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Published: February 11, 2025

Upcoming Events

Specialty Support Groups

Support Groups by State

If you need help finding a group or are interested in starting a group, contact us.

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Published: June 28, 2024

I am an observation patient, how will I know when it's time to seek treatment?

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Published: October 04, 2024

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The ANA is dedicated to empowering patients to take an active role in their care by creating impactful programs, funding research, and collaborating with top medical centers and leading healthcare providers - supporting you along every step of your AN journey.

Our commitment includes a robust lineup of support group meetings, webinars, and educational events, plus our quarterly NOTES newsletter, featuring insights on treatment options, regrowth, hearing and balance issues, managing headaches, and navigating the “Watch and Wait” approach. 

Please take a moment to ensure we have your most up-to-date information, so you’ll have access to these critical resources.

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Published: April 25, 2024

The Ohio State University Wexner Medical Center is seeking participants for three online surveys. The Financial survey is open to everyone. The Dizziness Post Radiation and Dizziness Post Surgery surveys are open to those patients who have received that treatment. You can participate in one or more of these surveys.

1. Financial Survey for all AN/VS Patients to evaluate the financial impact of AN/VS diagnosis and treatment

With this survey, we seek to evaluate the impact the diagnosis and treatment of a vestibular schwannoma has on your ability to work and your financial situation.

Financial Toxicity of Vestibular Schwannoma Management
Who can participate: All acoustic neuroma patients, irrespective of their treatment status, including those undergoing surveillance.
Access Survey

2. Long-term Dizziness Survey for AN/VS Patients that had Radiation Treatment

With this survey, we seek to evaluate how radiation treatment affects your balance and dizziness symptoms in the short and long term.

Long-term Dizziness after Radiation for Vestibular Schwannoma Survey
Who can participate: Acoustic neuroma patients who have undergone radiation treatment.
Access Survey 

3. Long-term Dizziness Survey for AN/VS Patients that had Microsurgery Treatment

With this survey, we seek to evaluate how surgery affects your balance and dizziness symptoms in the short and long term.

Long-term Dizziness after Microsurgical Resection of Vestibular Schwannoma Survey
Who can participate: Acoustic neuroma patients who have undergone microsurgery treatment. *If you had prior radiation followed by microsurgery, you are eligible to participate.
Access Survey

*There is no direct benefit or compensation for participation in the studies.

If you would like to learn more about these research studies or have questions, please feel free to contact us.
Robert Macielak, MD
Robert.Macielak@osumc.edu
Desi Schoo, MD
Desi.Schoo@osumc.edu
614-685-0703