Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

Rapid Decrease in Hearing Led to AN Diagnosis
By Rob Landis

It was the summer of 2013, between my sophomore and junior years of college. I was making plans for the summer to hang out with my friends, take some vacations, and work part-time to earn some extra money. Unfortunately, all of this was put on hold very suddenly.  At the age of 20, I learned I had an acoustic neuroma.

Prior to my diagnosis, I noticed a few signs that lead me to believe there was something wrong. First, I was experiencing episodes of tinnitus when I tried to sleep. Some nights were worse than others. I mostly attributed it to stress due to end of semester tests and finals. Then, over the course of a few short weeks, I started to notice changes in my hearing on my left side. It became difficult to hear others and I had difficulty hearing phone conversations.

Finally, I went to see a local ENT to try and find out the cause of my issues. When they noticed I had 75% hearing in my left ear, I was scheduled for an MRI. The acoustic neuroma was confirmed. I went back to the ENT doctor shortly thereafter and found I was down to 50% hearing. I saw an otolaryngologist from the University of Iowa Hospital the next day. Due to my rapid hearing loss, I was scheduled for surgery that same week in hopes of salvaging my remaining hearing.

On the day of my surgery my hearing had decreased to 25%. Although it doesn’t sound like much, it meant a lot to me to try and save it, to help me locate sounds. After over eight hours of surgery, the tumor was fully removed. Unfortunately, I had lost all my remaining hearing. In addition, I had almost no balance and some facial paralysis. I was in the hospital for almost four days trying to regain my strength and the ability to walk without assistance. Over the summer, I had several months of rehab.  I was able to regain all my balance and fortunately, my facial paralysis was very minimal.

That fall, I was back at school full-time to finish my degree. Now, several years later, I have my undergraduate degree in accounting and my master’s degree in business administration.  I’m married and working at a Fortune 50 company.  I’ve been able to work internationally, and I continue to advance in my career. I’m sharing this information with you not to brag, but to show what can be accomplished in such a short time.

Even now, being deaf on my left side still presents challenges that I must work through. I’ve not had any additional surgeries for bone conduction devices or use any of the available hearing aids. I am able to get past challenges while driving, eating in a busy restaurant, or attending work meetings using some helpful tips which I want to share with you.

  • Always be upfront about having single sided deafness with others
  • Arrive early to meetings in order to position yourself to best hear the entire room
  • Double or triple check crossing the street when walking or driving as you may not be able to hear cars coming
  • Adjust your headphones/headsets to have all sounds coming to your hearing ear
  • Make sure to wear a good set of ear plugs when being exposed to loud noises

For me, the diagnosis and surgery were very traumatic and difficult events. I believe anyone can reach their achievements with the right goals and mindset in place. I was fortunate to have my family to help me through this entire process - I wouldn’t be where I am today without them.

Reach Out

To connect with any of the patients featured, please contact ANA at 770-205-8211 or email volunteers@ANAUSA.org.

Share your story

Note: In no case does ANA endorse any commercial products, surgeon, medical procedure, medical institution or its staff.

Stay Connected with the ANA