Author Topic: Facial Progress  (Read 30568 times)

mimoore

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Re: Facial Progress
« Reply #15 on: August 26, 2008, 03:04:42 pm »
Jean that is amazing!!!!! Thank you for sharing. Can you give us an idea of your timeline? I know we are all different just interested in how others have progressed.
Happy days for you -  a smile!!!
Michelle  ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

sgerrard

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Re: Facial Progress
« Reply #16 on: August 26, 2008, 07:09:37 pm »
Jean that is a great post, your progress is inspiring, especially since the first pic is already one year later. It is so important to know that this kind of progress is possible with time. Thanks for sharing this.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jeanlea

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Re: Facial Progress
« Reply #17 on: August 26, 2008, 07:50:35 pm »
Michele,

I got my very first movement 3 months and 6 days after my surgery.  (Who says I was keeping close track of any movement?) It was just a tiny bit of movement by my nose.  The pics show me after 1 year, 2 years, and now 3 years.  On a daily, or even monthly basis it was hard to notice the change.  With the exception of finally being able to make a smile be it ever so tiny.  That happened right around 13 months.  I seemed to get a lot of new movement around 18 months.  I hope that this gives some encouragement to those of you who are just starting out on this extremely long lesson in patience. 

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

leapyrtwins

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Re: Facial Progress
« Reply #18 on: August 26, 2008, 10:22:51 pm »
Jean -

what else can I say but VERY impressive! 

The difference is tremendous.  I'm so glad you were able to post these pictures - they are a great inspiration to those dealing with facial issues.

Add me to the long list of others who have said you look fantastic  ;D

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

michela

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Re: Facial Progress
« Reply #19 on: August 27, 2008, 02:55:01 am »
Hi Kaybo! I am fine, and I am waiting for the recovery. I have had a little improvement in the shape of my face but no movement yet.
I have a date with the surgeon on October. I visited your blog Kaybo and you look great!! A great hug!

Jean, at first, when the paralysis arrived, I searched for photos of recovery. It helps a lot; it makes you have a little hope. Now I have had the graft, so I had no choice of spontaneous recovery; I am waiting for my anastomosis to make the miracle! I asked you about the EMG, because my EMG was hopeless (severe denervation) so I had the graft.
Thank you again.

mimoore

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Re: Facial Progress
« Reply #20 on: August 27, 2008, 10:31:50 am »
Thank you Jean! You are an inspiration!!!
Michelle  ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

nancyann

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Re: Facial Progress
« Reply #21 on: August 27, 2008, 06:12:02 pm »
Jean:  I love that you are back to 'normal'     You look amazing ! !    A friend said to me today ' miracles happen', & I replied " if we make them happen"
Well, you worked hard Jean,  enjoy your miracle ! !

Always good thoughts,   Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

calimama

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Re: Facial Progress
« Reply #22 on: August 27, 2008, 07:10:05 pm »
Thanks Jean! It must be nice to see those upper teeth again! Patience prevails!
Left 2.9cm CP Angle AN discovered Jan 2008. Retrosig surgery June 2, 2008 Toronto, Canada. Facial paralysis and numbness, double vision (4th nerve), SSD. DV totally recovered in 4th month; palsy started to recover slowly around month 7. Had twin boys 13 months after surgery. Doing great.

jazzfunkanne

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Re: Facial Progress
« Reply #23 on: September 01, 2008, 02:20:35 pm »
jean your face has really improved , it gives me hope to see this after 3 years , did you exercise your face and did you use the tropical machine, you have a gold weight in your eye dont you? i cant noticed it, my eye looks really heavy with my weight in it. take carex
over 4.5cm AN removed dec 06

Jeanlea

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Re: Facial Progress
« Reply #24 on: September 01, 2008, 07:05:11 pm »
Hi Anne,

I didn't do any special exercises for my face.  I would massage it sometimes.  Tried to make it move a lot.  But there was nothing I did on a regular basis.  There were no machines that I used on my face.  Yes, I do have a gold weight in my eye.  I think it's 1.4 grams. 

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

saralynn143

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Re: Facial Progress
« Reply #25 on: September 02, 2008, 11:27:20 am »
Jeanlea,

Have you had any synkenesis at all?
And do you plan to keep the eyelid weight?

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

jazzfunkanne

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Re: Facial Progress
« Reply #26 on: September 02, 2008, 12:10:42 pm »
hi Jeananne, i was just going to ask about  synkenesis  as well, i find my bottom eyelid goes up when i try to smile.
over 4.5cm AN removed dec 06

Jeanlea

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Re: Facial Progress
« Reply #27 on: September 02, 2008, 06:05:19 pm »
Hi Sara and Anne,

When I was at 18 months I went to a facial specialist for therapy.  She said I did not have synkinesis.  I don't believe that I've developed any since then.  I suppose I'll be keeping the gold weight since I don't think my eye close by itself without.  Maybe some day it will.

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

LADavid

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Re: Facial Progress
« Reply #28 on: September 02, 2008, 06:41:40 pm »
Hey Jeanlea
That is awesome.  Even though my issue is synkinesis, it does give me hope for the future.  It's true -- improvements and changes happen at such a snail's pace that we never see them day to day or even week to week.  But if you view them year to year, it does happen.  This is an inspiration for all those who are stuck in the things will never get better mode.  Thanks for sharing the pictures.  You look great!

And btw, in our training for the October 12th Half Marathon, my daughter and I ran 10 miles last weekend.  We have a 12 miler coming up in three weeks with a few shorter 6 mile runs in between.  We're getting there.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

saralynn143

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Re: Facial Progress
« Reply #29 on: September 02, 2008, 06:43:11 pm »
If I get to where you are, smiling but needing a weight for eye closure, I'll take it!

I am very happy for you, and hope that I will be able to make a similar report. Soon would be good.

Sara
« Last Edit: September 02, 2008, 06:44:52 pm by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13