Author Topic: 11 years post gamma knife  (Read 423 times)


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11 years post gamma knife
« on: September 14, 2022, 01:05:37 pm »
People who had this tumor a long time ago often have moved on and don't post here.  So I would like to say to newbies:  October 10, 2022 will be 11 years since my treatment with gamma knife for a 2.3 cm left side acoustic neuroma pressing on brain stem quite a bit. During those years I've adjusted to the new normal: tinnitus, one sided deafness, balance issues etc.  Tumor is there but has not grown. I get MRI's, without the controversial contrast, every two years.  We've gone on with our lives. Son graduated high school, Ivy college, masters, is working, has a nice girl, husband retired from being a doctor and took up painting and spending lots of time with me.  Cat still living and loving us.  Life is good.  It will be ok.  Don't stress. Wishing you all well. Dee-dee
2.3 cm AN.   Hearing loss and other symptoms. Gamma knife 2011.


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Re: 11 years post gamma knife
« Reply #1 on: September 20, 2022, 07:53:16 pm »
Thank you for sharing your experience, Dee-dee!

You are correct, those who have had their treatments and have moved on, generally do not come back and post on the forums.  And yet, your story encourages the rest of us.  We really appreciate hearing that life is good and that it will all be okay in the end.

Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.


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Re: 11 years post gamma knife
« Reply #2 on: September 26, 2022, 02:32:27 am »
Thank you Dee-Dee- am 3 years out from CK and having some nerve pain on and off. It helps to read positive posts and messages.
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.