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Author Topic: If you are on Facebook..............  (Read 25853 times)

MDemisay

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Re: If you are on Facebook..............
« Reply #75 on: February 17, 2012, 02:35:06 pm »
Hi all! My name on Facebook is Michael Demisay and an old hobby of mine is running model trains hence the picture of the train.  Guess what my new hobby is? Doing research so I can kill my tumor! Charming isn't it!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

ppearl214

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Re: If you are on Facebook..............
« Reply #76 on: February 18, 2012, 07:12:25 am »
I'm on as my dog due to my Govt relationship. :)
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Keri

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Re: If you are on Facebook..............
« Reply #77 on: February 18, 2012, 12:40:46 pm »
For the longest time I was friends with Scarlett, and didn't even realize it was  that Scarlett, whom I was so happy to realize was my friend that I had been friends with all along!!

Sometimes it's hard to put the names together from the forum to facebook!

Keri

Keri Jacobs on facebook
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Kaybo

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Re: If you are on Facebook..............
« Reply #78 on: February 20, 2012, 07:45:48 pm »
Hey Keri...I'm just Kay not Kaybo, in case you were wondering... ::)

Just kidding...

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

godftamm

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Re: If you are on Facebook..............
« Reply #79 on: February 20, 2012, 08:39:10 pm »
I'm on Facebook as Tammy Godfrey
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iluuvpups

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Re: If you are on Facebook..............
« Reply #80 on: February 21, 2012, 02:42:30 am »
I'm on Facebook as Carol Ann Levis.
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Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

Lynn Mc

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Re: If you are on Facebook..............
« Reply #81 on: February 21, 2012, 05:18:46 am »
I'm on FB as Lynn McAvoy....
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

sharondaniels

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Re: If you are on Facebook..............
« Reply #82 on: February 21, 2012, 09:01:40 pm »
I am on FB as Sharon L. Daniels

I look forward to new friendships!! :D
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Sharon
 1.5cm AN right side diagnosed 10/12/11
 GK 12/1/11 at UVA
from VA

mindyandy

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Re: If you are on Facebook..............
« Reply #83 on: February 21, 2012, 09:09:40 pm »
Sharon there is more than one Sharon L Daniels. I don't know which one...lol
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

sharondaniels

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Re: If you are on Facebook..............
« Reply #84 on: February 22, 2012, 09:18:46 pm »
www.facebook.com/sharonldaniels  I am in Linden VA and work as a Managing Broker at Weichert Realtors.  that should help you find me.... I will look you up and send you a request too.  ;)
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Sharon
 1.5cm AN right side diagnosed 10/12/11
 GK 12/1/11 at UVA
from VA

Jackie

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Re: If you are on Facebook..............
« Reply #85 on: February 26, 2012, 11:15:17 am »
I am on Facebook too! Jackie Hurley :-*
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???
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