Recent Posts

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Drumfest,

I did not see the original post but just saw Michelle's.  Like her Dizziness was not an issue before or post but before there was one time I had an issue.  I am not sure if it was AN or stenosis. Since radiation I have experienced no dizzines.

Dan
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Post-Treatment / Re: Fluid Under Skin of Surgery Site
« Last post by Mark F. on November 18, 2025, 08:34:00 PM »
Sorry to hear about your issue.   I don't have experience with pain, I was lucky enough to actually be in less pain after surgery than before.  But the swelling and sleeping thing I have a question about.  Did you try a different bed or pillow?  I noticed after my surgery that I was having problems sleeping, and although it didn't hurt I did have swelling that felt weird.  For me a new pillow and a change in sleeping position seemed to help.  I say seemed to, because I'm not sure if it was that or if the swelling just stopped happening because of time.    I am 6 months post op now, and I do still have to watch my sleeping position, if my neck isn't supported right I will have a headache on the AN side.
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Radiation / Radiosurgery / Re: Can/Does Radiosurgery reduce dizziness/disequilibrium?
« Last post by mwatto on November 18, 2025, 07:25:47 PM »
Hi I did not have dizziness pre or post radiation. I did read this article recently however linking dizziness in AN to anxiety - mmight help to work on that aspect:  https://jamanetwork.com/journals/jamaotolaryngology/article-abstract/2839530?guestAccessKey=aa803a9d-f934-4dab-b140-9924cd8ac6fc&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jamaotolaryngology&utm_content=olf-tfl_&utm_term=100225
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Post-Treatment / Fluid Under Skin of Surgery Site
« Last post by jorsto on November 15, 2025, 04:36:07 AM »
Hello,

I’m 11 days post middle fossa surgery.  They said to expect swelling but I’m noticing that every night I wake up with more swelling than when I went to sleep.  It feels like liquid between my skull and skin and can gently press certain areas and hear the fluid.

Is this actually normal?

Other side effects post surgery:

- 10/10 pain on glutes and bottom of leg to calf. I went in for a blood clot check and came back negative.  I can’t sleep no matter what medication I’m given as nothing fixes the pain.
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Post-Treatment / Re: 2 1/2 Weeks Post Translab @ MGH - Odd post surgery symptom
« Last post by BrokedownPalace on November 14, 2025, 09:58:11 PM »
Thanks Mark! Glad to hear you're back to crushing 5ks already.

I also have a weird taste in my mouth on the AN side post surgery that comes and goes, seems to be pretty "common" from what I've read on here as apparently the AN is generally located near some taste receptors in your brain. I can't do anything too artificial tasting currently with the taste being off.
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Post-Treatment / Re: 2 1/2 Weeks Post Translab @ MGH - Odd post surgery symptom
« Last post by Mark F. on November 14, 2025, 06:16:25 PM »
Welcome to the post-op side.  Glad things went well for you.   Keep active it will speed up the process.   I am 56 and I'm now 6 months post-op.   The first few weeks I was unbalanced, told people I looked like a 6 foot tall drunk toddler.  But it didn't take me long at all to get to a point that is better than I've been in years.  Even competed in a couple 5k's already, and putting in times faster than I was before surgery.  So keep up the walking and before you know it you will be better than ever.   As for your particular side effect, sorry to say no that's not one I've experienced so I'm not much help there.  My worst side effect, which has lasted a lot longer than I expected it would, is that my taste buds are still messed up even after 6 months.  The only real flavors I taste are spicy and salty.  Everything else is either bland or metallic tasting.   But I'm not sure if that was directly from the AN surgery or if it was because while in the hospital I developed a nasty throat infection that had me on a liquid diet and not able to speak well for about 2 weeks.  Hope your issue resolves itself quickly. 
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Post-Treatment / 2 1/2 Weeks Post Translab @ MGH - Odd post surgery symptom
« Last post by BrokedownPalace on November 13, 2025, 05:44:44 PM »
Hi All,

I completed my translab surgery on October 28 w/ Dr. Lee & Dr. Barker @ MGH. The surgery was as much of a success as possible, full tumor removal with full facial function intact. My hearing in my AN ear was already so bad that getting used to the SSD in quieter environments feels pretty comfortable, and I'm slowly bringing back music into my life. My balance is slowly but surely coming back, and I'm going on unassisted, slow walks for an hour at a time already. Still feel pretty unstable, but I know that it'll be sometime before I fully get that stabilization back.

The one thing that has been bothering me though is a strange symptom. Every night, my AN ear will become red and a bit hot to the touch for a few hours and then return to normal. I'm now off steroids and other prescribed meds so they don't seem to be the direct cause. I've had some extensive conversations w/ the team @ MGH about this and they're unsure of the cause, but are not concerned given the lack of other infection symptoms (fever, confusion, etc.) and the fact that it goes away relatively quickly. I have an appointment with my PCP per the MGH team's recommendation next week as I don't live in Boston to cover all my bases on possible causes.

Has anyone else experienced this post surgery? Looking to find any insight into this, thanks :)

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AN Community / Re: Exacerbated tinnitus after scond Moderna Covid booster
« Last post by stevehernes on November 12, 2025, 03:29:45 PM »
Is it better now?
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AN Community / Re: 3-Year Post-Surgery MRI
« Last post by stevehernes on November 12, 2025, 03:28:50 PM »
Interest in this thread shows how passionate the community is — whether you’re a newbie or a long-time member, there’s always something to learn. Keep your posts focused and provide photos if you want useful identification or valuation feedback. When buying or selling, I cross-reference completed listings on Homeaglow https://homeaglow.pissedconsumer.com/review.html and other marketplaces to get a realistic idea of value before committing. Sharing clear details gets you better responses.
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Hearing Issues / Re: Would a hearing aid help?
« Last post by stevehernes on November 12, 2025, 03:27:12 PM »
did it help actually? Really appreciate you sharing your perspective. It’s reassuring for people going through similar challenges. When I hit the mid-point of recovery discussions, someone mentioned audien hearing https://audien-hearing.pissedconsumer.com/review.html devices helping them manage day-to-day clarity, which might be something to explore. Hope things continue improving for you.
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