Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

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Dear Friend,

I never imagined my life would take a dramatic turn as the result of an acoustic neuroma. Prior to my diagnosis, I realized I could not hear people approach me. I assumed my office phone was not working properly. Eventually, tinnitus became a concern. I attributed this to my blood pressure. Dizziness, I told myself, was the result of fatigue.

I finally visited my doctor to get to the root of my issues. “Maybe,” I thought to myself, “it’s just an ear problem?”

Sponsor Post: Complex Case: Rare Cochlear Implantation After Previous NF2 Tumor Removal

This article was reposted with the permission of NYU Langone.

A recent cochlear implantation restored hearing in a patient left profoundly deaf by prior surgery and radiation treatment for neurofibromatosis type 2 (NF2) tumors. The successful cochlear implant (CI) application—rarely performed in such situations—challenges the long-held belief that the device is not a viable option for previously treated NF2 patients.

Sponsor post: Weighing Intervention Timing and Type for Vestibular Schwannomas

This article was re-posted with permission from Vanderbilt University.

DECEMBER 07, 2018

New insights from the largest cohort study of tumor growth.

A significant percentage of vestibular schwannomas (VS), or acoustic neuromas, either grow relatively slowly or with little to no growth. Seeing a patient with an acoustic neuroma for the first time, it is difficult to know how long the tumor has been present, with variability from 5-25 years. Yet to date, there have been no definitive guidelines for weighing observation versus intervention.

A recent article in the New York Times discusses falling, a topic that many acoustic neuroma patients contend with both before and after treatment. The article's title is a bit alarmist, but it contains good information about which medications can cause dizziness or drowsiness, what health issues can contribute to falls, and how to take steps to minimize your risk of falling.

Notes Newsletter March Issue Online Now!

The March 2019 issue of Notes is now available in the ANA Member Section of our website.  In this issue: