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Author Topic: External Eye Weights  (Read 48975 times)

moe

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Re: External Eye Weights
« Reply #45 on: November 21, 2009, 03:12:00 pm »
HAPPY 52ND BIRTHDAY TO YOU, DOC!
 What a year, hopefully this one coming up will be better.
Keep your eyes lubed :) I also tried the Gen Teal Gel Drops and found that it stung a bit.
I use AKWA TEARS ointment from my doctor. Works for me.
My cornea is OK, not great, so I'm a little paranoid and keep it lubed all the time. I'm also used to the blurriness, and can read, drive, etc.
Hang in there.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Doc

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Re: External Eye Weights
« Reply #46 on: November 21, 2009, 03:26:17 pm »
Quote from: saralynn143 on November 21, 2009, 03:10:31 pm
Happy Birthday. Make sure to look at your profile today, they should have served you up a little slice of birthday cake.

Sara
[/quote

Ha...how do you like that...I got a piece of birthday cake...thanks for the heads up Sara!

Take Care!
  ;)
Doc
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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

Doc

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Re: External Eye Weights
« Reply #47 on: November 21, 2009, 04:06:27 pm »
Hey Maureen,

Thanks for chiming in.  I'm seeing the Eye Doctor on Monday.  I'll ask about "AKWA Tears."  So I'm not the only one the feels that little stinging with the GenTeal?!?  I have to tell you though, so far, it seems to be working better than Refresh PM alone.  I've managed to load my eye up with both; its bearable thus far.  It's really gonna take some time to get used to the weight being stuck on my eyelid...feels strange, like its always about to fall off.

Thanks for the Birthday wishes...my boys are taking me out to Chilies for dinner in a little while.

Take Care!
  ;)
Doc
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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

Doc

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Re: External Eye Weights
« Reply #48 on: November 21, 2009, 04:23:43 pm »
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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

CHD63

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Re: External Eye Weights
« Reply #49 on: November 21, 2009, 06:33:38 pm »
Doc .....

I had not been following this thread during all of my personal travels and husband's medical crisis and because I did not have anything to add to the eye issues.  However, I just now read the whole thread and my what a time you have had ..... not only with eye pain & irritation, but medical staff pain & irritation!  Not fair!!!

WOW, I truly hope you have been able to re-focus on your birthday today.

HAPPY BIRTHDAY, DOC!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kaybo

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Re: External Eye Weights
« Reply #50 on: November 21, 2009, 07:18:27 pm »
Doc~
I have no feeling in that eye, but i tried the GenTeal b/c someone on here mentioned it and it makes my eye red!!

K   
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
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nancyann

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Re: External Eye Weights
« Reply #51 on: November 22, 2009, 11:03:51 am »
Happy Birthday Doc:  & I'm sorry about being so 'gung ho' on the eyeweight.   I wasn't thinking about the blood thinning medication.   And I certainly hope the Botox works.
I'm very interested in hearing how it turns out.   This may be the wave of the future in helping with eye closure (I could sure use a mm or 2 more closure !).
I also was unable to use GenTeal - it burned & turned my eye red.  I use Refresh PM exclusively. (AKWA tears didn't work for me either - drops aren't thick enough).
Always good thoughts,  Nancy
« Last Edit: November 22, 2009, 11:10:35 am by nancyann »
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Doc

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Re: External Eye Weights
« Reply #52 on: November 22, 2009, 11:13:39 am »
Quote from: nancyann on November 22, 2009, 11:03:51 am
Happy Birthday Doc:  & I'm sorry about being so 'gung ho' on the eyeweight.   I wasn't thinking about the blood thinning medication.   And I certainly hope the Botox works.
I'm very interested in hearing how it turns out.   This may be the wave of the future in helping with eye closure (I could sure use a mm or 2 more closure !).
I also was unable to use GenTeal - it burned & turned my eye red.  I use Refresh PM exclusively. (AKWA tears didn't work for me either - drops aren't thick enough).
Always good thoughts,  Nancy



Gosh, you don't owe me an apology...you set me straight!

Thanks Nancy, you take care!
  ;)
Doc
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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

Kaybo

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Re: External Eye Weights
« Reply #53 on: November 22, 2009, 01:01:12 pm »
Doc~
I am so glad that Nancy's post got you to thinking more about eye care - I was very concerned for you (& your cornea) but couldn't think of a good way to write it - I certainly didn't want it taken the wrong way!  It is one of those things that just stinks - no way around it - but that we have to bite the bullet & do whatever we can to make it work.  It might mean not being able to see well at all out of that eye or even having it be VERY unattractive, but the main thing is that we protect out corneas!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Nickittynic

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Re: External Eye Weights
« Reply #54 on: November 22, 2009, 01:45:45 pm »
Doc,
Happy belated birthday!
Just curious if you've tried Refresh Celluvisc?
I haven't tried Genteal, but there was something else I'd tried (I think it was called SootheXP?) that kind of burned when I put it in and my corneal specialist told me that's a good reason to not use it. He compared the exposed cornea to like a road-rash on your knee. Since switching to Celluvisc (and the addition of a punctal plug) I haven't had anymore irritated eye and last week the corneal specialist said my eye looked great, "even better than last time". The only down-side is they do blur vision, but I'm getting used to the whole "one-eye" thing (kind of goes with the "one ear" thing..).
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

Doc

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Re: External Eye Weights
« Reply #55 on: November 22, 2009, 05:24:59 pm »
Quote from: Nickittynic on November 22, 2009, 01:45:45 pm
Doc,
Happy belated birthday!
Just curious if you've tried Refresh Celluvisc?
I haven't tried Genteal, but there was something else I'd tried (I think it was called SootheXP?) that kind of burned when I put it in and my corneal specialist told me that's a good reason to not use it. He compared the exposed cornea to like a road-rash on your knee. Since switching to Celluvisc (and the addition of a punctal plug) I haven't had anymore irritated eye and last week the corneal specialist said my eye looked great, "even better than last time". The only down-side is they do blur vision, but I'm getting used to the whole "one-eye" thing (kind of goes with the "one ear" thing..).

Hi...!

Thanks for the Birthday wishes...I haven't tried the Refresh Celluvics yet.  Sorry to say, I took the weight off a few hours ago and taped / patched the eye shut again...just can't handle the irritation...its awful.  I see the Eye Doctor tomorrow afternoon.  Hopefully he's gotten approval from insurance to do the Botox immediately.  I know this whole tape and patch thing probably isn't good for my cornea...but the eye is completely shut now and well medicated.  Wearing the weight left my eye open several millimeters; I just can't handle the constant irritation.  I could only manage about 36 hours with the weight...I slept through the night with it in...when I close my good eye, the bad one closes fully with the weight...but I can't walk around all day with both eyes shut.

I've been wearing a patch since surgery and have been without hearing in my left ear (translab side) for over two decades; tumor related but didn't know it thanks to some top notch military doctors.

Take Care!
  ;)
Doc



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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

nancyann

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Re: External Eye Weights
« Reply #56 on: November 22, 2009, 06:34:06 pm »
My oculoplastic surgeon wanted me to switch from Refresh PM to Celluvisc, but the Celluvisc wasn't strong enough.
It is a soothing product though.
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

cyrmom2

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Re: External Eye Weights
« Reply #57 on: November 23, 2009, 09:36:28 am »
HAPPY BIRTHDAY DOC!

I hope you eye appointment goes very well today!

Cyndi
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diagnosed 7-27-09 4 cm CPA
12 hr translab 8-25-09
Dr Chicooca & Dr Welling at OSU/The James
sliver of tumor remains on brain stem
left SSD & facial paralysis (was 6/6, 2-3/6 at 9 weeks, 1/6 within 4 months) 6 month MRI on 3-17-10.

Doc

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Re: External Eye Weights
« Reply #58 on: November 23, 2009, 04:02:34 pm »
Well, I saw the Eye Surgeon earlier this afternoon.  He said he did some more reading on Botox and has decided the limited 4 to 5 weeks benefit it might provide is not worth it.  He also mentioned he'd rather see me have my CK treatments that will start pretty soon without a chemically induced droopy eye...if that makes sense?!?

Anyway, he talked me into having a procedure that will result in the eye being partially sown shut along about a 5mm run off-set to the outer portion of the lid.  In his words, he'll rough up the upper and lower lid, than stitch them together; the stitches will come out in 7 to 10 days.  I'll still have some vision in the corners and will still have to use an ointment of some kind for lubrication.  The major plus, the cornea will have the natural protection that the eye lid provides.  I really didn't want to undergo another procedure but I'm running out of options.  Besides, Kaybo walked around for three months with her entire eye sown shut...I'm sure I can manage with just a portion sown shut for what will hopefully be a short time.  That and I don't want to go through life knowing I may not be as tough as a First Grade Teacher...just joking Kay...sorry, can't help it!

The procedure is scheduled for this Wednesday, November 25th, in his office...wish me luck!

Take Care!
  ;)
Doc

« Last Edit: November 23, 2009, 07:25:17 pm by DoctorB »
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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

Jim Scott

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Re: External Eye Weights
« Reply #59 on: November 23, 2009, 04:21:57 pm »
Doc ~

I'm sorry you have to deal with all this but of course, I hope the procedure will be successful.  Best of luck to you on Wednesday!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.
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