Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

WashUniv

Patient Perspectives in Vestibular Schwannoma Surveillance

You are being invited to participate in a research study titled Patient Perspectives in Vestibular Schwannoma Surveillance. This study is being conducted by  Jay Piccirillo, MD, Principal Investigator.

Study Information:

The researchers want to interview patients who are either actively undergoing observation or underwent observation before ultimately receiving treatment for their vestibular schwannoma. They hope that in conducting these interviews they can not only gain insight into the important factors in this decision making process but also help guide future research for patients considering to undergo observation for their vestibular schwannoma.

Am I Eligible to Participate?

Participants are eligible for this study if they are 18 years or older, live in the United States, speak English, have access to a phone for a 30 minute conversation, have chosen to observe their vestibular schwannoma, and have not been diagnosed with NF2.

What Does Participating in This Study Involve?

  • Completion of one screening survey (5 minutes)
  • Completion of one follow up survey (10 minutes)
  • Completion of one phone interview (30 minutes)

Participants who are interested will be asked to fill out an initial screening survey via REDCap, those who are eligible will be instructed to fill out one additional survey as well as be contacted to coordinate an interview time.

As a thank you for helping advance the collective knowledge of this condition, the research team is offering a $20 reimbursement for anyone who completes the interview.

In order to determine if you meet the eligibility criteria for the study please complete the Screening Survey.

Screening Survey

If you are eligible, we will contact you with additional questions and coordinate the interview for the study.

If you have questions please email otooutcomes@wustl.edu or call Jay Piccirillo, MD, Principal Investigator, at (314) 362-4356.

Recruitment Flyer

Research Grant Program

ResearchGrantThe Mission

The ANA is dedicated to furthering all aspects of scientific knowledge related to acoustic neuromas, including its cause(s), development, and treatment, thus improving the lives of individuals living with AN, and finding its ultimate cure.

Our Interest Areas of Funding

We encourage investigators to submit grant proposals across the broad spectrum of acoustic neuroma.  These areas may be original research drawn from disciplines such as audiology, biology, psychology, sociology, or pharmacology. 

For 2023, our Research Committee has additionally identified three broad areas of interest:

Causes and Cures: This includes such areas as chromosomal, cellular, genetic studies, etc.

Technological, Cultural, and Social Interventions: The use of technology in post-treatment, including health apps in monitoring health conditions, and the effectiveness of online self-directed therapies for depression, fatigue, cognitive skills, physical strength/stability, biofeedback, cochlear implant, etc.

Quality of Life: Consideration given to Pain Management – including headaches – and issues related to facial paralysis, social, emotional, cognitive, etc.

Eligibility

The ANA will consider funding researchers and/or centers who have a formal affiliation with nonprofit, academic, medical, or research institutions.  The principal investigator must have an appropriate level of background, training, and institutional engagement to support the proposed research. 

Amounts Available for Funding

Individual awards are typically up to $25,000 in a given year.  Multi-year projects may be considered if they are consistent with our research initiative.  Funding beyond the first year will be on a year-to-year basis, and multi-year projects are subject to annual review for ongoing funding.

Our Annual Grant Cycle 

The grant cycle is straightforward: a Request for Proposals (RFP), our review of submissions, and our announcement of grants awarded.

The RFP will typically be announced at least once annually, during the second quarter of the year.  Typically, multiple RFPs will have a different mission and may not be made on a predetermined basis.  The time from our announcement to our proposal deadline will be of a reasonable length to allow for the preparation of a thorough RFP.

In addition, there may be an opportunity for an ‘out of cycle’ request for research funding that will be considered independently and at the discretion of the ANA leadership. Information on the timelines of the grant cycle will be made available through select ANA publication, digital, and communications platforms. 

For further information, please contact Jim Shea, CEO, at jimshea@anausa.org.

Proposal Guidelines

Our Research Task Force has established strong guidelines for those applying for a grant. Included within these guidelines (five-page limit for proposal) are requests for:

  1. Summary of most recent/relevant research and a statement of primary purpose
  2. A concise Statement of Goals
  3. An Impact Statement
  4. Research Strategy including Participants, Study Design, Analysis Method, and Potential Outcomes       
  5. Budget, including a statement that the ANA does not provide funding for indirect costs
  6. Project Timeframe
  7. List of Personnel Support

Proposal detail requirements can be found here, and helpful applicant guidelines can be found here. Please submit all proposals to researchgrantprogram@anausa.org.

Award Review Process

All grant submissions are reviewed by our Research Committee and reviewing parties include ANA Board members and third-party scientists with specialization in the area of acoustic neuroma. All grant submissions are considered using a blind review process and a funding recommendation will be confirmed by a decision of the ANA Board of Directors.

Schedule for 2023: 

  • Request for Proposals - Sept 15 - Oct 16
  • Full Proposal deadline -  Oct 16
  • Review of Proposals - Oct 16 - Nov 30
  • Announcement of Grant Funding - December 1

 TogetherWeGiveHeader

Giving Tuesday is the global movement that encourages millions of people all over the world to give back, inspire others,
and take action to generate change. This year, there are three ways to participate that we think will make a difference in the AN community. 
Explore our page to see how you can join us!
 

GIVE BACK

Giving Tuesday Presentation

We're giving back to the AN community with a presentation from Dr. Marc Bennett and Dr. Kareem Tawfik of Vanderbilt University on Hearing Preservation Options. 

Please join us at 1:30 pm ET on Giving Tuesday - everyone is welcome! 

Register to join us on Zoom, or watch on the ANA Facebook Page

 INSPIRE OTHERS

#MyANStory

More than 3,500 patients will be diagnosed with an acoustic neuroma this year. These diagnoses can be frightening, overwhelming, and life-altering.
Where will these patients find the information, support, and community they’ll need?

Help us raise awareness and help others find the support they need by sharing your AN story.
Submit your story and share on social media using #MyANStory.

TAKE ACTION

25K in 25 Days Challenge 

Join our Giving Community! Help us continue our mission,
offering information and support to those who need us most.

There are two easy ways to give:
1. Contribute to our 25K in 25 Days fundraiser using our donor form.
2. Create a Giving Tuesday Facebook fundraiser

Your donation WILL make a difference!

GTDonate

ANA Peer Mentor Program
One-on-One Support

Reset Search

First NameLast NameEmailPhoneStateSize at TreatmentTreatment TypeAge at TreatmentTreatment YearAdditional LanguagesHearing DeviceIssues
Robin Batrarbatra854@gmail.com949 878-8801AZ1.2 cmRadiation - Gamma Knife582013tinnitus; facial spasms
* Margaret Briggsglmrchk@gmail.com 619 500-6141AZ1.6 cmSurgery - Translab602015Siemens hearing aid; Bose Hearphonesfacial rehab, fatigue, headaches, vestibular therapy, eye issues; eye drops
* Carol Franklinlefsequeen53@gmail.com 520 722-8340 AZ2.5 cmSurgery - Retrosig472001Phonak BTE
* Tricia Jenningsazchipster@gmail.com 520 825-9845AZ5 cmSurgery - Retrosig482001Phonak CROS BTE bluetoothCSF leak; eye closure issues; tear duct plugs; tinnitus; vestibular therapy; facial synkinesis
* Tracy Schwimmermarcschwim@aol.com 602 561-1855AZ2.5 cmSurgery - Retrosig2012tumor debulking; headaches; regrowth; facial weakness; facial numbness; facial rehab; CSF leak; CSF leak repair; VP shunt; dry eye
* Tracy Schwimmermarcschwim@aol.com 602 561-1855AZ2.5 cmSurgery - Translab2015tumor debulking; headaches; regrowth; facial weakness; facial numbness; facial rehab; CSF leak; CSF leak repair; VP shunt; dry eye
BobSterrettrsterrett1@aol.com480 444-8409AZ1 cmObservationCochlear Implant tinnitus
* Kimberly Arykimberly.ary3@gmail.com 208-390-6361CA3.4 cmSurgery - Translab222016CSF leak; shunt; headaches; fatigue; balance issues; blurry vision; double vision; titanium plate; regrowth
* Kimberly Arykimberly.ary3@gmail.com 208-390-6361CA3.4 cmRadiation - LINAC292023CSF leak; shunt; headaches; fatigue; balance issues; blurry vision; double vision; titanium plate; regrowth
* Hazel Bermanhazelannb@sbcglobal.net 916 983-9313  CA2.5 cmSurgery - Translab361996Baha7/12 facial nerve graft; gold eye weight
* Melissa Diazmissdiaz@me.com 408 416 1145CA3 cmSurgery - Translab332011Spanishbalance issues; vestibular therapy; synkinesis; facial neuromuscular rehab; Botox; facial paralysis; dry eye; fatigue post-surgery; depression; mental health therapy; taste issues
* Christina Esfehaniesfehani@yahoo.com 650 575-6990 CA2.3 cmRadiation - CyberKnife272004
* Leah Keithleahkeith@me.com CA2.5 cmSurgery - Translab422011Oticon Ponto Proacupuncture for tinnitus
* Helen McHarguefoodsmarts@gmail.com 760 728-0309 CA.5 cmRadiation - CyberKnife662009Phonak CROS; PocketTalker amplification devicevestibular therapy
* Helen McHarguefoodsmarts@gmail.com 760 728-0309 CA.5 cmObservation642007Phonak CROS; PocketTalker amplification devicevestibular therapy
* Mark McLarengreatscot@earthlink.net 925 838-8175 CA2 cmRadiation - CyberKnife442001
* Carol Most Walkercrmost@icloud.com415 889-3547  CA.9 cmRadiation - CyberKnife682021SSD; tinnitus
* Carol Most Walkercrmost@icloud.com415 889-3547  CA.9 cmObservation56SSD; tinnitus
MaggieShepardmizmudpie@gmail.com 530 859-1149CA11 mmSurgery - Retrosig662022French Phonak OTEbalance issues; vestibular therapy; oscillopsia; fatigue; tinnitus
CodyCoopercodyc.co@gmail.com 720 403-1091 CO3.4 cmSurgery - Retrosig372016Bahavestibular therapy; neuromuscular facial rehab; eye weight; eye weight removal; scleral lens; headaches
CodyCoopercodyc.co@gmail.com 720 403-1091 CO3.4 cmSurgery - Retrosig382016Bahavestibular therapy; neuromuscular facial rehab; eye weight; eye weight removal; scleral lens; headaches
* VirginiaFerraroginnietennis@hotmail.com 303 469-6391CO.6 cmObservation75Starkey Genesis Ai 24 RIC-Rtinnitus; balance issues
* Tara Paultnpaul@comcast.net 303-868-7181CO3 cmSurgery - Translab422020BiCROSregrowth; facial paralysis; facial rehab; gold weight; scleral lens; tarsorrhaphy; vestibular therapy; fatigue; swallowing issues; taste issues; tinnitus

* Tara Paultnpaul@comcast.net 303-868-7181CO3 cmRadiation - Gamma Knife422020BiCROSregrowth; facial paralysis; facial rehab; gold weight; scleral lens; tarsorrhaphy; vestibular therapy; fatigue; swallowing issues; taste issues; tinnitus

Samira Rajabisamirajabi@gmail.com 303 547-0043CO3.5 cmSurgery - Translab252012Farsi; Frenchregrowth; CSF leak; temporary shunts; eye issues; fatigue, headaches; tinnitus; taste issues; dental issues; chronic pain, SSD
Samira Rajabisamirajabi@gmail.com 303 547-0043CO3.5 cmSurgery - Retrosig252012Farsi; Frenchregrowth; CSF leak; temporary shunts; eye issues; fatigue, headaches; tinnitus; taste issues; dental issues; chronic pain, SSD
Bonnie Bostrombobon611@aol.com 860 214-3514CT1.7 cmRadiation - Gamma Knife652012short-term headaches
Stefanie Batson-Martinfloridaswimmer14@aol.com 407 493-7095FL4 cmSurgery - Translab302019Oticon Ponto tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues
Stefanie Batson-Martinfloridaswimmer14@aol.com 407 493-7095FL4 cmRadiation - Proton Beam312020Oticon Ponto tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues
Stefanie Batson-Martinfloridaswimmer14@aol.com 407 493-7095FL4 cmObservation252014Oticon Ponto tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues
SherryCottrellsjrmcottrell@gmail.com561 704-6733FL7 mmSurgery - Translab512021Kanso 2 Cochlear Implantbalance issues; fatigue; headaches; taste/dental; tinnitus
* DyanneHughesdyhughes55@comcast.net 904 624-0940FL1.9 cmSurgery - Translab532009BiCROS; Bose noise reducer headphonesfacial neuromuscular rehab; synkinesis; Botox; eyelid surgery
* ChadNyechadnye@gmail.com 407 496-8357FL1.5 cmSurgery - Translab2011BiCROS; Bose noise reducer headphones
* ChadNyechadnye@gmail.com 407 496-8357FL1.5 cmRadiation - CyberKnifeBiCROS; Bose noise reducer headphones
Robert Olivooedsall4@aol.com 352 775-6858FL1.7 cmRadiation - Gamma Knife702015Phonak Paradise 90 Hearing Aids bilateral
David Puzzosecgen11@gmail.com 813 480-5679 FL1.4 cmObservationWidex BiCROS
* AgnesGarinoalgarino@sbcglobal.net314 610-9259 GA1.5 cmSurgery - Retrosig511996Phonak BiCROSheadaches; headache therapies
Jim Henscheljim.henschel@gmail.com 770.840.5470GA2.5 cmSurgery - Translab602021Phonak CROSeye issues; eye weight; facial paralysis; facial nerve reanimation surgery
* MeredithDalymeredith@meredithdaly.com678.525.1941GA3.6 cmSurgery - Translab522012Phonak CROSdry eye; balance issues; dizziness issues
Lisa Trumbulllisaannetrumbull@gmail.com 808 253-9522HI.13 cmSurgery - Translab372017balance issues; double vision; taste changes
* Leah Jenksleahgjenks@gmail.com 708 954-7774IL2 cmSurgery - Retrosig272022balance issues; vestibular therapy; tinnitus; SSD; dizziness
SheriSettipanisbwerner@comcast.net 847 924-5929IL2 cmSurgery - Retrosig482016facial issues; eye issues; maintained hearing
* KathyGardnerkathyc0407@aol.com 502 593-9224KY3.4 cmSurgery - Translab552013BiCROS12/7 facial transfer; facelifts; browlift; gold weight; gold weight removal; punctal occlusion; vestibular rehab
* KathyGardnerkathyc0407@aol.com 502 593-9224KY3.4 cmRadiation - Gamma Knife572015BiCROS12/7 facial transfer; facelifts; browlift; gold weight; gold weight removal; punctal occlusion; vestibular therapy
DeborahPolsondecyrs@aol.com 502 930-3106KY1.3 cmSurgery - Retrosig592014headaches; head pain; neck pain; balance issues; vestibular therapy; tinnitus; titanium mesh; Botox for headaches
CathyBeardsleecbeardslee2@gmail.com305 439-2691MA3.4 cmFamily Member - Caregiver252023CROSCSF leak; headaches; SSD; balance issues
PhyllisPearl-Baxterpbp214@yahoo.com 781 213-9914 MA1 cmRadiation - CyberKnife442006PhonakSSD; migraines; balance issues; tinnitus
* MirandaSacharinm.sacharin@gmail.com 925 297-9435MA3.1 cmFamily Member - Caregiver522009facial retraining; eye weight; eye ptosis surgery; SSD; balance issues; cognitive issues
HeatherHomickhhomick93@gmail.com 240 508-4282MD3.7 cmSurgery - Retrosig252018SSD; facial reanimation; free muscle transfer; Botox; facial retraining; dry eye; eyelid weight removed; balance issues; vestibular therapy
* BonnyLallybdaymusic@gmail.com 410 660-1259MD2.9 cnSurgery - Retrosig602017CROSscleral lens; eyelid weight (removed); migraines; vestibular therapy; tinnitus; fatigue; headaches
* AllisonShafferakgshaffer@gmail.com 301 706-7900MD.9 cmSurgery - Middle Fossa402010
* RickMayrmay726@gmail.com 734-812-8054MI2.5 cmSurgery - Middle Fossa522011Phonak hearing aid tinnitus; vestibular therapy
KennethPosnerkennyposner@gmail.com 248 464-0808MI1.5 cmSurgery - Middle Fossa512009vestibular therapy; migraines; headache therapy, maintained hearing
JillTollejilltolle@yahoo.com 818 219-5857MI2.5 cmSurgery - Translab412013vestibular therapy; tinnitus
* LauraFerencilkferenci@gmail.com 612 501-2248MN3 cmSurgery - Translab572016balance issues; vestibular therapy; blurry vision; eye surgery; fatigue; tinnitus; taste issues
JayMagrissojay.magrisso@gmail.com717 586-3275MN3 cmSurgery - Retrosig392019ItalianSSD; brain fog; fatigue; balance/dizziness issues; headaches; eye issues
NancyRheinnancyrhein@gmail.com 612-240-0415MN2 cmSurgery - Retrosig622016Phonak hearing aidbalance issues; dizziness; vestibular therapy; fatigue; headaches; taste issues
* CarolGardnercarolhgardner@gmail.com 573 690-3296MO3.1 cmSurgery - Translab2020BiCROSblephoplasty; titanium eyelid weight; facial therapy; Botox; TMJ
* StewartBindermarylandterp.888@gmail.com 919 624-3256NC2.3 cmSurgery - Translab592011Med-El Bonebridgefacial neuromuscular rehab; Botox; synkinesis; dry eye; platinum eye weight
* LisaFisherlfisher@rubollc.com 412 996-2386NC2.5 cmSurgery - Translab332017Balance issues; CSF leak; fatigue; dry eye; eye closure issues; eye drops; eye patch; eye tape; facial rehab for synkinesis; Botox; regrowth; dry mouth; dental issues; prescription toothpaste
* LisaFisherlfisher@rubollc.com 412 996-2386NC1.3 cmSurgery - Translab392023Balance issues; CSF leak; fatigue; dry eye; eye closure issues; eye drops; eye patch; eye tape; facial rehab for synkinesis; Botox; regrowth; dry mouth; dental issues; prescription toothpaste
KathyHillkjayhill@gmail.com 336 707-7013NC.8 cmSurgery - Middle Fossa522017Oticon Baha; Oticon More hearing aidvestibular therapy; tinnitus; dry eye; facial paralysis
NeilDonnenfeldndonnenfeld@gmail.com 617 285-0579NH1.4 cmRadiation - Proton Beam502013tinnitus; hyperacusis; synkinesis
* IrynaMosendzlutirinas@gmail.com 609 705-6623NJ2.3 cmSurgery - Middle Fossa282017Russian;Ukraniandry eye; regrowth
* IrynaMosendzlutirinas@gmail.com 609 705-6623NJ2.3 cmRadiation - Proton Beam302019Russian;Ukraniandry eye; regrowth
MarySteedmaryellen.steed@gmail.com347 551-3486NJ5 cmFamily Member - Caregiver112021SSD; dry eye; headaches; facial weakness; speech therapy; occupational therapy; balance issues
HowardWaldrophowardrop@rocketmail.com 201 818-8977NJ1 cmRadiation - Gamma Knife502015Starkey XINO
* TraceyCollinstracey.collins6273@gmail.com 581 382-3283 NY2.5 cmSurgery - Retrosig352009
ScottBornholdtsbornholdt@zoomtown.com 513 884-7442OH2.7 cmSurgery - Retrosig522022OticonFatigue; balance issues; vesibular therapy; tinnitus
ErinHeidricherinheidrich@gmail.com859 640-1083OH1.3 mmSurgery - Middle Fossa392021Osia 2 Balance issues; dizziness; vestibular therapy; cognitive behavioral therapy for tinnitus
* EmilyPraeterelpraeter@gmail.com 513 265-1350OH2 cmSurgery - Middle Fossa402018Phonak CROSbalance issues; dizziness; vestibular therapy; cognitive/neurological issues; fatigue; headaches
KateRoelkerkroelker@hotmail.com 513 939-5920OH1.8 cmSurgery - Middle Fossa652017Hearing aideye issues; tinnitus; facial therapy; vertigo; vestibular therapy; maintained hearing; tinnitus
* SaraWassermanartspeaks10@hotmail.com 928 301-8781 OH2.5 cm Family Member - Caregiver642015SSD; balance issues; dizziness, fatigue
* AliceWeddingaj2mydad@yahoo.com 513 315-2341OHlargeSurgery - Translab642012Bahatinnitus; vestibular therapy
* DavidNoyesdcnoyes@comcast.net 503 419-7418OR3.5cmSurgery - Retrosig351999SpanishBahafacial rehab; facial surgery; vestibular therapy; eye weight
RobertBolenrjbolen@verizon.net 215 679-5945PA1.1 cmRadiation - Gamma Knife762018SSD; tinnitus
* MaryaCamillerimc.ana.philly@gmail.com215 313-0727PA2.3 cmSurgery - Retrosig422019balance issues; dizziness; vestibular therapy; headaches; facial weakness; dry eye; vision therapy; SSD
PatrickFinkpmfink@gmail.com 412 480-2765PA2.1 cmRadiation - Gamma Knife282017fatigue; tinnitus; headaches
* NancyGraffiusngraffius@comcast.net 610 939-9114 PA4 cmSurgery511994
RobertVancebob@vancerenz.com 814 880-6084PA1 cmRadiation - Varian Trilogy602013Signia BiCROSvestibular therapy; tinnitus
* AnthonyDiBellaajd@orgtransitions.com 401 523-9467RI1.7 cm; 3.1 cmAvastin712019French; Italian; SpanishOticon OPN1NF2; tinnitus
* AnthonyDiBellaajd@orgtransitions.com 401 523-9467RI1.7 cm; 3.1 cmObservation441992French; Italian; SpanishOticon OPN1NF2; tinnitus
* RickyRobersonrroberson@millsautogroup.com 803 729-4040SC3.5 cmSurgery - Translab472017Phonak BiCROSdizziness
Lisa Porischlisaporisch@gmail.com605 431-5827SD3 mmSurgery - Middle Fossa462022Pre-treatment headaches; balance issues; vestibular therapy; tinnitus; maintained hearing; emotional cognitive issues
* LaurenVadentarheelbluesy@gmail.com 615 232-4929TN1 cmSurgery - Translab352019fatigue; SSD; hemi-facial spasms; facial sensitivity; tinnitus; balance issues
* LindaDorasamianausa.dfw@gmail.com 817 244-0615 TX1.6 cmSurgery - Retrosig471995Spanishvestibular rehab; headaches; pain management
* LindaDorasamianausa.dfw@gmail.com 817 244-0615 TX3 cmObservation662014SpanishNF2
KatyFredericksenkatylf@yahoo.com 832 585 6346TX4 cmSurgery - Retrosig192019balance issues; vestibular therapy; pre-treatment headaches; facial issues (short-term); dry eye; watch and wait for regrowth
* MarianaIratomariana_irato@yahoo.com 832 474-4090TX2 cmSurgery - Retrosig452021Spanishtinnitus; fatigue; headaches
LaurieReidlauriegailreid@outlook.com713 503-2788TX10 mmSurgery - Middle Fossa532020hearing preserved; balance issues; vestibular prehab; hearing sensitivity; custom ear plugs; fatigue; tinnitus; dry eye
* Laura Spencelauraspencetx@gmail.com 972 974-1516TX1.2 cmSurgery - Middle Fossa412019Oticon Baha facial Botox for synkinesis; DAO resection; vestibular therapy, severe dry eye; RX eye drops; Scleral lens; balance issues; headaches; fatigue
* JohnnyDiazjohnny.diaz@yahoo.com 904 738-5063VA2.5 cmSurgery - Middle Fossa392008Spanish
Mary AnnMugelmamugel@gmail.com 804 353 0563VA2.1 cmRadiation - Gamma Knife652019hydrocephalus; permanent VP shunt; fatigue; tinnitus; diminished hearing; balance issues; dizziness; vestibular therapy
* MichelleNemethmichelle.f.nemeth@gmail.com 703 772-7114VA1.4 cmSurgery - Middle Fossa272013maintained hearing
MaryGreenmarygreen4810@gmail.com 262 470-4810WI3.1 cmSurgery - Retrosig502017CROSvestibular therapy; speech therapy; synkinesis; facial rehab; Botox; eye issues; dry eye; headaches pre-treatment; hydrocephalus pre-treatment
* JudyJonesjjonescurran539@gmail.com 414 491-6249WI2.2 cmRadiation - CyberKnife602013trigeminal neuralgia; balance issues; headaches; tinnitus
* EmilyTruellanayoungadults@gmail.com920 229-5201WI3 cmSurgery - Translab272015Oticon Ponto PlusCSF leak; headaches; tinnitus; balance therapy
BrianVincentvinbri3@gmail.com 414 758-0807 WI1.8 cmRadiation - CyberKnife532016fatigue; tinnitus; headaches

Resources for Young Adults

The ANA provides the following resources to help bring young adults with ANs together and find information and support.

Young Adult Facebook Group

This is a closed group Moderated by ANA Staff and Volunteers.

 

Young Adult Online Support Group

The group meets several times a year via Zoom and is moderated by ANA Peer mentors.

For more information, contact:

Emily Truell, Peer Mentor/Support Group Leader, anayoungadults@gmail.com

Michelle Nemeth, Peer Mentor/Support Group Leader, michelle.f.nemeth@gmail.com

Melanie Hutchins, Manager, Volunteer Programs, volunteers@anausa.org.

 

Peer Mentor Program

Peer Mentors are volunteers who are acoustic neuroma patients and caregivers that are willing to talk about their acoustic neuroma experience. They provide information, encouragement, and support to other acoustic neuroma patients via telephone, email and video chat.  A list of peer mentors is provided in our free patient kit and is available in our member section. Please contact us to request a peer match today.

Request Free Patient Kit

Join our Mailing List

Upcoming Events

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