Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

AN Research

Disclaimer - Acoustic Neuroma Medical Research Studies and Trials Listings

The Acoustic Neuroma Association posts information about acoustic neuroma medical studies and trials which may be of interest to acoustic neuroma patients or caregivers. These listings are provided as a convenience only and are not to be considered an endorsement or recommendation by ANA.

All studies and trials listed have IRB or Ethics Committee approval. An Institutional Review Board (IRB) is a committee established to review and approve research involving human subjects. The purpose of the IRB is to ensure that all human subject research be conducted in accordance with all federal, institutional, and ethical guidelines.

Clinical study involves research using human volunteers (also called participants) that is intended to add to medical knowledge. There are two main types of clinical studies: clinical trials (also called interventional studies) and observational studies.

In a clinical trial, participants receive specific interventions according to the research plan or protocol created by the investigators. These interventions may be medical products, such as drugs or devices; procedures; or changes to participants' behavior, such as diet. Clinical trials may compare a new medical approach to a standard one that is already available, to a placebo that contains no active ingredients, or to no intervention. Some clinical trials compare interventions that are already available to each other.

When a new product or approach is being studied, it is not usually known whether it will be helpful, harmful, or no different than available alternatives (including no intervention). The investigators try to determine the safety and efficacy of the intervention by measuring certain outcomes in the participants.

The ANA website provides a brief introduction to studies and trials, with links to the study and contact information. All information is provided by the research organization. AN patients should contact the research organization for more information using the contact information provided. 

Massachusetts General Hospital - New!
Resiliency for NF Study

University of California, Irvine
Decision Making in Acoustic Neuroma

Treatment outcomes in patients with large acoustic neuromas

Yale University
Acoustic Neuroma causation research study

Mayo Clinic
Acoustic Neuroma Quality-of-Life Study

ANA Survey/Registry

In a continuing effort to advance our understanding of acoustic neuroma issues, the Acoustic Neuroma Association conducted surveys of acoustic neuroma patients.

We would like to thank all of you who completed the surveys and sincerely hope you will help us continue our efforts to develop a "living database" that will provide valuable information to all existing patients, as well as those who will be diagnosed in the future by participating in our Patient Registry.


 2014 Patient Survey Report

Annual Reports

Click the links below to view the Annual Report

2016 ANA Annual Report

2015 ANA Annual Report

2014 ANA Annual Report

2013 ANA Annual Report

2012 ANA Annual Report

ANA Form 990 is available on request.

Related Links

The Acoustic Neuroma Association provides the following links to assist in your search for information. These links are provided as a convenience only and are not to be considered an endorsement or recommendation by ANA.

Acoustic Neuroma Association of New Jersey:


Cognitive Issues:

Eye Care:

Facial Pain:

Financial Assistance:

Government Agencies:





Non-English Resources:

Patient Advocacy:

Research Studies:

Mission, Vision & Values


The Acoustic Neuroma Association, the premier resource to the Acoustic Neuroma community, informs, educates and supports those affected by Acoustic Neuroma brain tumors.


To continually improve the lives of Acoustic Neuroma patients and their families through communication, support, innovation and partnerships with the medical community.


  • Respect: to honor the needs and privacy of acoustic neuroma patients

  • Professionalism: to maintain high ethical standards at all times

  • Objectivity: to remain free of bias in everything we do

  • Patient Centricity: to place the patient and their community at the forefront of all ANA efforts