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Author Topic: NY/NJ luncheon  (Read 10999 times)

wendysig

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Re: NY/NJ luncheon
« Reply #30 on: July 10, 2009, 03:43:45 pm »
Eve,

I'm sorry you can't make it.  I was really looking forward to seeing you again, as I'm sure everyone else was.  We'll just have to have another luncheon before the end of the summer.  I'm bringing my camera!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

jerseygirl

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Re: NY/NJ luncheon
« Reply #31 on: July 10, 2009, 08:09:44 pm »
Thanks, Wendy,

I was looking forward to seeing all of you again and, hopefully, meeting new people. Have fun!

         Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

jtd71465

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Re: NY/NJ luncheon
« Reply #32 on: July 11, 2009, 01:45:29 pm »
Great time today, can't say how much I enjoy seeing all of you. 

Until next time.


Joe-
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

nteeman

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Re: NY/NJ luncheon
« Reply #33 on: July 11, 2009, 02:09:59 pm »
Being able to lunch with the fine folks I met through this forum is definitely one of the benefits of having an AN.  ;D  I had a great time today and I look forward to meeting again this fall.

Cheers,

Neal
« Last Edit: July 11, 2009, 08:02:08 pm by nteeman »
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

Mickey

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Re: NY/NJ luncheon
« Reply #34 on: July 11, 2009, 07:54:23 pm »
Pat and I had a real nice day today with everyone. Untill we meet again, Mickey
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wcrimi

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Re: NY/NJ luncheon
« Reply #35 on: July 12, 2009, 08:40:34 am »
Are there any pictures this time?
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

Debbi

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Re: NY/NJ luncheon
« Reply #36 on: July 12, 2009, 03:03:55 pm »
I had an AWESOME time yesterday and it was so great seeing you all!  Next time, hopefully Mary, Catherine, Eve, Nancy, Dawn and anyone else in the area can be there - tentatively planning for early October!

And YES, there are pictures!!

At Brendan's, from Left to Right: Willie, Debbi, Neal (NTeeman)l, Wendy, Rob, Joe(Jtd), Pat, Mike (Mickey)



And, outside of Brendans (Willie and Rob, being the dutiful husbands, were standing in the middle of W 35th dodging traffic to take this shot!)



Okay, start checking your calendars for early October - I'm thinking Oct 3 or Oct 10 - any preference?

Oh, and Joe?  That picture you texted me of you in the hospital was so funny!!!

Debbi
« Last Edit: July 12, 2009, 03:20:36 pm by Debbi »
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

sgerrard

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Re: NY/NJ luncheon
« Reply #37 on: July 12, 2009, 03:10:11 pm »
You all look great and full of smiles. Thanks for the pics!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: NY/NJ luncheon
« Reply #38 on: July 12, 2009, 03:26:55 pm »
Thanks, Debbi.  You all look great!

And now I'm especially curious about the picture of Joe in the hospital.   

We all appreciate funny  ;)  Will he let you share it with us?

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wcrimi

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Re: NY/NJ luncheon
« Reply #39 on: July 12, 2009, 04:50:16 pm »
Great pictures. Thanks.   Next time for me!   ;D
« Last Edit: July 12, 2009, 05:14:59 pm by wcrimi »
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

jtd71465

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Re: NY/NJ luncheon
« Reply #40 on: July 12, 2009, 05:14:31 pm »
Debbi-

You have my permission to post the picture.

Joe-
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

Debbi

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Re: NY/NJ luncheon
« Reply #41 on: July 12, 2009, 06:39:13 pm »
Okay, you asked for it ..... (drum roll) My great friend, Joe, minutes before surgery at NYU.  All dolled up....for the OR!

« Last Edit: July 12, 2009, 06:43:43 pm by Debbi »
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jerseygirl

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Re: NY/NJ luncheon
« Reply #42 on: July 12, 2009, 07:43:46 pm »
Great pictures! I cannot wait to join you next time! Joe - aren't you glad everything is over and the outcome is fantastic?

         Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

leapyrtwins

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Re: NY/NJ luncheon
« Reply #43 on: July 12, 2009, 10:02:01 pm »
Marvelous picture - love the hat!  Had one just like it myself a few years back, but I've since replaced it with a nice knit Steve original.

Thanks for letting Debbi post it, Joe.

I didn't think to have someone take pictures at the hospital.  The only one I have was taken by my sister with her cell phone so she could show me what my scar looked like  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

jtd71465

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Re: NY/NJ luncheon
« Reply #44 on: July 13, 2009, 03:01:20 am »
That's the only picture I have and it's just enough to remind me if I start to forget how lucky I am.


Joe-
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos
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