Age of AN patients: UPDATE with data and names thru post 126 p 9

[TP]

Pain started in my neck and arm at age 46, age 47 (about one year later) experienced hearing loss and was diagnosed with 4cm on brainstem and surgically removed within 3 weeks. Last two MRIs show about .5x.3 cm remain and just monitoring.

I DO not have night sweats but actually find the exact opposite since my surgery. I constantly turn the thermastat up only to find my husband gets up at night and turns it down.   

[marie]

Was diagnosed with large AN the day after my 30th birthday November, 1967.  Surgically removed on December 14,1967.
Recurrant tumor discovered about 1983, removed in November, 1987.
Recurrant tumor discovered and removed in 1991.
Second-side tumor discovered in 1993--watching and waiting with annual MRIs.

Yes, (I can't believe it) I'll be 70 ion November 23.

Just goes to show you that you can live a long and oterwise health life while dealing with this thing that won't let you alone.

[matti]

diagnosed in 1998,  age 40 - 3.5 cm

Cheryl

[Angieshubbie]

I was 31, when AN was found 3+ cm on right side, pressing on brainstem.  I started to notice things when I was about 6 months along with my 2nd daughter.  Mother of 7 & 6 year old girls.  My doctor said that it had been there for about 6 to 7 years or up to 10 years.  At first, they thought that I may have the start of MS.  It will be a year in Aug since surgery.  Total hearing loss on right side.

Angie

[rezski]

1.2 x .6 at age 57 2 years ago.  No growth last year and my annual MRI is next week.  I have had no symptom changes so far.

[lifeisgood]

Diagnosed at 39 (10 days before my 40th bday)
Tumor size 3.4 cm
Surgery 2 months later showed 4.0 cm at it's largest point.
I am not sure about the hormonal debate.  I had another child POST tumor and each MRI indicated no tumor recurrance.  I breastfed for 1 year.

Interesting info.
Mary

[amymeri]

Diagnosed at age 38 with a 4 cm AN.

[marg]

Diagnosed at age 52        AN size 4mm............   removed May 14, 2007  ( 2 weeks ago tomorrow ) tangled in facial nerve and balance nerve.

Margaret

[amylynn]

I was diagnosed at 35.  Had translab 2 months later 3cm.  I am now 7 months post op and am contemplating having a second child.

[Taylor]

Diagnosed at 17 with a 4.8 cm.... jeez was i really 17 then?!

i'm very envious of chelsea by the way... she looks so good..

[GM]

Originally 1.8 cm...swelled to 2.1 after GK    I was 42 years old...(male)

Found June 2003, treated November 2003

Gary

[ChelseaR]

taylor i absolutely LOVE you!!
you are SUCH a sweetheart!!
you look amazing!
i think we should have a party to celebrate how well everyone is doing.

i was diagnosed at 17 with a 6 cm.

i hope everyone is doing GREAT 

[marystro]

Diagnosed at 50 years old - 2.2 cm.  As Mark said two days after my diagnosis - this is "garden variety" AN that you are having... lol

This is a great poll.  Can't wait to see the graph...

- Mary

[Mark]

Hi Mary,


Good to hear from you although you always top me with travel stories. I thought going back and forth from SF to Ft Lauderdale every week for the last 4 months was a winner and then you talk about a jaunt to Bombay, unbelievable 

Did I really call it a "garden variety" AN? I'm not that poetic, I must have stolen that phrase from someone 

Mark

[Martin]

age 50, 2.3 cm

Martin