ANA Discussion Forum
Treatment Options => Microsurgical Options => Topic started by: trev0024 on March 19, 2012, 05:23:27 pm
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I just want to thank everyone for all the support so far along this WILD AN journey. I am all set for surgery tomorrow at 0745, reporting at 0600 CST. I'm feeling pretty good at this point and I owe much of that to you all and this great forum resource. It's hard to imagine having this same scenario 30, 50 years ago before the internet and endless patient resources. The thought of just relying on what one doctor or person says seems crazy! I will post as soon as I feel well enough or have my wife drop a line.
Retro sigmoid (L) AN 2.3 x 2.0 cm. Mayo Clinic Rochester, MN w/ Dr.'s Link and Driscoll.
Talk to you soon! God bless.
Sincerely,
Jeremy
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Good luck Jeremy! See you on the other side!! :)
Jay
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Good luck, Jeremy, I trust all will go well!
-Tod
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Good luck Jeremy. Before you know it you will be posting as a postie ;D I will keep checking in for your update.
Mindy
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I wish you the very best Jeremy! I pray that all goes great for you, both during surgery and afterwards!
Windy
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Jeremy ~
I'm confident that you're in good hands and came through the surgery just fine. You'll be in my prayers, too.
Jim
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Thinking of you, Jeremy...
cindy
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I ditto what Cindy said. Were thinking of you and hope to hear from you soon.
Mindy
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Fingers crossed and sending all the best of wishes from across the big pond from Aus.
Suu xxoo
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Hey Everyone, finally feeling well enough to post an update. I am currently sitting up in a chair, walking to the bathroom and working with physical therapy. The surgeon's were pleased with surgery, however they were surprised to find a facial schwannoma instead of an AN. They were able to remove 80-85% of the tumor. Currently I have some minor facial weakness, balance is impaired and hearing has remained similar to pre-op. The plan is for 3 month MRI and go from there. ALL is all, very good news. All the surgeon's seem very pleased and amost shocked with my outcomes! The first night in the ICU was the most wild thing I have been through physically! I will write again soon.
Thanks for all the support.
Jeremy
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Jeremy I am very happy to hear your doing well. If the surgeons are happy then things went well. Keep us posted on how your doing. It feels great to be a postie huh? ;D
Mindy
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Jeremy ~
Welcome to 'postie-land'! :)
Thanks for the quick update. I'm glad to learn that you came through the surgery just fine (as I expected you would). Take it slow, don't try to set recovery records and 'listen to your body'. Post again as you feel up to it. We'll be here.
Jim
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Good to hear from you Jeremy. I am very glad everyone is pleased and shocked by your outcome. That is great news! I hope all continues to go very well for you. I look forward to future posts!
Windy
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So now you're in another wonderful group of post ANers. You sound so upbeat and alive!
Well done mate.
Suu xxoo
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Well, I'm at home now and my wife and two golden retrievers are taking great care of me. Balance is about 70% and headaches vary greatly depending on the time of day. At night its seems to get pretty bad....not sure how to handle this as I don't like taking more pain meds than I feel I need. However, the RN's expressed the importance of staying ahead of this pain?
As in my earlier post, I learned I have a facial schwannoma, NOT an acoustic neuroma. They were able to remove 80-85% of the tumor with the retro sigmoid. Thank god I chose this surgery because many Dr.s recommended trans lab which would have left me SSD. After talking to all the MD's after surgery I get the sense that FS are very rare and they were very surprised with what they found. Given this, they were pleased with how much tumor they were able to remove. Anybody with experience with facial schwannomas? I am taking this as good news in the short-term and uncertainty for the future. I still have tumor left and nobody can predict if this will grow.
Does anybody know the incidence or prevalence of these FS?
Jeremy
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Welcome home. I think there are a few members on this board who had facial neuroma. Sorry about the headaches. Hopefully they go away & you recover nicely.
Mindy
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Thank goodness you did not have translab! Hope your recovery goes well. It is typically slow with an AN, and I imagine it is slow with a facial neuroma. Glad you are home.
James
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Just read your journey. Nope you are continuing with a great recovery!
Stephanie
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Jeremy ~
Facial nerve schwannomas are quite rare - less than 2% of all schwannomas. You seem to have been fortunate with your successful outcome to the surgery. I would consider asking about radiation treatment to destroy the remaining tumor before it has a chance to grow. However, that is a medical decision best made in conjunction with your doctors
Jim