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Author Topic: If you are on Facebook..............  (Read 27037 times)

Cheryl R

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Re: If you are on Facebook..............
« Reply #60 on: August 23, 2009, 12:25:36 pm »
Very good idea,Steve!     Plus somehow at a time where all could come and not among the small sessions where we are here and there and not wanting to miss some info.                               Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
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    Univ of Iowa for all care

CHD63

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Re: If you are on Facebook..............
« Reply #61 on: August 23, 2009, 12:34:19 pm »
This is probably "off topic" for this Facebook thread, but ..... I agree that there was much miscommunication on when the "forumites" were gathering at the symposium, mainly because of all of our hearing deficits.  I, as well, vote for a specific gathering of Forum participants next time ...... in as quiet a place, as possible.  Background noise, such as "quiet" music, other conversations, or even air conditioning systems are deadly for me.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kaybo

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Re: If you are on Facebook..............
« Reply #62 on: August 23, 2009, 12:46:07 pm »
I think that on the "OFF" year for the Symposium, that we should all meet up somewhere, just to have fun...like maybe Lori's at the beach!!

K   ;D
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leapyrtwins

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Re: If you are on Facebook..............
« Reply #63 on: August 23, 2009, 12:52:44 pm »
Quote from: sgerrard on August 23, 2009, 11:18:31 am
I think we should try and get a forum workshop scheduled at the next symposium. It would a chance for the forumites to gather, and also for other attendees to come see what the forum is about. We might even get a doctor or two to come and see that the Internet is not all bad.

Steve -

this is an excellent idea.  Perhaps the moderators could approach Judy V @ the ANA about this for 2011?  We could even offer to have the forum members sponsor it - if there is enough interest.  I was a sponsor of the 2009 symposium - mainly because I felt it was a great cause and it was in Chicago - but I'm also giving serious thought to sponsoring in 2011 also.

Kaybo -

count me in on the beach idea - I'll start saving my money for airfare now.  Think Lori has enough room for all of us???  :D

Jan
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Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Migoi

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Re: If you are on Facebook..............
« Reply #64 on: August 23, 2009, 06:02:24 pm »
I could go for a trip to the beach.

..take care... tim b
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Captain Deb

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Re: If you are on Facebook..............
« Reply #65 on: August 23, 2009, 08:22:56 pm »
Beach! Beach! BEACH!!

Captain Gidget
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leapyrtwins

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Re: If you are on Facebook..............
« Reply #66 on: August 23, 2009, 09:48:50 pm »
Captain Gidget!  LOL  :D  :D   :D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Keri

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Re: If you are on Facebook..............
« Reply #67 on: August 23, 2009, 09:53:49 pm »
I too could go for a forumite get together. Especially around the mid Atlantic part of the country!

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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

grega

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Re: If you are on Facebook..............
« Reply #68 on: August 26, 2009, 07:11:35 am »
Ditto to Keri, Capt Gidget, Tim, Jan & Kay !!!!!!!!!!!!!!!!!  ;D ;D ;D ;D

Greg
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1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

cindyj

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Re: If you are on Facebook..............
« Reply #69 on: September 08, 2009, 02:37:48 pm »
Hey, all!  As some of you have seen, 'cause we're now "friends" I am finally on FB.  However, I don't know what I'm doing, don't understand most of it and haven't taken the time to figure it out.  I will, though!  But, in the meantime, sorry if I'm ignoring anyone or anything that you have sent to me.  I'm overwhelmed at the moment :o  Farmthings, pillow fights, hearts, food fights!  What in the world!  Crazy!  I'll consult the boys about it at some point  ;D  they, of course, do know what they're doing!

See you over there,

Cindy

PS - count me in for any beach trip...
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

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ppearl214

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Re: If you are on Facebook..............
« Reply #70 on: September 08, 2009, 02:44:36 pm »
I'm with Cindy on this one... I'm on FB (against my better judgement) and mostly family and AN'ers and yes, my school chums from yearrrrrrrrrrrrs gone by have me as friends there.  Have no clue how to poke, play Mafia Wars, pass a drink/flower/game, etc.  Don't ask to "chat" with me there cuz it blows up my home computer but if you post on my wall/webpage, whatever they call it, pls keep it clean..... the youngins in my family see it.

Barely there but some of you have found me there..... oy. :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Joef

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Re: If you are on Facebook..............
« Reply #71 on: September 08, 2009, 02:53:23 pm »

Actually.... I've been playing the Pirate game..... ;)... darn addicting....
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ppearl214

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Re: If you are on Facebook..............
« Reply #72 on: September 08, 2009, 03:05:43 pm »
Quote from: Joef on September 08, 2009, 02:53:23 pm

Actually.... I've been playing the Pirate game..... ;)... darn addicting....

link please.. for the Captn since she's out there as well. :D
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Joef

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Re: If you are on Facebook..............
« Reply #73 on: September 08, 2009, 03:12:15 pm »

try this: http://apps.facebook.com/piratesrule/

of course you have to be in FB for this to work....
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

mindyandy

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Re: If you are on Facebook..............
« Reply #74 on: January 26, 2012, 11:10:08 am »
My FB is Mindy Todd  ;D
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012
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