Details

Published: March 28, 2018

CONNECT WITH OTHERS

There are milestones or anniversaries that people remember as a significant event noting a special achievement during the AN journey from a very personal, individual perspective.  For some, a milestone can be making a tough treatment decision after months of information gathering.  For others, it may be a treatment anniversary, or perhaps reaching a specific goal after treatment.  Whether large or small, milestones and anniversaries are meaningful markers and are as unique as the individual.

We hope that seeing these realistic and personal events, submitted by patients, caregivers or family members, will provide a sense that you are not along and you will find comfort from others that have faced similar circumstances.  Together we can make a difference by encouraging others on their AN journey.

Sample milestone:
At age 33 and mom to two small children, I learned I had a 2.5cm AN.  I had successful Translab surgery in May 2017. Unfortunately, I awoke from surgery with facial paralysis and struggled to get back on my feet without help.  I wanted to be strong and healthy and get back to what I loved - running.  I kept a positive attitude (even though there were plenty of bad days), had an amazing support system and set a goal to run my first race six months post-surgery. I completed a 10K and raised $3,000.00 for ANA!


Submit your milestone/anniversary and upload a photo or video:
SUBMIT A MILESTONE READ MILESTONES

Additional ways to connect with others:
ANA Local Support Groups
ANetwork
Community Connections
Find a Local Support Group
Online Discussion Forum
Support Group Photo Gallery
Patient Video Stories

If you would like to give back by helping other patients, please fill out our Volunteer Interest Form.

Details

Published: March 09, 2018

Saturday, September 29, 2018
8:00 AM - 1:30 PM
Vanderbilt University Medical Center
Langford Auditorium
2209 Garland Avenue
Nashville, TN 37232

Please join us for a day of education and support. 
Presentations will cover a variety of topics for pre-treatment/observation patients and post-treatment patients.
Details to come.

A limited number of hotel rooms have been blocked at the Courtyard Marriott/Nashville Vanderbilt West End (Friday night only) at $189.
These rooms are first come, first served.

BOOK HOTEL

REGISTER FOR EVENT

Details

Published: March 28, 2018

SPREAD THE WORD TO RAISE AWARENESS

Wear Your ANWarrior Shirt
Help us celebrate or recognize your AN Milestone. Do you have a special moment or anniversary or accomplishment you'd like to share with us? Take your photo in your shirt and share with us your milestone.

Use your voice on social media
Join us in making a THUNDERCLAP. 

Change your profile image for the week
Facebook - Add the ANAwareness Week frame to your profile picture
Twitter Profile Image       Facebook Profile Image       Facebook Cover Image
Instagram Profile Image       Pinterest Profile Image

Connect with ANA on social media
Comment and share ANA posts and tweets. Post your AN Milestone stories and photos to educate, support and inspire others.
Facebook     Twitter@ANAssociation     YouTube - ANAssociation     LinkedIn     Pinterest     Instagram

Get Started Locally
Hold a fundraiser
Fundraising Event Tips & Guidelines
Templates to get started

Materials to have ANAwareness Week declared in your county, city or state:
Sample Proclamation Request Letter       Sample Proclamation Wording

Materials for local media:
Sample Letter to the Editor       Press Release Patient Story       ANAwareness Logo 1       ANAwareness Logo 2

Details

Published: February 19, 2018

Help to raise awareness of acoustic neuroma with just one click.

We are so excited to participate in a Thunderclap for ANAwareness Week this year! This is an exciting way to make a big splash by spreading awareness to ALL of your social media contacts. It's easy, too! Click here and sign up to share the post below with all of your contacts on whatever social media outlet you choose - Facebook, Twitter or Tumblr. 

On May 6th, the message below will go out to the contacts of everyone that has agreed to participate. This will happen on the same day, at the same time,  making a big impact, like a thunderclap!! And don't worry, you aren't jeopardizing your privacy or that of your friends as none of the information will be shared or stored. Read here for more on how Thunderclap uses this info and how they protect your privacy.

LEARN MORE

ORDER AN AN WARRIOR SHIRT TODAY!
Special Notice: All orders placed between April 17 and May 14 will not be delivered until approximately May 30.

MILESTONES

There are milestones or anniversaries that people remember as a significant event noting a special achievement during the AN journey from a very personal, individual perspective.  For some, a milestone can be making a tough treatment decision after months of information gathering.  For others, it may be a treatment anniversary, or perhaps reaching a specific goal after treatment.  Whether large or small, milestones and anniversaries are meaningful markers and are as unique as the individual.

ANA wants to feature these meaningful events on our website - help us raise awareness by sharing your milestone or anniversary today.

We hope that seeing these realistic and personal events, submitted by patients, caregivers or family members, will provide a sense that you are not alone and you will find comfort from others that have faced similar circumstances.

Together we can make a difference by encouraging others on their AN journey.

Sample milestone:
At age 33 and mom to two small children, I learned I had a 2.5cm AN.  I had successful Translab surgery in May 2017. Unfortunately, I awoke from surgery with facial paralysis and struggled to get back on my feet without help.  I wanted to be strong and healthy and get back to what I loved - running.  I kept a positive attitude (even though there were plenty of bad days), had an amazing support system and set a goal to run my first race six months post-surgery. I completed a 10K and raised $3,000.00 for ANA!

Submit your milestone/anniversary and upload a photo or video: MILESTONE FORM

START A FUNDRAISER 

Now is the perfect time to plan your fundraiser for ANAwareness Week.  Join TEAM ANA to raise awareness and funds and connect and encourage others while having a good time!  Visit the TEAM ANA page where you will find ideas for events and tools to help you get started today.  For assistance, email Jennifer Farmer at This email address is being protected from spambots. You need JavaScript enabled to view it..
Another way to raise funds for ANA and engage with others in the hearing loss community is to participate in the Walk4Hearing.  ANA receives 40% of funds raised by you for these events.  Click to see if there is a Walk4Hearing close to you!

TAKE ACTION 

You can make a great impact in your own local community by reaching out to your government officials and local media.

We've prepared templates to assist you in writing to your editor and obtaining a proclamation.  These requests take time to process, so please don't wait.

Write your local and state officials to request support for ANAwareness Week in the form of an official proclamation.  It's easy to do!  Sample Proclamation Request Letter   Sample Proclamation Wording 

Write your local news editors for press coverage of your acoustic neuroma story or your efforts to raise awareness. Yes, your story matters to your community!  Sample Letter to the Editor   Sample Press Release Template

USE YOUR VOICE ON SOCIAL MEDIA

Update your profile and cover photos on Facebook, Twitter, Instagram and Pinterest.
Download now.
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Facebook profile image
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