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Author Topic: NY/NJ luncheon  (Read 10997 times)

wendysig

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Re: NY/NJ luncheon
« Reply #15 on: June 20, 2009, 06:25:14 pm »
Joe,

Great to hear you'll be at the luncheon!  It will be great to see you again!!!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Mickey

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Re: NY/NJ luncheon
« Reply #16 on: June 20, 2009, 07:01:44 pm »
I`m in!   Just let me know what time, Mickey
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marymomof3

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Re: NY/NJ luncheon
« Reply #17 on: June 21, 2009, 07:08:37 pm »
Hi all!  Debbie - thanks for sending me an email about this.  I haven't been checking in on this forum as much as I used to.  July 11th could work for me.  What time? I would love to see you all!
Mary
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Diagnosed Jan 21, 2008 w/1.8CM AN on left side.  Had is removed on March 19th at NYU.  And I am super grateful for such wonderful doctors!!

leapyrtwins

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Re: NY/NJ luncheon
« Reply #18 on: June 21, 2009, 07:10:36 pm »
Quote from: wendysig on June 19, 2009, 09:17:34 am
BTW, what happened to your boss?

Fired.  Shocked the sh*t out of me - him, too.

We'd worked together for 17 1/2 years. 

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: NY/NJ luncheon
« Reply #19 on: June 22, 2009, 12:09:35 pm »
Hey Mickey and Mary - so glad you can make it!!  I think Wendy and I settled on 12 noon.  Brendan's is near Penn Stn and walking distance to Grand Central and Port Authority, on 35th between 5th and 6th.  Here is the website:

http://www.brendansbar.com/

They have a brunch menu which is $16 pp plus tax and gratuity, so just under $25 per person. 

Spouses welcome, of course!

We'll collect cell phone numbers from everyone as we get closer. You can PM either me or Wendy and we'll PM you back with our cell numbers.

Wahoo!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

wendysig

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Re: NY/NJ luncheon
« Reply #20 on: June 23, 2009, 10:34:25 am »
Hi Debbi

It looks like th luncheon is shaping up nicely.  Hopefully we'll be able to get a few more people this time around too. 

Jan - Sorry to hear about your boss being fired so unexpectedly -- it sounds like it was a surprise to everyone.  Did they give him a reason?  I hope this doesn't spoil your plans for the symposium -- I know how much you were looking forward to it.

Wendy

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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

nteeman

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Re: NY/NJ luncheon
« Reply #21 on: July 06, 2009, 11:47:12 am »
Bump.  Hope we're all on for Saturday.

 ;D
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

Mickey

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Re: NY/NJ luncheon
« Reply #22 on: July 06, 2009, 03:59:52 pm »
I`m assuming that its official? Mickey
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wcrimi

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Re: NY/NJ luncheon
« Reply #23 on: July 06, 2009, 06:34:10 pm »
Sorry I can't make it again, but I promise I will next time. 
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

wendysig

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Re: NY/NJ luncheon
« Reply #24 on: July 06, 2009, 11:23:08 pm »
Hi to all,

It's late and I don't have enough energy to go back and do a head count right now but will do that tomorrow.  I believe Saturday is official barring some disasterous event that will keep people from coming.  Off the top of my head I think this is where things stand:

Debbi and her hubby - sorry brain fog is making is name escape me right now.

Rob and me

Neal

Eve

Joe

Wendy

Mickey and Pat(?)

possibly Dawn (?)

If I left anyone out, accept my apologies.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: NY/NJ luncheon
« Reply #25 on: July 09, 2009, 06:11:10 pm »
And Mary!

I made the reservations under the name of Debbi (go figure) and I said there'd be 10-12 of us, so sounds about right.  We can have them adjust the seating up if we need to.  Willie (hubby) and I will try to get there a little early - just depends on tunnel traffic.  Most of you have my cell number already - but if you don't have it, just PM me and I'll send it to you. 

Yay!  Can't wait to see everyone!!

Wayne, you've got to come next time!!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

JerseyGirl2

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Re: NY/NJ luncheon
« Reply #26 on: July 09, 2009, 07:56:29 pm »
Hi, ANers from NY/NJ,

I had posted on June 16 that I would be able to attend the luncheon on Saturday, but I'm going to have to cancel -- for non-AN health-related reasons.

Had gum surgery (for a receding gum line on a couple of teeth) a couple of weeks ago and am still on a very restricted liquid/soft food diet. Since I had very intentionally planned for this surgery to take place the week after I returned from three weeks in France (figured it would be a semi-painless way to lose the pounds I would inevitably gain on the trip), I'm not looking for sympathy ... but I had hoped the dietary restrictions wouldn't last quite this long. Two days after the dental surgery I broke out in a horrible case of poison ivy (face, neck, hands, etc.) from yard work I'd done a few days earlier. I've just completed a steroid regimen to clear that up -- I still have some intermittent itching episodes, so I can't get too far away from my bottle of calamine lotion.

The thought of going into the city, staring enviously at everyone's lunch selections while trying not to scratch my remaining poison ivy spots seemed pretty grim, so I think I'll wait until the next gathering.

I hope that everyone is doing well, and I'll look forward to seeing you at a later date. Please take pictures!

Best wishes,

Catherine (JerseyGirl 2)
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Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

wendysig

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Re: NY/NJ luncheon
« Reply #27 on: July 10, 2009, 12:16:03 am »
Hi Catherine,

Sorry to hear about your gums and poison ivy troubles and also that you won't be joining us.  I'll look forward to seeing you next time.

Debbi - Thanks for making the reservation.  I meant to call you today -- well really for the last couple of days to see if you'd made the reservation or if I should.  I had planned on calling you in the morning and left myself a note but now see it is unnecessary.  I should have known you would do it.  I'm feeling rather disorganized lately.

Thanks,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: NY/NJ luncheon
« Reply #28 on: July 10, 2009, 05:42:04 am »
Oh, Catherine - I feel for you!  Willie has been plagued with poison ivy this year (I am immune for some reason) and is just one big itchy mess.  As for gum surgery, I wouldn't wish that on anyone!  We will have a mimosa for you, though!

Wendy, know what you mean about feeling disorganized lately! 

I can't wait to see everyone tomorrow!

Deb
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jerseygirl

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Re: NY/NJ luncheon
« Reply #29 on: July 10, 2009, 02:24:10 pm »
Hi, everybody,

Sorry to say  this but I won't be able to come on Saturday because my husband has severe back problems and  I will have to help him as much as I can.  Gosh, I wish I can join you! Hopefully, next time I will be able to make it. Have a great time and take pictures.


                Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.
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