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Author Topic: 0745 AM CST  (Read 9168 times)

trev0024

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0745 AM CST
« on: March 19, 2012, 05:23:27 pm »
I just want to thank everyone for all the support so far along this WILD AN journey. I am all set for surgery tomorrow at 0745, reporting at 0600 CST. I'm feeling pretty good at this point and I owe much of that to you all and this great forum resource. It's hard to imagine having this same scenario 30, 50 years ago before the internet and endless patient resources. The thought of just relying on what one doctor or person says seems crazy! I will post as soon as I feel well enough or have my wife drop a line.

Retro sigmoid (L) AN 2.3 x 2.0 cm. Mayo Clinic Rochester, MN w/ Dr.'s Link and Driscoll.
 
Talk to you soon! God bless.

Sincerely,

Jeremy
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New dx 2.0 x 1.9 cm AN

jaylogs

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Re: 0745 AM CST
« Reply #1 on: March 19, 2012, 05:56:41 pm »
Good luck Jeremy! See you on the other side!! :)
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Tod

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Re: 0745 AM CST
« Reply #2 on: March 19, 2012, 06:10:15 pm »
Good luck, Jeremy, I trust all will go well!

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

mindyandy

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Re: 0745 AM CST
« Reply #3 on: March 19, 2012, 07:13:34 pm »
Good luck Jeremy. Before you know it you will be posting as a postie  ;D I will keep checking in for your update.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

windy

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Re: 0745 AM CST
« Reply #4 on: March 19, 2012, 08:02:02 pm »
I wish you the very best Jeremy! I pray that all goes great for you, both during surgery and afterwards!

Windy
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014

Jim Scott

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Re: 0745 AM CST
« Reply #5 on: March 20, 2012, 02:33:02 pm »
Jeremy ~

I'm confident that you're in good hands and came through the surgery just fine.  You'll be in my prayers, too.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cindyj

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Re: 0745 AM CST
« Reply #6 on: March 20, 2012, 03:57:12 pm »
Thinking of you, Jeremy...

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

mindyandy

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Re: 0745 AM CST
« Reply #7 on: March 21, 2012, 11:49:01 am »
I ditto what Cindy said. Were thinking of you and hope to hear from you soon.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Suu

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Re: 0745 AM CST
« Reply #8 on: March 21, 2012, 06:27:43 pm »
Fingers crossed and sending all the best of wishes from across the big pond from Aus.

Suu xxoo
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

trev0024

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Re: 0745 AM CST
« Reply #9 on: March 22, 2012, 09:46:34 am »
Hey Everyone, finally feeling well enough to post an update. I am currently sitting up in a chair, walking to the bathroom and working with physical therapy. The surgeon's were pleased with surgery, however they were surprised to find a facial schwannoma instead of an AN. They were able to remove 80-85% of the tumor. Currently I have some minor facial weakness, balance is impaired and hearing has remained similar to pre-op. The plan is for 3 month MRI and go from there. ALL is all, very good news. All the surgeon's seem very pleased and amost shocked with my outcomes! The first night in the ICU was the most wild thing I have been through physically! I will write again soon.

Thanks for all the support.

Jeremy
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New dx 2.0 x 1.9 cm AN

mindyandy

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Re: 0745 AM CST
« Reply #10 on: March 22, 2012, 10:22:56 am »
Jeremy I am very happy to hear your doing well. If the surgeons are happy then things went well. Keep us posted on how your doing. It feels great to be a postie huh?  ;D

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jim Scott

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Re: 0745 AM CST
« Reply #11 on: March 22, 2012, 02:07:11 pm »
Jeremy ~

Welcome to 'postie-land'!  :)

Thanks for the quick update.  I'm glad to learn that you came through the surgery just fine (as I expected you would).  Take it slow, don't try to set recovery records and 'listen to your body'.  Post again as you feel up to it.  We'll be here. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

windy

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Re: 0745 AM CST
« Reply #12 on: March 22, 2012, 06:45:53 pm »
Good to hear from you Jeremy. I am very glad everyone is pleased and shocked by your outcome. That is great news! I hope all continues to go very well for you. I look forward to future posts!

Windy
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014

Suu

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Re: 0745 AM CST
« Reply #13 on: March 22, 2012, 10:58:32 pm »
So now you're in another wonderful group of post ANers.  You sound so upbeat and alive!

Well done mate.

Suu xxoo
Logged
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

trev0024

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Re: 0745 AM CST
« Reply #14 on: March 25, 2012, 12:48:53 pm »
Well, I'm at home now and my wife and two golden retrievers are taking great care of me. Balance is about 70% and headaches vary greatly depending on the time of day. At night its seems to get pretty bad....not sure how to handle this as I don't like taking more pain meds than I feel I need. However, the RN's expressed the importance of staying ahead of this pain?

As in my earlier post, I learned I have a facial schwannoma, NOT an acoustic neuroma. They were able to remove 80-85% of the tumor with the retro sigmoid. Thank god I chose this surgery because many Dr.s recommended trans lab which would have left me SSD. After talking to all the MD's after surgery I get the sense that FS are very rare and they were very surprised with what they found. Given this, they were pleased with how much tumor they were able to remove. Anybody with experience with facial schwannomas? I am taking this as good news in the short-term and uncertainty for the future. I still have tumor left and nobody can predict if this will grow.

Does anybody know the incidence or prevalence of these FS?

Jeremy
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New dx 2.0 x 1.9 cm AN
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