are you doing well?

How are you doing now?

Hi Olivia, thanks so much for sharing this article and your experience.    May I ask, did you have surgery to remove an acoustic neuroma?   I’m a little over a year post retrosigmoid surgery and what you described fits my head pain too. I’ve tried all the things you mentioned also and no success yet.  I have to be honest, my one year anniversary with no end in sight has been pretty discouraging. 
Can you elaborate a little more on the surgery and the recovery?  I read up on it a little and see it’s not brain surgery again, which is welcome news.

Congratulations Mark! So very happy to hear you returned to work already, had to read the post twice to make sure I read it right! Three weeks after surgery and you're back to work, that's amazing.  I bet it's a load off your mind knowing you're able to work again.  I read the post and was getting ready to post and ask about THE HEADACHE then I read your next post.  I was hoping/praying that your 2 year headache would be gone, so glad it is. Your posts are sure to help those just starting there journey! Jill

Hi Donj
Thanks! Yes it’s been a while since I’ve updated as life has been turbulent.
I am probably going for gamma knife (or AUS equivalent) by the end of the year.
Regarding my original post on this thread- the tinnitus & associated vertigo seemed acute and went away as quickly as they started. No answers here. Just very fortunate it doesn’t continue.
The baseline tinnitus, so to say, still exists and also that rebound tinnitus really throws me out sometimes. Can put me off balance. It’s like a sound lands into the other side of my head with a physical force that pushes me to the side.
Life has definitely been affected by SSD and just the fallout from the side effects from surgery changing my hip mobility, which you would be aware of since you’re keenly on up to date with my journey. So you know how deeply this discouraged me.
Ideally I’d like to post follow up with the run down of my journey but would like to share it in a time that’s not tainted by bad memories or frustration. In general everything went basically fine but mourning the loss of my hearing, ability to function in settings I used to thrive in, and related mobility….. additionally as I said above how life has been turbulent, it’s hard to separate from general life chaos and the tumour/surgery saga. As life continues, weird things keep stacking up, making it harder to keep tabs on what’s coming from where. I have thought from time to time how to make a summary that’s strictly about the tumour & surgery.

Perhaps, if you receive this (and that I remember to check this forum), you can send me a list of your most pertinent questions and I can answer these for you. You do seem to be the vet of ANAUSA and probably most likely to ask the best Qs.

Sorry it takes me so long to reply.
Cheers
Jord

Hi Jordy!

Welcome back to the ANA Forums!  I wish I could help you regarding the tinnitus and the dizzy spells.  But can you share what the last two years have been like otherwise?  You did such an excellent job sharing your experience on these forums.

I hope the tinnitus dies back down soon.
Don