Author Topic: 0745 AM CST  (Read 9147 times)

mindyandy

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Re: 0745 AM CST
« Reply #15 on: March 25, 2012, 01:10:38 pm »
Welcome home. I think there are a few members on this board who had facial neuroma. Sorry about the headaches. Hopefully they go away & you recover nicely.

Mindy
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

james e

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Re: 0745 AM CST
« Reply #16 on: March 28, 2012, 12:59:14 pm »
Thank goodness you did not have translab! Hope your recovery goes well. It is typically slow with an AN, and I imagine it is slow with a facial neuroma. Glad you are home.

James

stephSF

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Re: 0745 AM CST
« Reply #17 on: April 08, 2012, 09:50:21 pm »
Just read your journey. Nope you are continuing with a great recovery! 
Stephanie
1.6 cm AN Translab with Dr.'s Friedman and Shwartz with HEI on 1-25-2012.  I am doing great!  Surgery saved my life :).   Be brave, have a great attitude, and hire the best surgical team!!!!

Jim Scott

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Re: 0745 AM CST
« Reply #18 on: April 09, 2012, 01:25:32 pm »
Jeremy ~

Facial nerve schwannomas are quite rare - less than 2% of all schwannomas.  You seem to have been fortunate with your successful outcome to the surgery.  I would consider asking about radiation treatment to destroy the remaining tumor before it has a chance to grow.  However, that is a medical decision best made in conjunction with your doctors

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.