Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

Acoustic Neuroma Patient Stories

Read stories from the ANA community and share your own acoustic neuroma story to help inspire others.

            My name Eric and this is my acoustic neuroma story. I am a career firefighter married to a career police officer in North Carolina. Fingers crossed, my wife and I can retire together the same year in about five years. Like most other firefighters that I know and work with, I have a second job that I do on my days off. My second job is working as an arborist and includes tree pruning, tree removal, stump grinding, and tree planting. Doing this second job was what led to the discovery of my acoustic neuroma.

Give Yourself Time
Meagan Doumont

2016 was supposed to be my year. I graduated nursing school, got hired in the neonatal intensive care unit and was one of the lucky ones who was actually paid to do specialty training. Everything was falling into place! Or so I thought. 

After ongoing investigation of single side hearing loss, balance issues, severe headaches, exhaustion and facial numbness, I finally had to face what my body was trying to tell me —- which was that I had a large brain tumor growing in the base of my skull. At 30 years old, and what was supposed to be the peak of my life, I was told news that would ultimately change my life forever. 

What I Learned About Happiness from Acoustic Neuroma Surgery
Brian Bouchard

Since late November/December 2018, I felt something was seriously wrong with me, but I just couldn’t place it. In March, I told my wife Rebecca that I felt like I was dying. She asked what would make me say that. I told her that I couldn’t medically put my finger on why I would state such a drastic claim, but I just felt like my body was shutting down. She replied that we are all dying, but somehow I knew this was different. Oh boy, were we about to find out how different!

From Diagnosis to Surgery - My AN Experience as a Musician
Chelsea Shanoff

I was finishing my first semester in a PhD music program in Toronto, when I started getting strange sensations: mild tingling and electrical “zaps” through the left side of my face. I was worried about these symptoms but I figured I had overdone it with playing my instrument, the saxophone, and was suffering from a musculoskeletal disorder in my jaw or neck.

A Chance to "Pay Forward" After Two Surgeries
Clarice Dalton

In 2006, I began having unexplained falls, feeling disoriented, etc. I attributed these to becoming clumsy. My primary care doctor ordered an MRI. Due to a staff error in her office, it was ordered without contrast and the report was negative. The next step was seeing a balance specialist, which resulted in a diagnosis of labyrinthitis, an inflammation of the inner ear or the nerves that connect the inner ear to the brain. Prescription drugs did nothing to change my symptoms.

Reach Out

To connect with any of the patients featured, please contact ANA at 770-205-8211 or email volunteers@ANAUSA.org.

Share your story

Note: In no case does ANA endorse any commercial products, surgeon, medical procedure, medical institution or its staff.

Stay Connected with the ANA