I would suggest sending a copy of your MRI and any audiologist testing to the House Clinic in Los Angeles for a complementary consult. A doctor will review and call you and discuss their opinion with you. They are one of THE premier clinics for ANs in the country.
I believe Dr Mark Schwartz is at UC Santa Barbara,is it?? Someone else on here probably knows more about him than I do. But he may do consulting also. There are probably others also.
I sent mine 12 years ago to House and had a very informative phone consult with Dr Slattery. Most helpful! I did not end up going out there for treatment and he still called me a year later to check on me.
Good luck. If you do wait and it grows closer to the brainstem,, I don’t believe radiation will be an option due to potential swelling after the radiation. BUT that’s just MY opinion and I’m not a doctor!!
I ended up waiting 3 years after diagnosis and it grew too much and too close for me to have any options. NOT to scare you at all,,, just my thoughts.
Good luck in your journey,,, be your own advocate and press for the answers to the questions you are searching for,,,