Acoustic Neuroma Association® was founded in Carlisle, PA in 1981 by an acoustic neuroma patient, Virginia Fickel Ehr. She found no patient information or patient support available when she had surgery for the removal of an acoustic neuroma in 1977. She resolved that future acoustic neuroma patients should have easy-to-read medical material about their condition, and support and comfort from each other. With the help of her physician, she contacted eight other patients and formed the organization.
The association is incorporated and is a 501(c)(3) non-profit organization. The patient-focused, member organization now serves nearly 5,000 members including acoustic neuroma patients, family members, friends and health care professionals providing information regarding all treatment types. It is governed by an all-patient (or family member) Board of Directors and is operated by a small staff in metropolitan Atlanta, GA.
With assistance from a number of leading surgeons and patient volunteers, ANA was incorporated in 1981. During her decade and a half of ANA leadership, Ginny contacted thousands of acoustic tumor patients and worked for the association's growth in services and numbers. In addition she wrote patient-perspective articles for medical journals and spoke to both patient and medical groups in the U.S. and Europe. She retired as President of the Board of Directors of the association in 1992 and now serves at President Emeritus. Ginny continues to be a resource to ANA and participates in ANA symposiums.
Since the founding of ANA in 1981, thousands of patients, family members, friends and health care professionals have received comprehensive and non-technical information about acoustic neuroma. Pre- and post-treatment information is provided in our quarterly newsletters, patient information booklets, our website, symposiums and support groups.
ANA membership benefits include receipt of a quarterly newsletter, patient information booklets, access to a network of support groups, participation in our webinars by leading medical professionals, access to a list of acoustic neuroma patients willing to talk about their experience throughout the country our website Member Section. Our exclusive website Member Section includes published medical journal articles on acoustic neuroma and all of our patient information booklets and newsletters, webinars and many symposium audio recordings presentations. ANA also maintains an interactive website at www.ANAUSA.org with an ANA Discussion Forum.
ANA is patient-founded, patient-focused and patient-funded.