Recent Posts

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For those in the 'watch and wait' status / Re: just been diagnosed
« Last post by ANSydney on December 03, 2018, 04:08:11 pm »
Deafness and tinnitus are not improved by intervention. At 1.5cm I would say there is no rush to do anything. Have you considered a followup MRI in 6 months? Have you taken a look at your MRI CD?
Radiation / Radiosurgery / Re: My Cyber Knife Adventure
« Last post by gary.s on December 03, 2018, 03:35:07 pm »
Thanks for the good wishes Stella. You have been hanging in there with me for quite some time and I appreciate it very much. I hope you are doing well also.

One of the things my radiologist said on Friday is that fish oil supplements reduce inflammation. I eat salmon at least twice a week and use fish oil supplements about three times a week. Along with other vitamins, this has been my routine for several years now. I have no idea if this has helped me or not, but it is useful information coming from a doctor. Of course eating well, getting lots of rest and exercise always helps the healing process. Happy Holidays Stella.


Inquiries / Re: MRI Result meaning- 3 year follow up
« Last post by LakeErie on December 03, 2018, 09:27:24 am »
Probably means the original diagnosis of VS is the reason for the follow up MRI.
For those in the 'watch and wait' status / just been diagnosed
« Last post by smiffy on December 03, 2018, 03:44:09 am »
hello from the UK i have just been diagnosed with a 1.5cm AN. to be honest still very overwhelmed and since i know what is cuasing my deafness and tinitus after being able to block the latter out it now seems louder than ever. its nice to find this forum and a community of others in the same boat good luck to all.
It is very cool if it is Christmas present for your mom.

I had party last night, 16 people with 6 kids. I can hear very well. I think my perfect right side hearing is also helpful.

I suggest you go to Bose store and try out. Let the stuff show you how to setup and adjust settings. It is tricky, I am still trying to find the best setting in different environment. Mute non hearing side is very important to reduce tinnitus and make good side work better. 
Inquiries / Re: MRI Result meaning- 3 year follow up
« Last post by Alyssa on December 02, 2018, 09:50:33 pm »
Why not ask doctor?
Facial Issues / Re: Facial Paralysis Recovery Timeline
« Last post by Sanderson on December 02, 2018, 10:28:27 am »
I am now officially 8 months post surgery with no improvement. Thanksgiving week was a rough one because reality started to really set in. I thought by the holiday season I would see some type of improvement. I still get nervous zap feelings in my mouth and just last week in my upper lip.
Facial Issues / Re: Post-OP RS ant-crawling like sensation on paralysed part of face
« Last post by Sanderson on December 02, 2018, 10:16:58 am »
I think it is a sign of recovery! Any feeling of any kind is a good thing! I would welcome the feeling of ants running over my face!

Make sure you are taking care of your eye with drops/ointment and walking and moving as much as possible to keep yourself in good shape. Yoga helped me recover my balance!

Keep us posted!

Facial Issues / Post-OP RS ant-crawling like sensation on paralysed part of face
« Last post by MT on December 02, 2018, 08:56:59 am »
Hi all,

I had AN surgery (RS approach) to remove 2.7cm tumor. Since the start of 3rd week post-op (until today), I  feel sensation in the paralyzed part of face. This sensation is like lots of ants crawling over the affected area and sensitivity is usually triggered by exercises/massage I do and increases as I continue. The feelings are calmed down only when I softly rub the area with a wet-warm cloth.

My question is "Is it something to worry about or is a sign of recovery/nerve repair?"

Current situation:
  • I am 1 month and 5 days since the RS surgery, and I have my 1st post-op appointment with surgeon in 2 months time from today.
  • I only do exercises and massage twice a day, once after waking up and once before going to bed.
  • I still cannot move right side of face (which was paralysed) including lifting the eye-brow and completely close eye-lid. Docs said it will improve over 4 to 6 months as my facial nerve was preserved during operation.
I hope this sensation is a sign of recovery but will appreciate if people can share their experience.

Radiation / Radiosurgery / Re: My Cyber Knife Adventure
« Last post by SP on December 02, 2018, 04:22:29 am »
Wow Gary -- so happy for you that you got these excellent results from the latest MRI!
I am amazed to hear that the tumor has shrunk and enough to move away from the brain-stem and resulting in less facial numbness; how awesome is that... Thanks for sharing your great news and wishing you continued good health and happy times ahead.

take good care,
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