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Author Topic: If you are on Facebook..............  (Read 25859 times)

Joef

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Re: If you are on Facebook..............
« Reply #15 on: July 01, 2009, 05:27:08 am »
Quote from: Kate B on July 01, 2009, 04:49:12 am
Quote from: CROOKEDSMILE on June 26, 2009, 08:52:11 pm
Please post your full name here so that we can keep in touch.

Doesn't Facebook find through the person's email? Otherwise, it is amazing how many pages of the same name there can be!!!

David,
How do you know your own Link?

Kate's right, searching by name can be very painfull ... the best way is with your alias.... and provide a link .. (as krbonner has done)  you can put it right in your sig...

www.facebook.com/krbonner
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

sharonov

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Re: If you are on Facebook..............
« Reply #16 on: July 01, 2009, 06:37:40 am »
It's true that there can be pages and pages of a person's name.  I, however, am the only Sharon Novickas on Facebook and in fact in the world.  At least that's what I found out in a site called Howmanyareyou.com.  Yeah, I know, too much time on my hands.

I am very disappointed that nobody from the ANA forum has friended me!
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nancyann

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Re: If you are on Facebook..............
« Reply #17 on: July 01, 2009, 06:44:41 am »
Since I am pretty much computer illiterate,  I have no idea about Facebook, this 'twitter' thing, etc.   
Actually,  I find since my AN surgery,  I like to keep my life as simple as possible !
(I got my 1st computer 2 months after surgery - my nephew picked it out & set everything up for me - then I found this site !).
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Cheryl R

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Re: If you are on Facebook..............
« Reply #18 on: July 01, 2009, 07:19:09 am »
I am Cheryl Roberts on Facebook but rarely look on there and haven't figured out how to do the picture there.       Has been just easier to email my friends personally.             2 of my friends are just on so can see relatives kids pictures. 
    I am trying not to be nervous this AM.                           Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Keri

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Re: If you are on Facebook..............
« Reply #19 on: July 01, 2009, 08:24:03 pm »
Nancy and Cheryl,
You're smart! Facebook can be a real time sucker upper (esp at first). I've found a few forumites on there. Will look for some more now!
I find I spend more time on here.

Keri

PS, Cheryl, I heard your procedure was on then off. I need to go find out what's happening with you! I wish you well!
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

CHD63

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Re: If you are on Facebook..............
« Reply #20 on: July 01, 2009, 08:32:16 pm »
Keri .....

See http://anausa.org/forum/index.php?topic=9996.0 for an update on Cheryl.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kathy M

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Re: If you are on Facebook..............
« Reply #21 on: August 02, 2009, 04:07:51 pm »
Kathy Maybriar - Just created a profile today and I think I could get hooked!!!!!
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

leapyrtwins

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Re: If you are on Facebook..............
« Reply #22 on: August 03, 2009, 06:44:58 am »
Quote from: sharonov on July 01, 2009, 06:37:40 am
I am very disappointed that nobody from the ANA forum has friended me!

Well, I would, but I'm anti-Facebook (anti-MySpace also); so I am not a member.

Lori and Kay are big Facebookers (is that a word??).  I'm sure they'll invite you.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

margen

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Re: If you are on Facebook..............
« Reply #23 on: August 05, 2009, 07:18:28 am »
Mary Ann Gengo on facebook.
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wcrimi

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Re: If you are on Facebook..............
« Reply #24 on: August 05, 2009, 07:19:53 am »
Wayne Crimi
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

Debbi

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Re: If you are on Facebook..............
« Reply #25 on: August 05, 2009, 06:40:50 pm »
And you can find me at http://www.facebook.com/deborah.bifulco  I have my AN friends seperated into special "friends" list on FB so that I can share some things with only them - like incision pictures!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Captain Deb

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Re: If you are on Facebook..............
« Reply #26 on: August 06, 2009, 11:43:40 am »
Just signed up!  Deborah Jacobs Purves.  I'll be uploading pics of my paintings soon! I just need to find them since my puter died.

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Joef

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Re: If you are on Facebook..............
« Reply #27 on: August 06, 2009, 12:13:16 pm »
I can't seem to find you Capt! ... you can "friend" me !

http://www.facebook.com/nwfaganj

« Last Edit: August 06, 2009, 12:14:50 pm by Joef »
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

followingHim

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Re: If you are on Facebook..............
« Reply #28 on: August 06, 2009, 12:29:42 pm »
I don't have a facebook account.  Rob is not too keen.  I do have im that I would give out in pm tho'.

Blessings

Ley
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Captain Deb

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Re: If you are on Facebook..............
« Reply #29 on: August 06, 2009, 12:37:10 pm »
Just posted tons of painting pics in an album on facebook--I'm supposed to be working, darnnit!! Enjoy.........

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW
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