Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

 EventSponsors

Please help ANA continue to provide these valuable programs.
DONATE TO SUPPORT PATIENT EVENTS

*****UPCOMING EVENTS*****

ANA Patient Education Event Hosted by
University of Cincinnati Gardner Neuroscience Institute at UC Health
May 11, 2019

ANA Patient Education Event Hosted by
Stanford University Medical Center, Departments of
Neurosurgery and Otolaryngology
August 24, 2019

 

 

 

 

The Great Brain Freeze

BrainFreezeWebBlogThe Great Brain Freeze is the Acoustic Neuroma Association's signature winter fundraising theme encouraging friends, family and members of your local community to join you in taking an icy plunge to raise awareness and funds for the Acoustic Neuroma Association.

If brraving an arctic dip is not your cup of tea or your winter weather is always sunny, consider a pool party, ice cream social or group snowball fight. The possibilities to keep it cool for your fundraising are endless!

The Great Brain Freeze is the brainchild of Neil Donnenfeld, ANA Vice-President and AN patient. Neil's inaugural plunge into the chilly Atlantic Ocean took place on February 4, 2018 at Fisherman's Beach in Swampscott Massachusetts. Watch his story:

  

To get started on Your Great Brain Freeze:

  • Talk with your doctor to ensure you can participate in this type of activity.
  • Email our This email address is being protected from spambots. You need JavaScript enabled to view it. to let them know of your participation.
  • Review our Event Tips and Guidelines and complete and return the Event Information Submission Form.
  • Download our helpful templates and The Great Brain Freeze logo (1-color and 2-color formats) to promote your event.

Clint Sarion

Clint Sarion - The Smiling Ninja and an AN Warrior

ClintSarion1

ClintSarion2

ClintSarion3

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 AMERICAN NINJA WARRIOR --"Cleveland Qualifier" -- Pictured: Clint Sarion -- (Photos by: Duane Prokop/NBC)

Read Clint's story https://m.facebook.com/story.php?story_fbid=1514898245477805&substory_index=0&id=1514871015480528

Watch Clint's American Ninja Warrior submission video https://www.youtube.com/watch?v=AnYvr493WUY&feature=youtu.be

Don't forget to tune in on Monday, July 10th to watch Clint in action!

Support Groups by State

 

ALABAMA

MOBILE

Leader: Alan Heffernan
251-621-5665
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ARIZONA

PHOENIX

Leader:  Tracy Denmark Schwimmer
602-561-1855
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TUCSON

Leader: Tricia Jennings
520-825-9845
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Leader: Carol Franklin
520-722-8340
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ARKANSAS

LITTLE ROCK

Leader: Hailey Albers
479-586-8454
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Co-Leader: Chris Harris
501-541-4989
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CALIFORNIA

LOS ANGELES

Leader: Leah Keith
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NAPA/SONOMA

Leader:  Judith Hendrickx
707-239-1756
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PALO ALTO

Leader: Christina Esfehani
650-575-6990
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Co-Leader: Mark McLaren
925-838-8175
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SACRAMENTO

For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email to This email address is being protected from spambots. You need JavaScript enabled to view it.

SAN DIEGO

Leader: Helen McHargue
760-728-0309
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Leader: Margaret Briggs
619-500-6141
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SAN FRANCISCO-OAKLAND

Leader: Carol Most Walker
415-889-3547
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Co-Leader: Thomas Sattler
415-864-0764
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COLORADO

DENVER

Leader: Ginnie Ferraro
303-469-6391
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DC

WASHINGTON, DC

Leader: Allison Shaffer
301-279-9166
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Co-Leader: Michelle Nemeth
703-772-7114
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FLORIDA

FT. LAUDERDALE

Leader: Nanci Heinmiller
561-391-2341
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MIAMI

Leader: Jeannie Silver
305-608-1103
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NORTH FLORIDA

Leader: Dyanne Hughes
904-624-0940
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Leader: Terry Wilford
904-268-3510
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ORLANDO

Leader: Chad Nye
863-248-2927
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Co-Leader: Elsie Bonilla, Hablo Español
407-273-5697
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SARASOTA

Leader: Kim Simington
908-963-8800
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GEORGIA

ATLANTA

Leader: Meredith Daly
678-525-1941
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ILLINOIS

CHICAGO

Leader: Ellen Nuebel
847-971-0896
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CHICAGO-SOUTHWEST

For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email to This email address is being protected from spambots. You need JavaScript enabled to view it.


INDIANA

INDIANAPOLIS

Leader: Sandra Hudgens
317-730-6368
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KENTUCKY

LOUISVILLE

Leader: Kathy Gardner
502-593-9224
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LOUISIANA

BATON ROUGE

Leader: Joan Bonds
225-752-1326
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Leader: Patricia Settoon
225-545-3390
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MARYLAND

BALTIMORE 

Leader: Bob Kaplan
410-698-3225
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MASSACHUSETTS

BOSTON

Leader: Nancy Marjollet
781-248-3924
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SPRINGFIELD

Leader:  Deborah Basile
413-537-5840
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MICHIGAN

West Bloomfield

Leader: Ken Posner
248-464-0808
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MINNESOTA

MINNEAPOLIS-ST. PAUL

Co-Leader: Tim Gray
612-615-1888
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Co-Leader: Steven Blons
612-925-5926
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MISSOURI

 

KANSAS CITY

Leader: Dave Kellogg
913-345-1727
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ST. LOUIS

Leader: Agnes Garino
314-821-1905
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Co-Leader: Phyllis Trulock
314-822-3221
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SPRINGFIELD

Leader: Jennifer Miller
417-343-9466
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NEW HAMPSHIRE / VERMONT

LEBANON, NH

Leader: Linda Grant
603-418-4629
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NEW JERSEY

SOUTH

Leader: Iryna Lutsenko
609-705-6623
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NEW YORK

ALBANY-MID HUDSON

Leader: Tracey Collins
581-382-3283
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LONG ISLAND

Leader: Daria Quinones
631-423-3255
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NEW YORK CITY

Leader: Miranda Warren Sacharin
646-964-4679
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ROCHESTER

Leader: Frank Logosh
585-329-8231
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Leader: Tom Banach
585-362-7466
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NORTH CAROLINA

CHARLOTTE

For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email: This email address is being protected from spambots. You need JavaScript enabled to view it.

EASTERN NORTH CAROLINA

Leader: Stewart Binder
919-624-3256
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Leader: Debbie Fletcher
919-471-4389
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Leader: Lisa Fisher
412-996-2386
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OHIO

CINCINNATI-DAYTON

Leader: Alice Wedding
513-831-0336
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CLEVELAND

Leader: Tom Moore
440-454-3282
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COLUMBUS

Leader: Melissa Dickens
758-478-8271
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OREGON

PORTLAND

Leader:  David Noyes
503-419-7418
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PENNSYLVANIA

PHILADELPHIA

Leader: Samira Rajabi
303-547-0043
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PITTSBURGH

Leader: Joe Vargo
814-242-1662
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READING

Leader: Nancy Graffius
610-939-9114
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RHODE ISLAND (SE NEW ENGLAND)

EAST GREENWICH

Leader: Tony DiBella
401-884-6484
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SOUTH CAROLINA

COLUMBIA

Leader: Ricky Roberson
803-729-4040
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GREENVILLE

For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email to This email address is being protected from spambots. You need JavaScript enabled to view it.


TENNESSEE

KNOXVILLE

Leader: Linda Dyer
865-591-4763
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NASHVILLE

For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email to This email address is being protected from spambots. You need JavaScript enabled to view it.


TEXAS

DALLAS-FT.WORTH

Leader: Linda Dorasami
817-244-0615
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Leader: Betsy Poer
817-297-3832
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HOUSTON

Leaders: Shawn and Connie Wilkins
832-458-0236
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Co-Leader: Mike Machula
281-338-4993
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SAN ANTONIO

                       Leader: Teresa Zdansky
                       210-386-5608
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UTAH

SALT LAKE CITY

Leader: Gayle Warren
801-362-1958
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VERMONT/ NEW HAMPSHIRE

LEBANON, NH

Leader: Linda Grant
603-418-4629
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VIRGINIA

EASTERN VIRGINIA (Richmond)

For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email to This email address is being protected from spambots. You need JavaScript enabled to view it.

ROANOKE

Leader: Johnny Diaz
540-586-0319
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WASHINGTON

 SEATTLE-TACOMA-OLYMPIA

Leader: Rodney Davidson
360-387-6037
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WISCONSIN

GREEN BAY

Leader: Bonnie Simon
920-731-4647
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Co-Leader: Audrey Laskowski
920-822-5635

MILWAUKEE

Leader: Judy Jones
414-491-6249
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Mark Ruffalo's Story

 Academy Award nominated actor and AN patient, Mark Ruffalo discusses his acoustic neuroma journey.