Click photos to read more.
Submit your milestone/anniversary and upload a photo or video: MILESTONE FORM
Note: In no case does ANA endorse any commercial product, physician, surgeon, medical procedure, medical institution or its staff.
2 years post op and brain bleed. Here I am speaking in front of the Maryland General Assembly 2 years later.
My 2cm AN was an 'incidental finding' from a persistent sore throat. I went into full throttle research mode and got over 12 opinions! My husband and I made spreadsheets, read the latest medical journal papers and at night, held each other tightly. Landed on a superbly experienced, responsive and warm demeanor-ed team at UC San Diego. Perfect outcome- saved hearing(!), face & did a total resection. Healing rapidly, kissing my 3yo daughter's potbelly and exploring the new movement pathways available to me. The body is a resilient ecosystem and fiercely regenerative in it's capacity for healing.
This summer will mark my 31st year post surgery! Then, I was 26 and in the middle of grad school. Some new challenges were added certainly (one-sided deafness, facial paralysis, balance issues - you know the drill), some self-realization alterations had to be made, but it's been a very fulfilling three decades. Now retired, the fulfilling part continues with much love and thanks to husband, family, and friends!
I am just happy that I can now control the muscle and nerve that was transplanted into my left cheek by clenching my jaw. Although I do still technically have paralysis, I no longer have the droop. I am going to take another step of the reanimation come June to go back in and shave down the muscle some.
I decided to honor those who gifted me my 2 post-retrosigmoid years by using my 2-year MRI appt as a long weekend celebration of life. Regardless of what the 2-year follow-up would reveal, I combined airplane, bus, and train rides to connect Ohio, Minnesota, Virginia, and Washington, DC so that I could visit friends, tour cities & historical sites, and run both the Charlottesville Half-Marathon and DC's Cherry Blossom 10-Miler before coming home - all within 4 days! Since then I have completed 2 more half-marathons and have more planned including my 2nd full marathon is coming up in October.
On July 14, 2015 I had the MRI that showed the acoustic neuroma. Now, 3 years later, I’m having a tattoo of the Acoustic Neuroma Awareness logo. It brought back so many memories - thinking back about all I went through. I'm more than what happened to me but it's still part of my story.
In 1989 I had AN surgery that left me with horrible headaches, severe hearing loss, demanding fatigue and a terrible lack of balance. In early 2017, I decided to become a cyclist. I started training and also took Pilates classes. At 73 years old, I recently accomplished the greatest physical challenge of my life - I biked up Greenville’s Paris Mountain, with an ascent of 2.2 miles of incline. It was an incredible day for me! My friends and I went up 2100 feet, riding a total of 26 miles. When I think back to how far I’ve come since my surgery 28 years ago, I feel so proud. Find your passion and never stop moving!
It has been 20 years since my Translab surgery for my AN and 10 years since Gamma Knife for a recurrence. What milestones! During that time, I have hiked up mountains, repelled down a cliff, ran half marathons, and raised two girls. Call me adventurous? No, I am just living life to its fullest and my AN is on the journey with me.
I had AN surgery September, 2015 via the Retrosigmoid approach. I'm deaf in my left ear, but still carrying on. Keep on keeping on! I'm a USPS letter carrier of 17 yrs!!!
2.5 years post op, a 16 hour surgery for a 5.2cm tumor & a CSF leak. Some days I can barely walk, other days I'm skateboarding again! Stay strong everybody!
I was 32 years old when my 2.5 cm tumor was removed. And that was 32 years ago! So I have now spent as much of my life AFTER the surgery as I had BEFORE the surgery. My first thought upon hearing the diagnosis was, "Why haven't I had children yet?" My son is now 28 years old and knows instinctively to always walk on my right side where I can hear him best. I have had a long and successful business career and people around me just know that I will tell everyone where to sit at a table so I can hear them.
September 11 I started my 5th straight year playing hockey. 1992 Translab, 2007 Translab (regrowth), 2011 Gamma which just had my 8 year check up and no growth. My celebration is for all those who may not see the light at the end of the tunnel. Whether its post op, pre op, family, friends, whomever, you don't have to stop living life. I celebrate for all AN Warriors.