Patient Perspectives in Vestibular Schwannoma Surveillance
You are being invited to participate in a research study titled Patient Perspectives in Vestibular Schwannoma Surveillance. This study is being conducted by Jay Piccirillo, MD, Principal Investigator.
The researchers want to interview patients who are either actively undergoing observation or underwent observation before ultimately receiving treatment for their vestibular schwannoma. They hope that in conducting these interviews they can not only gain insight into the important factors in this decision making process but also help guide future research for patients considering to undergo observation for their vestibular schwannoma.
Am I Eligible to Participate?
Participants are eligible for this study if they are 18 years or older, live in the United States, speak English, have access to a phone for a 30 minute conversation, have chosen to observe their vestibular schwannoma, and have not been diagnosed with NF2.
What Does Participating in This Study Involve?
- Completion of one screening survey (5 minutes)
- Completion of one follow up survey (10 minutes)
- Completion of one phone interview (30 minutes)
Participants who are interested will be asked to fill out an initial screening survey via REDCap, those who are eligible will be instructed to fill out one additional survey as well as be contacted to coordinate an interview time.
As a thank you for helping advance the collective knowledge of this condition, the research team is offering a $20 reimbursement for anyone who completes the interview.
In order to determine if you meet the eligibility criteria for the study please complete the Screening Survey.
If you are eligible, we will contact you with additional questions and coordinate the interview for the study.