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Author Topic: My Surgery updates  (Read 20000 times)

allegro17

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My Surgery updates
« on: April 27, 2009, 06:07:41 pm »
Hi Everyone!

Just really quick.... my mom will post updates here during my surgery.  I will check into my new hotel in a bit and can't wait to have the magic scarf around my neck!  I'll post more here tonight.

There's a lot to do to get ready for surgery, apparently.

:)

Laura
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Kathy M

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Re: My Surgery updates
« Reply #1 on: April 27, 2009, 07:36:40 pm »
Good Luck to you Laura!  Cant'wait to see you on the other side.  You are in my thoughts.

Kathy
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

Kaybo

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Re: My Surgery updates
« Reply #2 on: April 27, 2009, 08:16:37 pm »
Laura~
Prayers to you & yours.  Hope you get a little rest tonight!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Keri

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Re: My Surgery updates
« Reply #3 on: April 27, 2009, 08:46:11 pm »
Hi Laura and Laura's mom,

I'm glad you and your mom are settled in. I hope that she feels support and encouragement as well from this group.
I so hope and pray everything goes well for you tomorrow! I know you're in great hands.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

jerseygirl

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Re: My Surgery updates
« Reply #4 on: April 28, 2009, 06:25:25 am »
Laura,

Best of luck to you! Hope everything works out as planned. You will look really chic with a scarf around your neck! With this type of surgery, bandaging is very small, almost like a bandaid. So you won't be able to use the magic scarf to cover it because it will be invisible to begin with!


              Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

SML

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Re: My Surgery updates
« Reply #5 on: April 28, 2009, 07:06:17 am »
Hi Laura and Laura's mom,

We wanted to let you know we are thinking about you and praying for you today.

Scarlett & Rich 
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

leapyrtwins

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Re: My Surgery updates
« Reply #6 on: April 28, 2009, 07:32:29 am »
Good luck, Laura  ;D

And many thanks to your mom for agreeing to keep us in the loop - you know how we worry.

Are you going to post pictures of yourself in the lovely magic scarf?

I'll be among the group thinking of, and praying for, you.

All the best,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tenai98

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Re: My Surgery updates
« Reply #7 on: April 28, 2009, 07:44:26 am »
Best of luck. Soon it will be behind you with recovery as your main agenda.
Jo ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

allegro17

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Re: My Surgery updates
« Reply #8 on: April 28, 2009, 07:45:27 am »
Leave it to me to be here 45 minutes before surgery :)

Just want to let you know that I also have a "the status" site:

www.thestatus.com
patient ID: Barbieri
password: marathon1

there are some updates and pics there, too.

Laura
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leapyrtwins

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Re: My Surgery updates
« Reply #9 on: April 28, 2009, 07:51:21 am »
Wow, Laura!  Thanks for the link.

I had NO idea things like this existed.  www.thestatus.com  What a concept! ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

moe

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Re: My Surgery updates
« Reply #10 on: April 28, 2009, 10:00:07 am »
Wow again, Laura!
Positive Prayers for a successful surgery and recovery.
Will keep posted.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

NancyMc

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Re: My Surgery updates
« Reply #11 on: April 28, 2009, 10:27:53 am »
Checked out the website and looking forward to reading that you are on the other side of the procedure.
Hang in there, Mom and Dad!
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

allegro17

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Re: My Surgery updates
« Reply #12 on: April 28, 2009, 11:40:35 am »
Laura went into surgery this morning at 10:30.  There's about an hour prep in the OR, and then about 3 hours for the procedure.   I will keep you all updated as best I can.   Thanks for all the prayers and support!   

Rhona, Laura's mom
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Keri

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Re: My Surgery updates
« Reply #13 on: April 28, 2009, 11:52:38 am »
Hi Rhona,
I met Laura last week in Boston. We went to the AN brunch together. I think that it was great for her to see so many people who were recently post op doing well. Monday I parked myself on the final stretch of the marathon course and looked for my husband, friends and Laura. I never saw her (though I know she ran right by - just difficult with so many). She did so well! The experience made me wish I could qualify - what great crowd support!

We will be praying for Laura and you today as you wait.
Oh, I drove her around Boston, through the tunnels, etc. What an experience! If she survived that with me, brain surgery should be a piece of cake!

Take care, and thank you for posting. In the short time we've known Laura, we've come to admire her and care about her.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

anissa

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    • My Journey
Re: My Surgery updates
« Reply #14 on: April 28, 2009, 11:55:49 am »
Best wishes Laura, I'll be keeping up with updates. 
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"
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