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Author Topic: If you are on Facebook..............  (Read 25846 times)

CROOKEDSMILE

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If you are on Facebook..............
« on: June 26, 2009, 08:52:11 pm »
Please post your full name here so that we can keep in touch.
Angela McMillen
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Brendalu

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Re: If you are on Facebook..............
« Reply #1 on: June 27, 2009, 08:58:14 am »
I am Brenda Oberholtzer on Facebook
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

tenai98

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Re: If you are on Facebook..............
« Reply #2 on: June 27, 2009, 09:31:49 am »
Joann Guenette on f/b
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

cin605

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Re: If you are on Facebook..............
« Reply #3 on: June 27, 2009, 03:51:08 pm »
I am Cindy Edgell.FEll free to pm me.I am a year n a day out of retro.I actually have a picture of myself ther too.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

sharonov

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Re: If you are on Facebook..............
« Reply #4 on: June 27, 2009, 05:00:11 pm »
I'm Sharon Novickas and am on Facebook--with a picture.  Couldn't figure out how to upload one here.
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yardtick

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Re: If you are on Facebook..............
« Reply #5 on: June 27, 2009, 11:06:49 pm »
I'm Anne Marie Sanseverino, with the same picture as here....for now
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

LADavid

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Re: If you are on Facebook..............
« Reply #6 on: June 27, 2009, 11:25:54 pm »
Hey Angie -- there are a bunch of us FBers.  I looked for you -- couldn't find you.  I'm David Shannon but to make it easier my FB user name is  Facebook.com/daviddshannon
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Jim Scott

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Re: If you are on Facebook..............
« Reply #7 on: June 28, 2009, 12:43:17 pm »
David...is that really you?  It's good to see you post again!  It's been awhile (almost 2 months...but who's counting?)  :)  Is everything O.K.?  Hope so.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

saralynn143

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Re: If you are on Facebook..............
« Reply #8 on: June 28, 2009, 12:53:01 pm »
It hasn't been that long, David posted when my dad passed away last month.

It just seems longer because we miss him so much.

Back to topic . . . I do not have a facebook account, but I may have to reconsider because a bunch of people have invited me recently.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Jim Scott

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Re: If you are on Facebook..............
« Reply #9 on: June 28, 2009, 01:33:31 pm »
Sara ~

I stand corrected.   :-[  Prior to today's post, the record shows LADavid's last post was on June 01, 2009 at 12:24:28 AM.    I believe he offered condolences to you on the death of your father.  That would be 24 hours short of 4 weeks (a month).  You're right, it just seems longer.  He's been missed. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

krbonner

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Re: If you are on Facebook..............
« Reply #10 on: June 28, 2009, 05:57:53 pm »
Katie Bonner or www.facebook.com/krbonner.

 :)

Katie
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diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

saralynn143

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Re: If you are on Facebook..............
« Reply #11 on: June 28, 2009, 06:23:19 pm »
Quote from: Jim Scott on June 28, 2009, 01:33:31 pm
Sara ~

I stand corrected.   :-[  Prior to today's post, the record shows LADavid's last post was on June 01, 2009 at 12:24:28 AM.    I believe he offered condolences to you on the death of your father.  That would be 24 hours short of 4 weeks (a month).  You're right, it just seems longer.  He's been missed. 

Jim

I'm sorry, Jim, I did not mean that as a rebuke of any sort. In fact, I am amazed that it has been four weeks already.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Keri

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Re: If you are on Facebook..............
« Reply #12 on: June 30, 2009, 09:37:29 am »
Keri Jacobs
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

ppearl214

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Re: If you are on Facebook..............
« Reply #13 on: June 30, 2009, 09:07:01 pm »
Hi all,

suggestion..... a thought.. if you note your FB profile link in your "sig line" (if you need guidance on how to do a sig line... like mine noted here/below, noting my CK and my Pirates quote, please let any of us know), folks can find you there via your profile link. 

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kate B

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Re: If you are on Facebook..............
« Reply #14 on: July 01, 2009, 04:49:12 am »
Quote from: CROOKEDSMILE on June 26, 2009, 08:52:11 pm
Please post your full name here so that we can keep in touch.

Doesn't Facebook find through the person's email? Otherwise, it is amazing how many pages of the same name there can be!!!

David,
How do you know your own Link?
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Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/
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