Author Topic: Age of AN patients: UPDATE with data and names thru post 126 p 9  (Read 36409 times)

Pembo

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Re: Age of AN patients
« Reply #15 on: May 23, 2007, 06:22:03 pm »
I agree about the hormones. If the tumor was there 10-15 years before it was discovered, I had 3 pregnancies in that time, each one I was more and more tired and by the third I could barely function for all the tiredness.
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

linnilue

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Re: Age of AN patients
« Reply #16 on: May 23, 2007, 06:35:26 pm »
I was dx'd @ 49 just 6 weeks shy of my 50th.  Happy Birthday.....
Left AN dx. 11/05 Linac radiosurgery 01/06 Burlington, VT for a 9mm x 5mm tumor.  No necrosis yet (2 yrs. post-op).  Multiple post radiosurgery complications, some permanent.  Have radio-oncologist here.  Now see Dr. McKenna, Mass. Eye & Ear Instit., Boston for flollow-up care as my main An doctor.

kss4luck

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Re: Age of AN patients
« Reply #17 on: May 23, 2007, 07:14:53 pm »
I was 51 when dx. 2.1 cm successful removal by labrynth(?). I have a question regarding hormones. It seems since my surgery I'm waking up every couple hours with night sweats. I wonder if surgery and menopause could be related?  Any ideas or is this coincidence.

CE

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Re: Age of AN patients
« Reply #18 on: May 23, 2007, 07:17:12 pm »
1 month shy of 27 at diagnosis of 2.2cm AN -- not an NF2 patient

(now I'm 3 years post-Cyberknife treatment and doing great! :))

BeJoi

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Re: Age of AN patients
« Reply #19 on: May 23, 2007, 07:18:58 pm »
Age 48, lopsided hearing loss was the one and only symptom, tumor has been described as anywhere between .9 and 1.9 cm.

linnilue

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Re: Age of AN patients
« Reply #20 on: May 23, 2007, 08:40:50 pm »
I was 51 when dx. 2.1 cm successful removal by labrynth(?). I have a question regarding hormones. It seems since my surgery I'm waking up every couple hours with night sweats. I wonder if surgery and menopause could be related?  Any ideas or is this coincidence.
  I too wake up with night sweats but it can't be menopause becasue I had a hsyterectomy many years ago and have been on HRT since then.  I'm glad to hear someone else with this same c/o.  I wonder why this happens.  I'd love to hear if others have also experienced this.
Left AN dx. 11/05 Linac radiosurgery 01/06 Burlington, VT for a 9mm x 5mm tumor.  No necrosis yet (2 yrs. post-op).  Multiple post radiosurgery complications, some permanent.  Have radio-oncologist here.  Now see Dr. McKenna, Mass. Eye & Ear Instit., Boston for flollow-up care as my main An doctor.

Obita

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Re: Age of AN patients
« Reply #21 on: May 23, 2007, 08:45:28 pm »
Diagnosed 3 mo. after my 50th.......happy birthday to me too.  Probably had it at least 16 years before diagnosis.

kiss4luck:  maybe all the steroids, anesthesia, surgical shock to your system etc...or just your time.  Estroven got me through my surgical menopause night sweats.  Now, no more Estroven, no night sweats and hot flashes only when I get stressed because I can't hear.  No pregnancies or HRT .........Good luck!!

Mark:  Thanks for all that info.  Very interesting stuff.

Pembo:  Thanks for starting this -
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Lainie181818

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Re: Age of AN patients
« Reply #22 on: May 23, 2007, 09:49:21 pm »
I was 53 when my 1.7 cm Little bugger was found. Interesting thought, whilst linking this with hormones I wonder if Menopause has anything to do with it. Can't help but notice a lot of us gals are similar in age.
Lainie.

Dantheman

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Re: Age of AN patients
« Reply #23 on: May 23, 2007, 09:50:36 pm »
I was three months shy of 44 years old and diagnosed with a 1.7 cm AN.
Diagnosed 12/08/2006. 1.7 cm Right Side AN.
Trans-lab performed on 02/13/2007 by Dr. Lawrence Meiteles and Dr. Raj Murali at Westchester Medical Center, Valhalla, N.Y.
TransEar worn since 4/17/07.

Gabbie

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Re: Age of AN patients
« Reply #24 on: May 24, 2007, 12:39:12 am »
weighing in on the age thing.....age 37 at diagnosis of 3cm tumor. now 10 months post surgical removal. total hearing loss of the affected side.

kat

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Re: Age of AN patients
« Reply #25 on: May 24, 2007, 04:39:04 am »

Diagnosed age 56  2.2 cm AN .

Regards Kat
2.2 cm AN diagnosed July 2004 . GK at  the Royal Hallamshire
Sheffield UK in April 2005 2nd MRI in December 06 showed signs of the AN shrinking and MRI in FEB 08 showed no change . SO FAR SO GOOD .

Ellenmn

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Re: Age of AN patients
« Reply #26 on: May 24, 2007, 05:43:55 am »
First time it was found I was 49.

Bigbear

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Re: Age of AN patients
« Reply #27 on: May 24, 2007, 06:20:14 am »
Age 54, diagnosed April 07, ~4mm

Who, pray tell, is compiling these results from our respondents (asked the engineer?)

Peace

Pembo

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Re: Age of AN patients
« Reply #28 on: May 24, 2007, 10:21:35 am »
Okay so far the bulk of the respondents are in their 40's and 50's but we haven't heard from the mom's of the teens yet.
« Last Edit: May 24, 2007, 10:27:05 am by Pembo »
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

tuckerro

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Re: Age of AN patients: UPDATE with data so far
« Reply #29 on: May 24, 2007, 01:03:05 pm »
Diagnosed at age 34, surgery at age 35.
----------------------------------------------------
14x7 mm Left Acoustic Neuroma
Middle Fossa
House Ear Clinic
Dr. Derald Brackmann, Dr. William Hitselberger
September 26, 2006