Author Topic: Debbi Bifulco Update  (Read 113479 times)

WAB

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Debbi Bifulco Update
« on: April 30, 2008, 08:51:22 am »
Debbi asked that I keep all her online buds up to speed.  Can't imagine how much more difficult it would have been had you all not been there for her.  We arrived in NYC yesterday afternoon with her folks and had a nice dinner with one of Debbi's friends.  Off to the hotel and in bed early enough to watch some mindless American Idol.  Not much sleep happening, so we both drifted in and out until about 5am.  Found ourselves at NYU at 6am - would have been there sooner, but I think I was slowing Debbi down a little.  Not sure her feet actually touched the ground - to say the least, Debbi was anxious to throw down with "Ethel" once and for all.

She was (is) in great spirits and only wanted the admitting process to go quicker.  After about 230 trips to the bathroom and a visit from many nurses, doctors, etc... we were all pretty much in waiting mode.  Because this is a teaching hospital, many very young people in scrubs were schooling by the OR room, which is close to where we were in a side room, anxiously awaiting their next real cool experience.  I'm sure that they were all very good doctors, but as an old, married guy, my perspective is a lttle off.

Debbi was then escorted, on foot, towards the very "ER-like" metal OR doors.  Not sure, but it appeared that the nurse was having a hard time keeping up with her.  Although we watched her walk away, we could see she had a lot to say to the nurse that was al least a good two steps behind her -

Debbi boldly walked into the ER at about 8:30am (EST) and we don't expect to hear anything until noon or 1pm.  I'll keep responding to this string periodically.  Thank you all for your support and well wishes.

WAB

ppearl214

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Re: Debbi Bifulco Update
« Reply #1 on: April 30, 2008, 08:56:36 am »
thank you, thank you W, so very much for this update!!!  That's our girl... walked in by her own accord, head held high! Good for her!  Cheering her on and will sit tight for the updates. Now, W, you need to take care of yourself in the meantime. Maybe a little bite for lunch, a walk outside (we know its a nice one here today on the "good" side of the NE Coast)... and most of all (but difficult to do), try to relax.  We know she's in fab hands there and am throwing in healing wishes, huggles for wellness and feeling lots of good vibes to help the cause (as well as pirate socks... not sure if she told you about that yet).

Hang in there... will check back for updates.

Yeppers, that's our girl.... so dang proud of her!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kaybo

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Re: Debbi Bifulco Update
« Reply #2 on: April 30, 2008, 09:21:13 am »
Willie~
Thanks for the update -- I have been praying for you guys all morning.  I have always said that I had the easy part...I just laid there...it was my family and friends who had it so rough waiting (at least you don't have a 14 hour wait like mine did!).  I know you will keep us posted.  My sweet hubby would tell you to just remember that this whole AN thing takes time and to be PATIENT for the long haul!! 

Stil praying,
Kl
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

jtd71465

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Re: Debbi Bifulco Update
« Reply #3 on: April 30, 2008, 09:58:59 am »
Willie-

She is in great hands.  I look forward to speaking with her next week. 


Joe-

Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

LADavid

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Re: Debbi Bifulco Update
« Reply #4 on: April 30, 2008, 10:00:56 am »
Thanks for the update Willie.  Sounds like Debbi went in with the right attitude.  She'll do great.  It won't be long now before she's back in ICU and looking for ice chips.  Tell her we all said hi.

My prayers are with you.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

wendysig

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Re: Debbi Bifulco Update
« Reply #5 on: April 30, 2008, 10:02:59 am »
Willie - Although Debbii and i just recently met on this site, I want to send along my good wishes to both of you.  She is one of the firtst people I "spoke to" here and was very kind and helpful.  I'll be thinking of both of  you today.  Thanks for the update.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Mary 117

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Re: Debbi Bifulco Update
« Reply #6 on: April 30, 2008, 10:20:44 am »
I'm thinking of Debbie and sending lots of postive energy your way. She sounds strong and determined and thats a great attitude to have. Thanks for the updates.

Have strength!
Mary
2cm x 1.5cm AN, Middle Fossa, Dr. Brackmann  05/24/05
Mild hearing loss, mild facial weakness, no balance issues

"well behaved women seldom make history"

nyartist

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Re: Debbi Bifulco Update
« Reply #7 on: April 30, 2008, 10:22:50 am »
Willi

thanks for the update. My honey Nancy is due in for surgery this coming Monday with the same doctors and the same place. We are looking at one more MRI reading tomorrow before deciding what to do. We are particularly interested in how well Debbi does. I'm sure she'll do great and will be fine!

Pooter

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Re: Debbi Bifulco Update
« Reply #8 on: April 30, 2008, 02:19:41 pm »
Thanks for the update, Willi.  I've been thinking about Debbi and her surgery all day.  Mine is next Thursday.  She's the first in a line of 5-6 of us that are having treatments (surgery or otherwise) over the next 10 days or so.  I'm not surprised she was beating everyone to the OR. 

When you see her and talk to her, give her our best...

Regards,

Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

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lori67

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Re: Debbi Bifulco Update
« Reply #9 on: April 30, 2008, 02:33:16 pm »
Willi -

Thanks for the updates on Debbi.  We are all thinking about her and sending good vibes her way!  And yours too!

Tell her hello - from a fellow Jersey girl!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Debbi Bifulco Update
« Reply #10 on: April 30, 2008, 02:48:31 pm »
Willie -

I echo the sentiments of everyone else here.  Thanks for taking the time to update us - we look forward to more updates - and please tell Debbie she is in our thoughts.

We are all hoping for the best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

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WAB

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Re: Debbi Bifulco Update
« Reply #11 on: April 30, 2008, 04:00:54 pm »
Willie here again at 5:40pm.  Debbi is out of surgery and currently in Recovery until about 6pm.  Her surgery took approx 5.5 hours.  We were able to see her for a couple of minutes, but expect to see more of her once they release her to NICU where she'll stay for at least a day before transitioning to her room.  Dr. G suggested she most likely will go home either Saturday or Sunday.

Although I don't know how much she'll remember, she was aware of everything.  She had head pain and some in her stomach as well.  Although as recently a this week, there was some brief discussion around having retro sig instead of Translab, but she stayed the course with Translab.  Dr. G. suggested afterwards that it was the right decision based on what they found.  He was able to get most of the tumor out and only left a little on the facial nerve.  Dr. G. didn't believe at this point that there was anything to be concerned about in terms of it coming back as a result of this decision and this is what Debbi would have wanted as well.

Debbi has some minor numbness on her right side, but Dr. G believes it should go away in 4-5 months as the nerve monitoring proved that she had a good signal throughout the nerve.  She's able to close her eye and will no doubt get much better as the swelling goes down.

I'm sure Debbi will want to get online just as soon as she can and fill you all in on everything.  I'll share with her all your best wishes - it will mean so much to her as it does to all of us.

Thank you all again.
WAB 

Tamara

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Re: Debbi Bifulco Update
« Reply #12 on: April 30, 2008, 04:02:37 pm »
Thanks for posting - Debbi was in my thoughts and prayers too today.  Just got your update as I was posting...Yay Debbi!

Hugs,
Tamara
7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

AJ

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Re: Debbi Bifulco Update
« Reply #13 on: April 30, 2008, 04:13:09 pm »
Way to go Debbi!  So glad to hear that all went well without complications.  Wishing you a speedy recovery, but don't rush it  ;D

Thanks to your hubby, for keeping us updated.
2.5cm AN diagnosed 3/25/08 Barrow Neurological Institute, Phoenix, AZ
Some hearling loss in right AN ear.
Slight Tinnitus and slight imbalance.
CK scheduled for May 28th! Woohoo!

LADavid

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Re: Debbi Bifulco Update
« Reply #14 on: April 30, 2008, 04:22:26 pm »
Yea Debbi!  You did it.  Welcome to the postie side of the world.  On to a speedy and a healthy recovery  And thank you Willie for the update.

And Melissa, Brian, Kimberly, and Tammera (did I miss anyone?) --  Debbi just kicked off the month with success.  Follow her lead and you'll all be fine.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments