The Acoustic Neuroma Association provides the following links to assist in your search for information. These links are provided as a convenience only and are not to be considered an endorsement or recommendation by ANA.
- National Institute on Deafness and Other Communication Disorders
- National Institutes of Health on Acoustic Neuroma
- Social Security Disability
- American Tinnitus Association
- American Academy of Audiology
- American Speech-Language-Hearing Association (ASHA)
- Hearing Loss Association of America
New Jersey ANA Chapter:
- Alliance of Claims Assistance Professionals (ACAP)
- Center for Medicare Advocacy, Inc.
- Medicare Rights Center (MRC)
- National Organization of Social Security Claimants' Representatives (NOSSCR)
- Patient Advocate Foundation (PAF)
Leadership & Staff
Board of Directors
Karla M. Jacobus - Cary, NC
Chad Nye - Lakeland, FL
John Gigliello - Niskayuna, NY
David Puzzo - St. Petersburg, FL
Members at Large
Luke Bagato – Western Springs, IL
David Begnaud – West Hollywood, CA
Marla Bronstein - Bellingham, WA
Meredith Mueller Daly - Atlanta, GA
Neil D. Donnenfeld - Swampscott, MA
Roberta C. Hutchings - South Bend, IN
Leah Keith - Los Angeles, CA
Chad Nye - Lakeland, FL
Joel Perrell, Jr. - Baltimore, MD
Miranda Sacharin – New York, NY
Tom Sattler - San Francisco, CA
Scott Van Ells - Flagstaff, AZ
Joseph A. Vargo, III - Cresson, PA
Deborah R. Walls - New Whitehead, IN
Immediate Past President
Alan Goldberg - New York, NY
Virginia Fickel Ehr - Carlisle, PA
Medical Advisory Board
Calhoun D. Cunningham, III, MD, Duke Health, Raleigh, NC
David S. Haynes, MD, FACS, Vanderbilt Medical Center, Nashville, TN
Medical Advisory Board Members
Siviero Agazzi, MD, FACS, University of South Florida Health, Tampa, FL
Chrisfouad R. Alabiad, MD, Bascom Palmer Eye Institute, Miami, FL
Babak Azizzadeh, MD, Center for Advanced Facial Plastic Surgery, Beverly Hills, CA
Steven D. Chang, MD, Stanford Health Care, Palo Alto, CA
Christopher J. Farrell, MD, Thomas Jefferson University Hospital, Philadelphia, PA
Steven L. Giannotta, MD, Keck School of Medicine of USC, Los Angeles, CA
Shannon E. Kahn, MD, Emory Healthcare, Atlanta, GA
Joseph J. Montano, Ed.D., Weill Cornell Medical College- NY Presbyterian Hospital , New York, NY
Ravi N. Samy, MD, FACS, UC Gardner Neuroscience Institute, Cincinnati, OH
Marc S. Schwartz, MD, UC San Diego Health, La Jolla, CA
Patrick Shumrick, DPT, The Center for Balance and Dizziness, Cincinnati, OH
Kris Siwek, UC San Diego Health, La Jolla, CA
Rafael J. Tamargo, MD, Johns Hopkins Medicine Baltimore, MD
Ana-Maria Vranceanu, PhD, Harvard Medical School/Massachusetts General Hospital, Boston, MA
Allison Feldman - CEO
Jennifer Farmer - Director of Programs and Development
Melanie Hutchins - Manager of Volunteer Programs
Stephanie Rommer - Project Manager
Kristin von Meyer - Office Specialist
Holly Stone - Assistant
Melissa Baumbick - Communications Specialist
Mission, Vision & Values
The Acoustic Neuroma Association, the premier resource to the Acoustic Neuroma community, informs, educates and supports those affected by Acoustic Neuroma brain tumors.
To continually improve the lives of Acoustic Neuroma patients and their families through communication, support, innovation and partnerships with the medical community.
Respect: to honor the needs and privacy of acoustic neuroma patients
Professionalism: to maintain high ethical standards at all times
Objectivity: to remain free of bias in everything we do
Patient Centricity: to place the patient and their community at the forefront of all ANA efforts
Acoustic Neuroma Association® was founded in Carlisle, PA in 1981 by an acoustic neuroma patient, Virginia Fickel Ehr. She found no patient information or patient support available when she had surgery for the removal of an acoustic neuroma in 1977. She resolved that future acoustic neuroma patients should have easy-to-read medical material about their condition, and support and comfort from each other. With the help of her physician, she contacted eight other patients and formed the organization.
The association is incorporated and is a 501(c)(3) non-profit organization. The patient-focused, member organization now serves nearly 5,000 members including acoustic neuroma patients, family members, friends and health care professionals providing information regarding all treatment types. It is governed by an all-patient (or family member) Board of Directors and is operated by a small staff in metropolitan Atlanta, GA.
With assistance from a number of leading surgeons and patient volunteers, ANA was incorporated in 1981. During her decade and a half of ANA leadership, Ginny contacted thousands of acoustic tumor patients and worked for the association's growth in services and numbers. In addition she wrote patient-perspective articles for medical journals and spoke to both patient and medical groups in the U.S. and Europe. She retired as President of the Board of Directors of the association in 1992 and now serves at President Emeritus. Ginny continues to be a resource to ANA.
Since the founding of ANA in 1981, thousands of patients, family members, friends and health care professionals have received comprehensive and non-technical information about acoustic neuroma. Pre- and post-treatment information is provided in our quarterly newsletters, patient information booklets, our website, webinars, and support groups.
ANA membership benefits include receipt of a quarterly newsletter, patient information booklets, access to a network of support groups, participation in our webinars by leading medical professionals, access to a list of acoustic neuroma patients willing to talk about their experience throughout the country and our website Member Section. Our exclusive website Member Section includes all of our patient information booklets, newsletters and webinars. ANA also maintains an interactive website at www.ANAUSA.org with an ANA Discussion Forum.
ANA is patient-founded, patient-focused and patient-funded.