find the information, support, and community they’ll need?

Help us raise awareness and help others find the support they need by sharing your AN story.
Submit your story and share on social media using #MyANStory.

TAKE ACTION

25K in 25 Days Challenge 

Join our Giving Community! Help us continue our mission,
offering information and support to those who need us most.

There are two easy ways to give:
1. Contribute to our 25K in 25 Days fundraiser using our donor form.
2. Create a Giving Tuesday Facebook fundraiser. 

Your donation WILL make a difference!