Latest News
Stay up to date on news, events, and other items of interest to our AN community.
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A lot has happened since we first posted a short article titled “Acoustic Neuroma and COVID-19: A statement from a member of our Medical Advisory Board” in March 2020. Recently, several members of the ANA community have expressed concerns regarding the risks associated with receiving acoustic neuroma medical care amidst the COVID-19 pandemic, including regular MRI testing. Reflecting the differences in COVID-19 case numbers and availability of medical resources across the country, recommendations about treatment, obtaining MRI studies, and attending clinical follow-up may vary from center to center.
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The "new normal" is something we talk about a lot in the AN community. We have webinars available on this topic in both our Video Library and in our Member Webinar Library.
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By sharing your story, you bring people together through shared experiences. Since the AN journey is so unique, this is an incredibly important kind of support. Family or close friends may not fully understand the emotional complexities related to your diagnosis. But, when you tell your story to others in the AN community, they understand. They can relate. They can empathize. They can say, “I’ve been there”.
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Many acoustic neuroma patients experience fatigue, whether from the tumor itself, treatment, or from the increased effort required to hear, balance and negotiate a new reality.
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Almost everyone who has been diagnosed with an acoustic neuroma deals with some degree of hearing loss. It can be difficult to accept this new reality and the changes it brings to your life.
