Disclaimer - Acoustic Neuroma Medical Research Studies and Trials Listings
The Acoustic Neuroma Association posts information about acoustic neuroma medical studies and trials which may be of interest to acoustic neuroma patients or caregivers. These listings are provided as a convenience only and are not to be considered an endorsement or recommendation by ANA.
All studies and trials listed have IRB or Ethics Committee approval. An Institutional Review Board (IRB) is a committee established to review and approve research involving human subjects. The purpose of the IRB is to ensure that all human subject research be conducted in accordance with all federal, institutional, and ethical guidelines.
Clinical study involves research using human volunteers (also called participants) that is intended to add to medical knowledge. There are two main types of clinical studies: clinical trials (also called interventional studies) and observational studies.
In a clinical trial, participants receive specific interventions according to the research plan or protocol created by the investigators. These interventions may be medical products, such as drugs or devices; procedures; or changes to participants' behavior, such as diet. Clinical trials may compare a new medical approach to a standard one that is already available, to a placebo that contains no active ingredients, or to no intervention. Some clinical trials compare interventions that are already available to each other.
When a new product or approach is being studied, it is not usually known whether it will be helpful, harmful, or no different than available alternatives (including no intervention). The investigators try to determine the safety and efficacy of the intervention by measuring certain outcomes in the participants.
The ANA website provides a brief introduction to studies and trials, with links to the study and contact information. All information is provided by the research organization. AN patients should contact the research organization for more information using the contact information provided.
Massachusetts General Hospital - New!
Resiliency for NF Study
University of California, Irvine
Decision Making in Acoustic Neuroma
Treatment outcomes in patients with large acoustic neuromas
Acoustic Neuroma causation research study
Acoustic Neuroma Quality-of-Life Study
In a continuing effort to advance our understanding of acoustic neuroma issues, the Acoustic Neuroma Association conducted surveys of acoustic neuroma patients.
We would like to thank all of you who completed the surveys and sincerely hope you will help us continue our efforts to develop a "living database" that will provide valuable information to all existing patients, as well as those who will be diagnosed in the future by participating in our Patient Registry.
The Acoustic Neuroma Association provides the following links to assist in your search for information. These links are provided as a convenience only and are not to be considered an endorsement or recommendation by ANA.
Acoustic Neuroma Association of New Jersey:
- National Institute on Deafness and Other Communication Disorders
- National Institutes of Health on Acoustic Neuroma
- Social Security Disability
- American Tinnitus Association
- American Academy of Audiology
- American Speech-Language-Hearing Association (ASHA)
- Hearing Loss Association of America
- Alliance of Claims Assistance Professionals (ACAP)
- Center for Medicare Advocacy, Inc.
- Medicare Rights Center (MRC)
- National Organization of Social Security Claimants' Representatives (NOSSCR)
- Patient Advocate Foundation (PAF)
Mission, Vision & Values
The Acoustic Neuroma Association, the premier resource to the Acoustic Neuroma community, informs, educates and supports those affected by Acoustic Neuroma brain tumors.
To continually improve the lives of Acoustic Neuroma patients and their families through communication, support, innovation and partnerships with the medical community.
Respect: to honor the needs and privacy of acoustic neuroma patients
Professionalism: to maintain high ethical standards at all times
Objectivity: to remain free of bias in everything we do
Patient Centricity: to place the patient and their community at the forefront of all ANA efforts