Acoustic Neuroma Association
1. Who we Are
The Acoustic Neuroma Association, the premier resource to the acoustic neuroma community, informs, educates and supports those affected by acoustic neuroma brain tumors. The Site, ANA’s newsletters, patient information booklets and other events all assist ANA in furthering its mission. Members and visitors (“you” or “your”) may browse the Site to learn more about ANA, the information it provides, its caregiver, health care provider, educational material, publications and events and to interact with other Site users (although some of these activities may require that you register). You may become an ANA member, make a donation and purchase informational material and related items through the Site. A third party vendor securely manages and processes all financial transactions made through the Site.
2. Information We Provide
3. Privacy and Data Security
ANA values its relationship with Site visitors and members and uses commercially available technology to safeguard any personal information collected through the Site. Nevertheless, the internet is an open medium and no data transmission through the internet is completely secure. You transmit personal information at your own risk. ANA does not guaranty or warranty the security of information you transmit. ANA takes various precautions to safeguard your personal information against loss, theft and misuse as well as unauthorized access, disclosure, alteration and destruction. For example, you must register on the Site to become an ANA member or join the discussion forum. Once received, your personal information is stored in the United States in ANA’s database off the internet and is accessible only by ANA personnel and service providers who are contractually required to maintain the confidentiality of information. ANA does not collect financial information.
Information Collected: In general, you may visit the Site without telling ANA who you are or revealing personal information about yourself. ANA, its business partners and other companies providing services to or on behalf of ANA (such as, for example, companies assisting with the hosting, operation or features of the Site, fundraising, advertising and promotions, credit card or other internet payment functionality such as PayPal and the like) may use various technologies (such as cookies, web beacons, pixel tags, click-through URL links) to collect non-personally identifiable information discernable as a result of your visit. This may include, without limitation, your IP address, web pages requested or viewed, date, time and domain type, demographic information and responses to surveys, promotions and advertisements. Information gleaned from your browser is automatically received and recorded on server logs. As technology evolves, information may be gathered through other means as well. You may set your browser either to notify you when you receive a cookie or to refuse to accept cookies. However, if you do so you may not be able to participate in certain of the Site’s features.
Information that personally identifies you, such as your name, address, e-mail address, telephone number as well as demographic data specific to you may also be collected from a variety of sources. For example, you may provide personally identifiable information directly when seeking disease, caregiver and health care professional information. It also may be gleaned through the Site or collected from other sources. Moreover, as previously mentioned, you must register on the Site to become an ANA member or join the discussion forum. Once received, your personal information is stored in the United States in ANA’s database off the internet and is accessible only by ANA personnel and service providers who are contractually required to maintain the confidentiality of information. ANA does not collect financial information. Credit card information collected in connection with a transaction are completed through a third party vendor with Secure Sockets Layer (SSL) security.
When you register to be an ANA member, join a discussion forum, attend an event, or request support group information, you may be asked to create one or more personal profiles – providing your name, telephone number, email address and/or your mailing address or sensitive information such as patient type– and choose a password for security. This information will be saved by the Site to enable it to recognize you each time you log in to varying portions of the Site. You cannot communicate with ANA through the “Contact Us,” Support Groups or Caregivers links, telephone numbers on the Site or via e-mail without providing personally identifiable information. It is your responsibility to preserve the confidentiality of and not share your user ID and password. You are responsible for the actions of each individual to whom you have given access through your user ID and password and/or for those who obtain access as a result of your failure to properly secure your user ID and password. If you contact ANA or its service providers, a record of that session or correspondence will be maintained. Personally identifiable information is collected and stored when you become an ANA member of the Site, participate in discussion forums and other interactive areas, request literature and/or information on items sold through the Site. If you participate in a discussion forum or other interactive public areas of any of the Site, any information you share is visible to other users. Personally identifiable information you submit to one of these forums can be read, collected or used by other individuals to send you unsolicited messages. ANA is not responsible for personally identifiable information you choose to submit in these forums. If you do choose to make otherwise non-public information available by enabling certain user features, ANA may collect that information from your interaction and it may be treated as publicly available data.
4. User Conduct
You agree not to forge headers or otherwise manipulate identifiers in order to disguise the origin of anything transmitted through the Site, disclose proprietary or confidential information or otherwise infringe another’s patent, trademark, trade secret, copyright or other proprietary right or invade another’s rights of privacy or publicity (collectively, “Rights”). You may not upload chain letters, pyramid schemes, solicitations, or commercial material of any sort to the Site, use the Site to solicit others, advertise or promote anything. Framing, in-line linking or other means of associating the Site or Licensed Content with another or with any material, link or information not originating with ANA is expressly prohibited.
You may not probe, scan or test the vulnerability of the Site or any networks. You many not use any “deep-link,” “page-scrape,” “robot,” “spider” or other automatic device, program, algorithm or methodology, or any similar or equivalent manual process to access, acquire, copy or monitor any portion of the Site or Licensed Content. You may not reproduce or circumvent the navigational structure or presentation of the Site or any Licensed Content, or attempt to access any materials or information through any means not purposely made available by ANA through the Site. Any attempt to interfere with or disrupt the Site, its servers, networks, Software, equipment or database connected to the Site, whether via malicious code, files or other means, to disassemble, reverse engineer or decompile any Software, trace the information of any other user or visitor, circumvent security features such as passwords, or take any action that compromises the privacy or security of the Site, users or other visitors is strictly prohibited.
5. Social Media Channels/Forums/User Submissions
Certain more interactive portions of the Site, discussion forums, Social Media Channels and other digital media forums require special mention. ANA insists that all statements made about it and its activities be accurate, not misleading and not contain unsubstantiated statements. Any comments, blogs, discussions, data, images, sounds, text, product ideas, suggestions or enhancements, as well as anything embedded therein, material, information or other communication you transmit, upload or post to the Site, generally and through Social Media Channels and other the public forums, or email to ANA (collectively, “Communications”) are non-confidential, nonproprietary and become the property of ANA. ANA has no obligation to preserve the confidentiality of or refrain from disclosing any Communications. You recognize and acknowledge that your submission of any suggestions, ideas, images, data or other material is done on a non-confidential, non-proprietary basis, without expectation of compensation or attribution of any sort. ANA has no liability for and will be free to copy, disclose, distribute, incorporate and otherwise use all or any part of any Communications for any and all commercial or noncommercial purposes in any medium whatsoever without additional consent or approval from you. Please exercise caution and discretion in disclosing personal information through, including uploading photos to, any public forums.
You are solely responsible for your Communications and your activities on the Site. Although ANA will not, and has no obligation to, monitor your Communications, it has the right not to post or publish Licensed Content and/or your Communications and to delete, remove or edit any Licensed Content and or Communications at any time in its sole discretion without notice or liability of any notice or sort. Under no circumstances is or will ANA or its affiliates be liable in any way for any Communications, your or another’s use of the Site or any Licensed Content, including but not limited to any errors or omissions in any Licensed Content, or for loss or damage of any kind incurred as a result of the use of any Licensed Content via the Site. Statements about materials sold through the Site or other statements or claims made through public, interactive areas provided on the Site have not undergone review or research by ANA to substantiate such claims. ANA cautions you not to rely on such claims and advises that you perform your own independent research.
9. ANA’s Proprietary Rights
10. Notices and Procedures for Making Claims of Copyright Infringement
Pursuant to Title 17, United States Code, Section 512(c)(2), notifications of claimed copyright infringement should be sent to ANA.
ANA respects the intellectual property of others, and asks its users and visitors to do the same. ANA will investigate notices of alleged infringement and will take appropriate actions under the Digital Millennium Copyright Act (“DMCA”) and other applicable intellectual property laws. Upon receipt of notices complying with the DMCA, ANA will act to remove or disable access to any material found to be infringing or found to be the subject of infringing activity and will act to remove or disable access to any reference or link to material or activity that is found to be infringing.
If you believe that your work has been copied in any way that constitutes copyright infringement, please provide all of the following information:
A. a physical or electronic signature of the person authorized to act on behalf of the owner of an exclusive copyright that is allegedly infringed;
B. a description of the copyrighted work that you claim has been infringed;
C. a description of the material that you claim is infringing or is the subject of infringing activity, that it is to be removed or access to it disabled and information reasonably sufficient to enable ANA to locate the material on the Site;
D. your name, address, telephone number, email address and all other information reasonably sufficient to permit ANA to contact you;
E. a statement by you that you have a good faith belief that use of the material described by you is not authorized by the copyright owner, its agent, or the law;
F. a statement by you, made under penalty of perjury, that the information in your notification is accurate and that you are the copyright owner or authorized to act on behalf of the owner of an exclusive right that is allegedly infringed.
Notices of claimed copyright infringement should be directed to:
By mail: Acoustic Neuroma Association
600 Peachtree Pkwy, Suite 108
Cumming, GA 30041-6899
By fax: 770.205.8211
(Please include “Notice of Infringement” in the subject line.)
IMPORTANT NOTE: THE PRECEDING INFORMATION IS PROVIDED EXCLUSIVELY FOR NOTIFYING ANA THAT YOUR COPYRIGHTED MATERIAL MAY HAVE BEEN INFRINGED. ALL OTHER INQUIRIES, QUESTIONS AND REQUESTS, OR QUESTIONS ON PRIVACY, WILL NOT RECEIVE A RESPONSE THROUGH THIS PROCESS.
11. DISCLAIMERS AND LIMITATIONS OF LIABILITY
ANA DOES NOT OFFER LEGAL OR MEDICAL ADVICE OR COUNSELING AND NOTHING CONTAINED IN THE LICENSED CONTENT OR ON THE SITE SHOULD BE CONSTRUED AS OFFERING SUCH ADVICE. ANA DISCLAIMS ALL REPRESENTATIONS OR WARRANTIES ABOUT THE ACCURACY OR COMPLETENESS OF THE SITE OR LICENSED CONTENT.
YOU EXPRESSLY UNDERSTAND AND AGREE THAT:
(A) YOUR USE OF THE SITE AND ANY PARTICULAR FEATURE IS AT YOUR SOLE RISK. THE SITE IS PROVIDED ON AN “AS IS” AND “AS AVAILABLE” BASIS. ANA EXPRESSLY DISCLAIMS ALL WARRANTIES OF ANY KIND, WHETHER EXPRESS OR IMPLIED, INCLUDING, BUT NOT LIMITED TO THE IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, WARRANTIES ARISING FROM COURSE OF DEALING OR COURSE OF PERFORMANCE, FREEDOM FROM MALICIOUS CODE, NON-INFRINGEMENT AND NONINTERFERENCE WITH YOUR USE OF ALL OR ANY PART OF THE SITE.
(B) ANA MAKES NO WARRANTY (I) THAT THE SITE WILL MEET YOUR REQUIREMENTS, (II) THAT ACCESS TO THE SITE WILL BE UNINTERRUPTED OR TIMELY, THAT IT IS SECURE, OR THAT LICENSED CONTENT IS ACCURATE OR ERROR-FREE, (III) THAT PRODUCTS WILL BE AVAILABLE, ACCURATELY DEPICTED OR PRICED, (IV) THAT THE RESULTS OBTAINED FROM USE OF THE SITE WILL BE ACCURATE OR RELIABLE, (V) THAT THE QUALITY OF ANY PRODUCTS, THE SITE, INFORMATION, OR OTHER MATERIAL PURCHASED OR OBTAINED BY YOU THROUGH THE SITE WILL MEET YOUR EXPECTATIONS, OR (VI) THAT PRODUCTS WILL BE PROPERLY DELIVERED IN PROPER AMOUNTS.
(C) ANY MATERIAL DOWNLOADED OR OTHERWISE OBTAINED THROUGH THE USE OF THE SITE IS DONE AT YOUR OWN DISCRETION AND RISK AND THAT YOU WILL BE SOLELY RESPONSIBLE FOR ANY RESULTING DAMAGE.
(D) NO ADVICE OR INFORMATION, WHETHER ORAL OR WRITTEN, OBTAINED BY YOU FROM ANA OR THROUGH OR FROM THE SITE SHALL CREATE ANY WARRANTY EXPRESS OR IMPLIED.
(E) ANA IS NOT LIABLE FOR ANY PRODUCT WARRANTIES NOT EXPRESSLY SET FORTH ON THE SITE OR PROVIDED WITH THE PRODUCT PACKAGING.
YOU EXPRESSLY UNDERSTAND AND AGREE THAT ANA SHALL NOT BE LIABLE FOR ANY DAMAGES WHETHER DIRECT, INDIRECT, INCIDENTAL, SPECIAL, CONSEQUENTIAL OR EXEMPLARY DAMAGES, INCLUDING BUT NOT LIMITED TO DAMAGES FOR LOSS OF PROFITS, GOODWILL, USE, DATA OR OTHER INTANGIBLE LOSSES (EVEN IF ANA HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES), WHETHER ARISING OUT OF OR IN CONNECTION WITH THE USE OR THE INABILITY TO USE, ACCURACY OF THE INFORMATION, PRODUCTS AND MATERIALS SHOWN OR AVAILABLE FROM THE SITE OR ANY OTHER MATTER RELATING TO YOUR ACCESS TO OR USE OF THE SITE. IN ANY CASE, ANA’S SOLE LIABILITY, AND THAT OF ITS LICENSORS, SUPPLIERS AND BUSINESS PARTNERS, IS LIMITED TO FIVE DOLLARS ($5.00). YOUR LEGAL RIGHTS WITH RESPECT TO THESE DISCLAIMERS AND WAIVERS MAY VARY FROM JURISDICTION TO JURISDICTION. WITHOUT INTENDING TO LIMIT THE FOREGOING, YOU MUST BRING ANY CLAIMS YOU MAY HAVE AGAINST ANA WITHIN SIX (6) MONTHS OF THE DATE THE CLAIM AROSE OR BE FOREVER BARRED. THESE LIMITATIONS SHALL APPLY NOTWITHSTANDING ANY FAILURE OF ESSENTIAL PURPOSE OF ANY LIMITED REMEDY.
Acoustic Neuroma Association
600 Peachtree Pkwy, Suite 108
Cumming, GA 30041-6899
13. General Information
Annual Sponsorship Program
CRITERIA: Sponsorship is for organizations and corporations providing responsible products, devices or services that assist in the diagnosis, education, treatment, management and research of acoustic neuroma.
NOTE: In no case does ANA endorse any commercial product, physician, surgeon, medical procedure, medical institution or its staff.
Benefits are good for one full year.
Awareness sponsors are excluded from year-round benefits.
Ways to Partner
The vision of the Acoustic Neuroma Association is to continually improve the lives of acoustic neuroma patients and their families through communication, support, innovation and partnerships with the medical community.
There are many opportunities for you to partner with ANA, including:
Healthcare Provider website listing for individual healthcare providers or medical centers:
A website listing provides exposure to patients seeking care for acoustic neuroma treatment and healthcare services due to acoustic neuroma. Listings can include information about services provided and other relevant information, and include a link to your website. A listing on the ANA website includes ANA membership benefits for one person.
Individual listing for one year: $325
Medical Center listing for one year: $1,100
Patient Education Events
ANA is collaborating with medical centers to provide patient education programs. These single-day events are hosted by various centers around the country.
Support Groups/Webinars/Facebook Live/Newletters/Podcasts
We welcome a variety of speakers, presenters and authors for our year-round programs. Each year, ANA holds over 100 support group meetings across the United States. Our webinars and Facebook Lives focus on many topics of interest to acoustic neuroma patients and caregivers, attracting thousands of viewers each year, and are archived and accessible to ANA members on our website. Our quarterly Notes newsletter is sent to all active ANA members and is included in our Patient Kit, sent to every patient who contacts us. We are beginning a new podcast in 2018 that will feature talks with providers on a variety of topics and will be archived on our website.
Our annual sponsorship program provides a range of benefits, including webinar sponsorship, newsletter articles, videos, social media posts, website announcements and more.
We are always open to discussing opportunities to collaborate and provide superior programs for the acoustic neuroma community. We look forward to working with you and your team in the future.