Author Topic: New member, symptoms questions.  (Read 11713 times)

OliviaReyes

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Re: New member, symptoms questions.
« Reply #45 on: June 06, 2025, 02:40:10 pm »
Hello everyone,

I’m interested in understanding how effective current migraine treatments are not just in relieving pain but also in managing other symptoms and improving quality of life. Migraines can affect so many aspects beyond headache intensity, including nausea, sensitivity to light, and cognitive function.

What treatments have you found to address these broader symptoms effectively?

Are there any promising new approaches or combination therapies?

How do you measure success in migraine management beyond just pain reduction?

I’d appreciate insights from both clinicians and patients about what really works in comprehensive migraine care.

Thank you!

Mark F.

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Re: New member, symptoms questions.
« Reply #46 on: June 07, 2025, 10:36:05 am »
Brittany,
I'm happy to share/answer any questions.   I did get your email and sent a reply back, hope you got it, and hope all goes well with your journey.  I am pleased with my experience at Hopkins, and for anyone else wondering if there are positive results from surgery, absolutely there are.   Everyone has a different experience, and I can only tell you from my experience.   Before surgery I had a headache that lasted 2 years.  It was there every single day.  But since surgery that headache has vanished.   I never realized how much that affected my daily life till it was gone.   I had other issues as well, and I'm still recovering from some things, but just having that daily headache disappear was worth going through the surgery for me. 

DanFouratt

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Re: New member, symptoms questions.
« Reply #47 on: June 07, 2025, 04:35:36 pm »
Mark,

I am impressed that you are back to work, great job,credit to you. 

Continue you successful journey,

Dan
Dan Fouratt             64 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

Jill Marie

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Re: New member, symptoms questions.
« Reply #48 on: June 09, 2025, 10:07:48 pm »
Congratulations Mark! So very happy to hear you returned to work already, had to read the post twice to make sure I read it right! Three weeks after surgery and you're back to work, that's amazing.  I bet it's a load off your mind knowing you're able to work again.  I read the post and was getting ready to post and ask about THE HEADACHE then I read your next post.  I was hoping/praying that your 2 year headache would be gone, so glad it is. Your posts are sure to help those just starting there journey! Jill
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

Mark F.

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Re: New member, symptoms questions.
« Reply #49 on: June 30, 2025, 09:20:49 pm »
Quick update.   Tomorrow makes 7 weeks since surgery.  I continue to improve daily and my doctors even seem surprised at how quickly I was able to bounce back, I would say my balance is just as good now as it was before surgery, and it is still improving.  My double vision is fading.  It's not there all the time now only sometimes, and it is getting noticably better each week.   I wish my taste buds would get back to normal, I am getting tired of things that I know I really like having a strange flavor or no flavor at all.  I know that will resolve  itself too, I'm just getting a little impatient with it.   It is hard to believe that I am now doing nearly everything that I did at work before surgery almost like nothing happened.  I only get unbalanced if I turn my head too fast.  The post surgery fatigue has also pretty much disappeared.  When I first went back to work I only did 4-5 hours a day and I got pretty tired.  I am now full time and do not feel any more tired than normal. 
I still can't hear out of my left ear at all even though the surgeon said they saved the nerve, he says I could still get some of the hearing back once all the swelling is gone, which could take some time.


I update this because when I first started looking on here it was really scary, it seems that nearly all the comments were of things that didn't go right.  I suppose that most people don't come back to post if everything went well, and I just want people out there to get a little hope that yes there are positive stories.  Life may be different now because of the acoustic neuroma, but in the grand scheme of things, I feel very lucky to have had such a quick recovery, and such a positive result.  So I hope I gave someone a little hope and a little relief from the anxiety.  I appreciate all the support I had, and I plan to keep an eye on this site and provide any information or support I can for others.