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Author Topic: Official Survey for AN and Fatigue (survey in document form)  (Read 13767 times)

ppearl214

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Official Survey for AN and Fatigue (survey in document form)
« on: December 15, 2006, 12:48:57 pm »
Hi All,

Well, I received the official survey form from Dr. Medbery.  It is a very easy form to complete that will take less than 5 minutes.  If you are interested in doing the survey, please let me know here and I will email it to you (need to email off site as it's a document attachment).  Dr. Medbury's comments below from the email when he sent me the document:

"Let me know if there are any problems with this. People can either mail me the form or fill it out and send it electronically. Tell them to be careful about putting acoustic neuroma or something similar in the subject so I can quickly recognize it is not spam. They can send it to this address"

Please let me know if you want a copy of the survey so we can get it back to Dr. Medbery... saying "thank you" to him just doesn't seem to justify my aprpeciation for his help.

BTW, survey is geared to all AN patients, regardless of treatment type.

Thanks all!
Phyl
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justafactoflife

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #1 on: December 15, 2006, 07:27:38 pm »
I want to take it.  Please send to my email.  Thanks
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AN 1st time, July 2003
7mm x 4mm x 5mm
Subocital/Retrosigmode microsurgery
St Anthony's Hospital, St Louis MO
Dr Faisel Albanna, MD Neurosurgeon

2nd regrowth 1cm x 5mm x 4mm, Oct 2006
3 FSR using Cyberknife
St Anthony's Hos. Oklahoma City
Dr Clinton Medbery, III MD Radiologist

3rd 1.8cm x 12mm

marystro

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #2 on: December 15, 2006, 08:26:37 pm »
Phyl,

Send me the survey please.  Fatigue hit me this afternoon out of the blue - just felt like going to sleep suddenly.  Luckily it only lasted for a few minutes.  Strange how it comes and goes...  There's got to be some biological explanations.

Mary
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Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

ppearl214

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #3 on: December 15, 2006, 09:24:30 pm »
Mary, do I have your internet email?  If not, please email me here with it.

The survey is a VERY small MS Word document, less than 1 minute to download, even on dial up.


thanks all SO Very much for your paticipaiton... based on the emails I have received, Dr. Medbery's inbox is going to overflow! YAY us for pulling together. Whatta family! :)

Phyl

Quote from: marystro on December 15, 2006, 08:26:37 pm
Phyl,

Send me the survey please.  Fatigue hit me this afternoon out of the blue - just felt like going to sleep suddenly.  Luckily it only lasted for a few minutes.  Strange how it comes and goes...  There's got to be some biological explanations.

Mary
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marystro

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #4 on: December 15, 2006, 09:52:48 pm »
Phyl - just sent my email address to you.  Let me know if you don't get it.
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Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

GM

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #5 on: December 17, 2006, 05:39:48 pm »
I would also be glad to participate...please email me a copy...

Thanks!

GM
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Note: Riverside Hospital in Newport News Virginia now has GK!!

ppearl214

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #6 on: December 18, 2006, 10:12:12 am »
I honestly don't know what to say. :)

Dr. Medbery's inbox is going to be flooded with the terrific responses of interest for this survey. I want to personally thank you for your help with this.

Truly amazing.. thank you.
Phyl
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okiesandy

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #7 on: December 19, 2006, 09:22:24 am »
Ok Phyl,

Send it on to me you have my email.

Sandy
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jamie

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #8 on: December 19, 2006, 10:35:32 am »
I'll take the survery as well. Will send you my email. :)
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SuzeAN

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #9 on: December 19, 2006, 04:51:34 pm »
Add me to the list please, would be happy to take survey.

Sue (Las VEgas)
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ppearl214

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #10 on: December 26, 2006, 10:48:40 pm »
I have to apologize to everyone  that has not received the survey yet. I just got back in town and will send them this week... sorry all... been a hectic (and VERY tiring!) week for me.

Thanks for your patience.
Phyl
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shoegirl

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #11 on: December 26, 2006, 11:01:41 pm »
Phyl,

Please send me the survery when you get it, would be happy to participate.  :)
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ppearl214

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #12 on: December 27, 2006, 10:04:57 am »
Ok, I think I got caught up on everyone that requested the survey... and if I missed you, please note here that you  didn't get the survey so I can send along to you.

Your overwhelming responses to help do this is so appreciated.... and it's your pro-activeness (is that a word?) in helping us with this is amazing... thank you all.

Happy, HEALTHY, prosperous new year to you all!

Phyl
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okiesandy

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #13 on: December 27, 2006, 12:55:26 pm »
Hey Phyl,


Didn't get the survey. 

Sandy
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Clinton Medbery III & Mary K. Gumerlock
St Anthony's Hospital
Oklahoma City, OK
Name of Tumor: Ivan (may he rest in peace)

ppearl214

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Re: Official Survey for AN and Fatigue (survey in document form)
« Reply #14 on: December 27, 2006, 01:23:48 pm »
Hey Sandy,

I sent to your aol this morning... just did a resend... pls confirm you got it.

xo
Phyl

Quote from: okiesandy on December 27, 2006, 12:55:26 pm
Hey Phyl,


Didn't get the survey. 

Sandy
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