ANA Discussion Forum
General Category => AN Issues => Topic started by: Pembo on May 23, 2007, 01:13:43 pm
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Post your age and size of tumor at diagnosis. I apologize for any errors...blame it on my AN! :)
I started....Discovered at age 35, 4 cm.
thru post 126
16 6 krmilmont
17 6mm coloradokidd
17 4.8 Taylor
17 6 chelsmom/ChelseaR
18 4.5 robynabc
21 2 Clifton
21 5.3 Chrissmom/Chris
25 6 jerseygirl
26 1.2 jwh
27 2.2 CE
27 3.2 Juliette
28 8 mm Kristin
28 3.5 lori78
29 1.4 mindyandy
30 3 cheza
30 ? marie
31 3 Angieshubbie
32 1 zjane
32 2 webwrestler
33 9mm chica07
34 14mm Tuckerro
34 1 candtlaw
34 1 krbonner
35 4 Pembo
35 18mm danijake
35 3 amylynn
35 1 JillMarie
37 3 Gabbie
38 1.7 carmeng
38 3.5 jacobs
38 4 amymeri
38 4 Patti
38 1.5 Dealy
38 1.2 RICE522
39 3.4 lifeisgood
39 4 mm targa72e
39 7 mm lthompson
40 8mm lthompson
40 3 kippy6
40 3.5 matti
41 8 satman
41 1.0 jtd71465
41 2 Mary 117
41 2.7 Pable
42 1.8 GM
42 3.5 jeanlea
42 2 cookiesecond
43 1.5 Denisex2boys
43 3.5 Victoria1999
44 2 Cheryl
44 4 4 cm in Pacific Northwest
44 1.7 Dantheman
44 2 Mark
44 7mm ppearl214
44 1 jcinma
45 1.5 leapyrtwins
46 3.2 1wareagle
46 1.7 Dan
46 4 TP
48 1.1 Raven
48 1.3 Arushi
48 .8 Raven
48 1.9 Bejoi
48 1 Betsy
49 ? Ellenmn
49 1.5 Arushi
49 2 mm Susie
49 2.0 Peggy
49 ? niknyu
49 1.2 CherylR
50 2.2 marystro
50 1 MLB57
50 2.3 Martin
50 2.5 Obita
50 2 nancyann
51 2.1 kss4luck
51 2 johnsli
51 1.5 sloxana
51 4mm CherylR
51 2 cm Kenn
52 4 mm marg
52 3 cm jcinma
52 1.5 yoga52smh
52 4 mm vcschaub
52 2 TT
52 1 JLang
52 2 hhb
53 1.7 Lainie 181818
53 2 cm CherylR
54 3.5 Brendalu
54 4mm Bigbear
54 9 mm Evelia
55 7 deea
56 2.2 kat
56 9 mm RED in Palacios
56 2.5 Darcy
56 1.1 elliemae
56 2.5 Dealy
57 8mm mema
57 1.5 Dana
57 1.2 rezski
59 ? Catflower
59 1.2 wwalker
59 11 mm Jackie
60 2.6 nearl r. lyons
60 2 Sue
63 4.5 Jim Scott
62 4mm mhs
63 1.2 Lamsue23
63 1 okjesandy
64 1.5 aardvark
64 2 Boppie
67 1.7 Featofclay
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This could prove interesting. Diagnosed at 56 years of age. 9mm X 3.6 mm. Just for more info, total hearing loss on effected side.
Richard
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Diagnosed 12 days after my 60th birthday. Medium sized 2cm AN.
Sue in Vancouver
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Diagnosed 2 months ago at age 62 with 4mm AN (currently waiting and watching as per Dr. Rick Friedman at House); no symptoms from tumor discovered by accident from MRI to diagnose 7 months of lightheadedness and debilitating leg "weakness" after sudden collapse.
mhs in south carolina
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38 years old-4cm.
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@ the time Age 54 9mm left side
eve
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Diagnosed at age 64 - 2cm
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Actually, there have been studies done on AN ages although I can't think where I've seen them right at the moment. As I recall, most AN's are discovered in the 5th, 6th and 7th decade (40's, 50's , 60's). Given that the majority are over 1 cm at the time of diagnosis and the average growth is 2 mm / year, one could say they typically start in the 30's and 40's. I would be willing to bet that an informal poll here would show a graph that is low up to 30 then begin to rise with the top being between 40-60 and then decreasing. It'll be interesting to see.
I'll throw my stats in age 44 size 2 cm
Mark
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I refuse to be any older than... *coff*... 25 :D
(diagnosed at age.... oy.... 44, at time of diagnosis, 7mmx4mm)
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Diagnosed age 50 - 2CM
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Here's a couple of tidbits from a google search on age and AN's
from a noise study:
Of the 146 people with acoustic neuroma in this study, nearly two out of three were 50 or older.
from a NYU study
Age: 30-60 (Average age of diagnosis is 50)
From the Harvard Medical School:
These tumors have been linked to a mutation in a protein that regulates tumor suppression. In most cases the tumor grows only on one side of the head and is diagnosed between the ages of 30 and 50. Acoustic neuromas in children are very rare. People with a hereditary disease called neurofibromatosis type 2 develop bilateral acoustic neuromas because they lack the tumor suppressor protein merlin. About 10% of all acoustic neuromas occur in people with neurofibromatosis.
and here's a bonus from the same study for the wait and watchers who wonder how many stop growing after discovery:
At least 10% of acoustic neuromas do not show signs of growth after they are found. Since the tumor is very slow-growing and benign, having a follow-up MRI scan and an audiogram in 6 and 12 months is a safe alternative to immediate intervention. If no changes are found, yearly checkups afterward are adequate to monitor the tumor. If the tumor does not show signs of growth, intervention is not necessary. The risk of this approach is that permanent hearing loss can occur during this observation period.
If the tumor shows signs of growth or is pressing on the brainstem, radiation or surgery are necessary. The choice between the two depends upon a lot of factors best discussed with your surgeon and radiation oncologist. Factors such as size and location of the tumor, related health issues, age, and hearing loss all need to be considered.
Here's an excellent article from the congress of Neurosurgeons. I'll paste the age part, but attach the link as it might be useful for those considering the surgery results aspect
http://book2.neurosurgeon.org/?defaultarticle=&defaultnode=2693&layout=22&pagefunction=Load%20Layout&formfields[skip]=1
The case-mix of each hospital group was explored for differences in patient sex, race, and age at surgery. As expected for an acoustic neuroma patient sample, there were nearly equal numbers of men and women (48 and 52%, respectively) in the total sample and across hospital groups. The sample was 86% white. Group 1 had significantly fewer white patients (79%) relative to Groups 2, 3, and 4 (÷2; P < 0.01). The mean age at surgery was 50.6 years for the entire sample, typical of acoustic neuroma patients. The mean age at surgery differed across the hospital groups, with Group 4, on average, conducting procedures on somewhat younger patients (47.7 years; univariate analysis of variance; P < 0.01). Overall, just 5% of the entire sample was older than 75 years. Groups 1, 2, and 3 tended to operate on more patients older than 75 years than Group 4 (P < 0.01; ÷2).
Nearly 70% of the sample presented without a comorbid condition, typical of the otherwise healthy acoustic neuroma patient. The most frequently reported comorbidity was “unspecified hypertension� (13% of entire sample), followed by “other nervous system disorders� (7% of the entire sample). All other comorbidities examined ranged from 0.8 to 3% of the entire sample. Some patients reported with multiple comorbidities. Forty percent of the patients in Groups 1 and 2 reported at least one comorbidity, whereas in Groups 3 and 4, 25% of the patients reported comorbidities.
Here's one that includes NF2 having a much younger onset from caremark Health resources:
A person with NF2 will develop an acoustic neuroma if the remaining unchanged NF2 gene becomes spontaneously changed or missing in one of the myelin sheath cells of their vestibular nerve. People with NF2 often develop acoustic neuromas at a younger age. The mean age of onset of acoustic neuroma in NF2 is 31 years of age versus 50 years of age for sporadic acoustic neuromas. Not all people with NF2, however, develop acoustic neuromas. People with NF2 are at increased risk for developing cataracts and tumors in other nerve cells.
Most people with a unilateral acoustic neuroma are not affected with NF2. Some people with NF2, however, only develop a tumor in one of the vestibulocochlear nerves. Others may initially be diagnosed with a unilateral tumor but may develop a tumor in the other nerve a number of years later. NF2 should be considered in someone under the age of 40 who has a unilateral acoustic neuroma. Someone with a unilateral acoustic neuroma and other family members diagnosed with NF2 probably is affected with NF2. Someone with a unilateral acoustic neuroma and other symptoms of NF2 such as cataracts and other tumors may also be affected with NF2. On the other hand, someone over the age of 50 with a unilateral acoustic neuroma, no other tumors and no family history of NF2 is very unlikely to be affected with NF2.
and for those who were interested in the affect of age on surgery outcomes here is a study from Dr. Jackler et all at UCSF:
The effect of age on acoustic neuroma surgery outcomes.
Oghalai JS, Buxbaum JL, Pitts LH, Jackler RK.
Department of Otolaryngology- Head and Neck Surgery, University of California San Francisco, California 94143-0342, USA. oghalai@itsa.ucsf.edu
OBJECTIVES: To ascertain the effect of age on hearing preservation, facial nerve outcome, and complication rates after acoustic neuroma surgery. STUDY DESIGN: Retrospective chart review. Two study arms were used: a comparison of the authors' oldest patients with their youngest patients (extremes of age arm) and an analysis of all middle fossa surgical procedures (middle fossa arm). SETTING: Tertiary referral center PATIENTS: Total of 329 patients. For the extremes of age arm, 205 patients were studied in two cohorts with 150 older patients (>60 years) compared with 55 younger patients (<40 years). The approaches included 21 middle fossa (MF), 38 retrosigmoid (RS), and 91 translabyrinthine (TL) procedures in the older group versus 25 MF, 17 RS, and 13 TL in the younger. For the middle fossa arm, there were 170 patients (age range 15-76 years) who underwent the MF approach for an attempt at hearing preservation. MAIN OUTCOME MEASURES: Hearing preservation was defined as the maintenance of either class A or class B hearing (AAO-HNS class). Good facial nerve outcome was considered the maintenance of either grade 1 or 2 (House-Brackmann scale). Cerebrospinal fluid leak rates and other postoperative complications were also tabulated. RESULTS: After adjustment for tumor size and surgical approach using multiple logistic regression analysis, the extremes of age study arm demonstrated that there is a lower chance of preserving good hearing in older patients (p = 0.048, odds ratio = 0.30). Age was not associated with a difference in the rate of good facial nerve outcome (p = 0.2). There was a trend toward slightly higher rates of cerebrospinal fluid leak in the older patient group (p = 0.07) but no difference in the rate of other complications (p = 0.9). The middle fossa study arm, after adjustment for tumor size and surgical approach, demonstrated that older patient age is associated with a lower rate of preservation of good hearing (p = 0.01, O.R.=1.044). There was no association between age and good facial outcome (p = 0.7). CONCLUSIONS: Older patient age lowers the chance of hearing preservation but does not affect facial outcomes. There is a trend toward a higher rate of cerebrospinal fluid leak in older patients, but no increased risk of other complications.
and finally for those who want to know how "special" we all are, here's a Medtv analysis:
Unilateral acoustic neuroma affects only one ear. Unilateral acoustic neuroma accounts for approximately 8% of all tumors inside the skull. One out of every 100,000 individuals per year develops an acoustic neuroma. Symptoms may develop at any age, but usually appear between the ages of 30 and 60. Unilateral acoustic neuroma is not a hereditary condition.
Isn't google wonderful, enjoy ;D
Mark
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I was diagnosed with a 1.8cm AN at 34. Although there is no research available to support my theory, I believe my two pregnancies and two years of breastfeeding in the few years prior to diagnosis accelerated my symptoms, and therefore my diagnosis (not that the hormones contributed to the original tumor development, but that they contributed to a faster-than-average growth that made me symptomatic earlier than many).
Katie
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Age 48 at diagnosis, about 1cm.
Good info, Mark!
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Age 52, 4 mm. Grew 2 mm in 18 months. Had middle fossa at 54. Good hearing outcome.
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Age 44 1cm.
Age 52 3cm. reoccurrence
Like Katie I believe hormones (ingested tons for fibroid issues) contributed to the rapid growth rate of the reoccurrence
Jane
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I agree about the hormones. If the tumor was there 10-15 years before it was discovered, I had 3 pregnancies in that time, each one I was more and more tired and by the third I could barely function for all the tiredness.
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I was dx'd @ 49 just 6 weeks shy of my 50th. Happy Birthday.....
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I was 51 when dx. 2.1 cm successful removal by labrynth(?). I have a question regarding hormones. It seems since my surgery I'm waking up every couple hours with night sweats. I wonder if surgery and menopause could be related? Any ideas or is this coincidence.
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1 month shy of 27 at diagnosis of 2.2cm AN -- not an NF2 patient
(now I'm 3 years post-Cyberknife treatment and doing great! :))
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Age 48, lopsided hearing loss was the one and only symptom, tumor has been described as anywhere between .9 and 1.9 cm.
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I was 51 when dx. 2.1 cm successful removal by labrynth(?). I have a question regarding hormones. It seems since my surgery I'm waking up every couple hours with night sweats. I wonder if surgery and menopause could be related? Any ideas or is this coincidence.
I too wake up with night sweats but it can't be menopause becasue I had a hsyterectomy many years ago and have been on HRT since then. I'm glad to hear someone else with this same c/o. I wonder why this happens. I'd love to hear if others have also experienced this.
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Diagnosed 3 mo. after my 50th.......happy birthday to me too. Probably had it at least 16 years before diagnosis.
kiss4luck: maybe all the steroids, anesthesia, surgical shock to your system etc...or just your time. Estroven got me through my surgical menopause night sweats. Now, no more Estroven, no night sweats and hot flashes only when I get stressed because I can't hear. No pregnancies or HRT .........Good luck!!
Mark: Thanks for all that info. Very interesting stuff.
Pembo: Thanks for starting this -
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I was 53 when my 1.7 cm Little bugger was found. Interesting thought, whilst linking this with hormones I wonder if Menopause has anything to do with it. Can't help but notice a lot of us gals are similar in age.
Lainie.
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I was three months shy of 44 years old and diagnosed with a 1.7 cm AN.
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weighing in on the age thing.....age 37 at diagnosis of 3cm tumor. now 10 months post surgical removal. total hearing loss of the affected side.
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Diagnosed age 56 2.2 cm AN .
Regards Kat
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First time it was found I was 49.
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Age 54, diagnosed April 07, ~4mm
Who, pray tell, is compiling these results from our respondents (asked the engineer?)
Peace
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Okay so far the bulk of the respondents are in their 40's and 50's but we haven't heard from the mom's of the teens yet.
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Diagnosed at age 34, surgery at age 35.
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Diagnosed age 51 2CM on a wait and watch, and by the way the night sweats are back with a vengence. Had them when I was 45 to 48 and they stopped. But, boy are they back now. So bad, they wake me from a deep sleep. And it really is hard for me to sleep right now.
Lol
Laura
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Diagnosed with 6x3x3 cm right side AN at age 25 in 1988. Another surgery pending for regrowith.
Eve
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O.K., I'll play.....diagnosed with a 4.5 cm AN at age 63.
Jim
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Diagnosed at 26 with a 1.2 cm AN - surgery at 27. Regrowth discovered a couple of months ago at age 33 size 9 mm.
At 28 years old tons of night sweats for about a year! Went to the doctor couldn't explain it.
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49 with right sided AN in 2001 1.2 cm mid fossa
51 with left sided AN in 2003 4mm but now 11 mm in Jan 2007 and W&W
53 with right sided facial neuroma March 2006 translab ? 2cm
Cheryl R
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Diagnosed at age 41, 2.7 cm due to recurrent sudden hearing loss. Same symptom I had once 13 years ago and ignored.
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NF2- Age 38-1.5CM -removed surgically- no problems in 1988- 2nd one Age 56-2.5 CM-FSr Radiation in 2006_Ron
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I was 42 when diagnosed with 2+ cm An. I had surgery 5 months later.
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Daughter diagnosed last year at 17 years old- 6cm. I have noticed that almost all the teens on this board have 4+ cm when diagnosed. Just wonder why they are so young with such large AN's??? I think this would be a very interesting research project. Michelle
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32, male, 2cm x cm, removed may 1, 2007 translab approach
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Hi, I'm a newbie here...diagnosed at age 56 one year ago, 1.1 cm with small growth to 1.3 cm as of 4/07, so watching and waiting...
Originally discovered because I thought my hearing loss was related to my MS and had an MRI, which disclosed this wonderful addition to my ailments. (After one year, hearing is gone in the affected ear).
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Diagnosed at age 57, 8mm. Hearing loss happened then, but I had bouts of vertigo for four years prior. Even had an MRI (without contrast) at age 53 for the vertigo. So did I have it then and thats what caused the vertigo? I guess I'll never know.
mema
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I was diagnosed at age 42 with a 3.5 cm tumor. My only symptom was mild hearing loss in one ear. No other noticable symptoms.
Jean
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I was diagnosed with a 3.2cm AN at age 46 and 3 mts later had it removed by translab. I first had slight hearing loss, went to doctor with no luck. Two years passed and I started to get so dizzy at times. Went to another doctor and nothing found. Two more years passed and I went to another doctor to get a hearing aid for the one ear. That's when the doctor did a MRI and found the AN.
Ellis
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I was diagnosed May of 1992 with a 1 x 0.5 x 0.5 cm mass. I was 35 at the time. They said it was an AN but the surgeon later found it to be a Facial Nerve Tumor. My hearing loss was first recorded in first grade so I had the tumor for at least 28 years!
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Pain started in my neck and arm at age 46, age 47 (about one year later) experienced hearing loss and was diagnosed with 4cm on brainstem and surgically removed within 3 weeks. Last two MRIs show about .5x.3 cm remain and just monitoring.
I DO not have night sweats but actually find the exact opposite since my surgery. I constantly turn the thermastat up only to find my husband gets up at night and turns it down. :D
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Was diagnosed with large AN the day after my 30th birthday November, 1967. Surgically removed on December 14,1967.
Recurrant tumor discovered about 1983, removed in November, 1987.
Recurrant tumor discovered and removed in 1991.
Second-side tumor discovered in 1993--watching and waiting with annual MRIs.
Yes, (I can't believe it) I'll be 70 ion November 23.
Just goes to show you that you can live a long and oterwise health life while dealing with this thing that won't let you alone.
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diagnosed in 1998, age 40 - 3.5 cm
Cheryl
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I was 31, when AN was found 3+ cm on right side, pressing on brainstem. I started to notice things when I was about 6 months along with my 2nd daughter. Mother of 7 & 6 year old girls. My doctor said that it had been there for about 6 to 7 years or up to 10 years. At first, they thought that I may have the start of MS. It will be a year in Aug since surgery. Total hearing loss on right side.
Angie
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1.2 x .6 at age 57 2 years ago. No growth last year and my annual MRI is next week. I have had no symptom changes so far.
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Diagnosed at 39 (10 days before my 40th bday)
Tumor size 3.4 cm
Surgery 2 months later showed 4.0 cm at it's largest point.
I am not sure about the hormonal debate. I had another child POST tumor and each MRI indicated no tumor recurrance. I breastfed for 1 year.
Interesting info.
Mary
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Diagnosed at age 38 with a 4 cm AN.
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Diagnosed at age 52 AN size 4mm............ removed May 14, 2007 ( 2 weeks ago tomorrow ) tangled in facial nerve and balance nerve.
Margaret
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I was diagnosed at 35. Had translab 2 months later 3cm. I am now 7 months post op and am contemplating having a second child.
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Diagnosed at 17 with a 4.8 cm.... jeez was i really 17 then?!
i'm very envious of chelsea by the way... she looks so good..
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Originally 1.8 cm...swelled to 2.1 after GK I was 42 years old...(male)
Found June 2003, treated November 2003
Gary
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taylor i absolutely LOVE you!!
you are SUCH a sweetheart!!
you look amazing!
i think we should have a party to celebrate how well everyone is doing.
i was diagnosed at 17 with a 6 cm.
i hope everyone is doing GREAT :)
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Diagnosed at 50 years old - 2.2 cm. As Mark said two days after my diagnosis - this is "garden variety" AN that you are having... lol
This is a great poll. Can't wait to see the graph...
- Mary
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Hi Mary,
Good to hear from you although you always top me with travel stories. I thought going back and forth from SF to Ft Lauderdale every week for the last 4 months was a winner and then you talk about a jaunt to Bombay, unbelievable :o
Did I really call it a "garden variety" AN? I'm not that poetic, I must have stolen that phrase from someone :D
Mark
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age 50, 2.3 cm
Martin
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Hi Mark,
Yes, you did call it a "garden variety" AN. That is the only comment I can remember precisely as the rest of them are a blurr when I was so devastated then. Your comment was the "calmer"!! I guess and hope the "garden" is dying now as I can feel lots of "activiites" going on in there....
My last trip was not a "breeze" since I had to go from San Diego through LA to Singapore to Bombay all in 1 "sitting" or "sleeping"... Then one night in Bombay followed by Bombay to Dubai to Hong Kong - also a 1 "sitting"/"sleeping" trip. One night in Hong Kong. Then came home. A 6-day trip!! Don't envy me please!!! It was ugly!!! :P SF to Fort L. is much preferred ;). Hope to cut down travel somewhat...
BTW, we should start planning another west coast get together... It was fun last time... :D :D
Mary
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Hi, diagnosed at age 40 (8 mm) still wait and watch. No growth in 3 1/2 years.
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Dx @ 32 1cm
FSR @ 33 1.4cm
18 mo. later we have determined that FSR had failed
So Surgery sometime this summer @ age 35 for 2.1cm / Translab
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I was diagnosised at 39 with a 4mmx4mm AN, Watch and wait for 2 years tomorrow.
john
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dx'd at age 28, surgery at age 29 for an 8 mm left AN
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54 when I got the "news", had 3.5 bugger ejected translab one and a half months later. Just past my twenty-second month anniversary.
Brendalu
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Did you get Chris ?
Age 21 and 5.3+ cm.
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28, 3.5cm was told I had 'inner ear infections' and treated w antivert for a YEAR til the MRI. FUN TIMES
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Age 60 Had MRI results suggesting AN r.side on May 4, 2007. Initially tingling and light -headedness episode occurred on Feb.3, 2007 ( 2.6x2.8) Very likely to schedule Translab surgery at House with Dr. Brackmann to take place this month Neal
Initial diagnosis-Mild stroke (examined by non-neuro doctor)
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Taylor had a tough time just learning to read in about 1st grade. It was much harder for her than for her older brother. She would get so frustrated. I asked her neuro surgeon if the tumor could have been affecting her then, causing her cognitive problems. He said "before then" so we are sure hers had started to grow befor she ever started kindergarten. Finding the right diagnosis sure explained a lot.
Taylor's Mom
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Diagnosed at age 59 with suboccipital sugery at age 60, but I'm sure it was there for at least two years before I was diagnosed.
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Dx: 48 y.o. 1.3 cm AN
Tx: Surgery (suboccipital) in January, 2005
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Initial Hearing Loss - Age 49
MRI and Diagnosis - Age 51
Surgery (Translab at HEI 9/26/06) - Age 52 (Delayed due to HMO Issues)
Excellent Results
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Oops, forgot - 2 cm
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Diagnosed age 38
3.5cm tumor
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Diagnosed at 59 with 1.2 cm, had the bugger cut out at age 60, 1.5 cm.
Wayne
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5 yrs post op- was 56 at the time, 2.5 cm
Darcy
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41 - 1cm
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son's
barely 18- 4.5+ CM
So tell me why it seems the young ones have the larger ones it seems. :)
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Age 49 - 2-3mm
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63 -1.2cm diagnosed in Feb. On the watch and wait till appt on Nov. 14th.
Sue/NH
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64 when diagnosed w/ 1.5cm after months of balance problems.
aa
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I'm amazed at this data. Thanks Pembo for the survey. I wish there was a way to screen our young people before these tumors reach such a critical mass.
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Any data on why **some** pepole get 'em so young (age 28, almost 4x4 cm)? I hear ya on the hormones, but I am now 29, no kids/never (not yet I mean!!) :)
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57 - 1.5 cm
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Diagnosed at 49 years with a size of 1.5 cm.
This particular survey I am thinking is difficult, at best, as many people would be diagnosed at a considerably much younger age had they had an MRI at the first sign of strange symptom. Also, since AN's can stop growing, or grow at a much slower rate than 1 mm/year, perhaps some of us had our AN's in our earlier years of growing up. Maybe some were born with them and were at a cellular size (undetectable) until their teens when they had a one-time "burp" so to speak, that baffled doctors, with the AN growing, stopping, and growing through their young years until the AN reaches such a size and the patient is of older age. I also question the doctors saying that these tumors grow at a rate of 1mm/year when they will also tell the patient that it can stop growing. Just wondering guys.
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Diagnosed at 48 two months ago
left side - 1.1CM x 0.5CM
Right side - 0.8CM x 0.7CM
John
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age 51....1.5 cm
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I'm 49 Female, diagnosed July 2007, 2.0 cm
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Updated 9/16/07
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Diagnosed in Fall of '04 at age of 52 with a 1.5 cm AN.
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Diagnosed this July at 43 (1.5 cm) - and I agree the hormone theory about accelerated growth - since my first pregnancy was at 35 my second at 37 (I lost that baby) and my third at 39 - - - -
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Diagnosed May 07, 46 years old, 1.7cm.
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Diagnosed Feb. 07, 59 1/2, 9x11mm, symptoms for 6 mos. prior.
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AGE 38, 1.2 CM, HAD RADIATION JULY 2007. WAITING FOR FOLLUP MRI IN DECEMBER
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Age 41 yrs -2cm Right side.
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Age 63 @ dx 1.0 x .7 CM left side fast growing,total hearing loss on AN side..
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55yr. female
5cm x 7cm discovered by mri two weeks after 55th birthday. Tumor was 5mm x 7mm size of sm. pea in Feb.20 07 Surg. [middle fossa] Aug. 17 tumor had grown to size of olive..don't know which kind. Some times the doc. say's jelly bean. Don't care, just glad its gone!
Org. post stated AN size at surg. as 5x7cm @ time of operation. Typo on path. report thank goodness....
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THAT WAS ONE FAST GROWING AN. HAS ANYONE EVER HEARD OF A AN INCREASING IN SIZE THAT FAST?
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Diagnosed at 52 - 2cm - my only symptom was gradual hearing loss.
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Diagnosed December, 2006, @ age 67. Decided on surgery since my parents, grandparents and their parents have all lived to late 90's on both my mother's and father's side of the family. Did not want to worry about it being there the rest of my life...no matter how slow most of them grow. Looks like I am the oldest so far!!! :'(
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4cm
diagnosed at age 44
HAD good hearing – only some loss of higher frequencies in the left ear- 100% voice recognition
Symptoms: sleep disorder, tinnitus, facial flushing (maybe unrelated) upper back pain
Atypical AN (i.e. no one was sure it was an AN or a meningnoma until after the pathology came in. IE very Weird looking tumor on the MRI)
"4" seems to be my number this year
4
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Diagnosed @ 21 years old with 2 cm.
removed 6 weeks later via trans labrynth.
im still 21, deaf in the right ear, temporary facial paralysis. balance is awesome.
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Age 30 3cm diagnosed 2 weeks ago surgery in 3 weeks, some loss of hearing, headaches, clumbsyness, sore tounge, and oh so very forgetful, with lack of concentration.
Cheryl XxX :-*
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41 yrs old 8cm removed april/07 -17 1/2 hr surgery
7-12 nerve jump august/07 -8 hr surgery
and I got all the extra goodies you get from these things.
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Age 39, 7 mm
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updated 10-19-07
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Been on this forum for months, but somehow missed this topic.
Anyway, age 45 when diagnosed. AN was 1.5 cm at the time. Had surgery approximately 6 weeks later - AN was 2.5 cm and growing - no idea why there was such rapid growth. Surgery (retrosigmoid) was 7 1/2 hours. No "big" issues, post op - except for SSD on left side.
Jan
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Age 38, 1.7 cm
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Hi-- Thought I'd add my stats to your list--I was 50 when diagnosed in Fall of 2000 (after getting second opinion after first Ent said nothing was wrong with me!!) with a 1 cm intracanicular rt AN--had surgery Jan 2001 and turned 51 Feb 2001. OR reports said total removal but not true and continued to grow --just completed 30 FSR treatments (to better protect my weakened facial nerve) at Mass General Boston MA (Dr Loeffler)...
Regards, Mary from MA ;D
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age 52
2cm x 1.5cm x 1.5cm
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Age of diagnosis -- Age 40 (3.0 cm)
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My son is 17 years old. 6mm tumor. Seeking another opinion tomrrow am.
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Dear coloradokidd
Good lucky , when it is ourselves it is not so painful, when it comes to our children it really hurts.
My prayers are with you and your son
eve
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Age 29 1.4cm AN. Waiting for my CK consult appt.
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discovered at age 27 3.2 cm
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my son was 16 and had 6cm
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my son was 16 and had 6cm
Is your son watching and waiting?
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age 44 2cm
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43, 3.5 CM AN
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When was the last updated info. of how many tumors / size / age of person ? Just wondering.
Margaret
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diagnose on my 33 bd, 9mm
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At Age 52 almost 1 cm
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age 34
AN 1 cm
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diagnosed at 35, surgery at 36-less than 1 month. 18mm and that is all I know. The Doc said it was elongated from being in a bone canal. Didn't give me the diam.
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8 cm [not a typo] age 41 white male 17 1/2 hr surgery april 2007
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8,
Do you wear cowboy boots and a big ole texas stetson? ;) :D ;D
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