Author Topic: Age of AN patients: UPDATE with data and names thru post 126 p 9  (Read 36623 times)

wwalker

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Re: Age of AN patients: UPDATE with data so far
« Reply #75 on: June 04, 2007, 02:49:13 pm »
Diagnosed at 59 with 1.2 cm, had the bugger cut out at age 60, 1.5 cm.

Wayne
!.5 cm left-side AN
Retrosigmoid surgery 9-20-06
Dr. Karl Horn and Dr. Andrew Metzger
Presbyterian Hospital, Albuquerque

Darcy

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Re: Age of AN patients: UPDATE with data so far
« Reply #76 on: June 13, 2007, 05:50:40 am »
5 yrs post op- was 56 at the time, 2.5 cm

Darcy

jtd71465

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Re: Age of AN patients: UPDATE with data so far
« Reply #77 on: September 14, 2007, 03:19:31 pm »
41 - 1cm
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

robynabc

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Re: Age of AN patients: UPDATE with data so far
« Reply #78 on: September 14, 2007, 04:21:30 pm »
son's

barely 18-  4.5+ CM


So tell me why it seems the young ones have the larger ones it seems. :)
18 yr Son 4.5+ CM AN  surgery 6-27-07 at CU in Denver.Drs Lillihei and Jenkins. Complete removal on facial nerve with no paralysis at all. Paralized vocal cord that is causing swallowing & voice issues.  SSD. Went to a movie theater 11 days after surgery. Great Doctors!! That is most important.

susier

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Re: Age of AN patients: UPDATE with data so far
« Reply #79 on: September 14, 2007, 08:16:04 pm »
Age 49 - 2-3mm

Lamsue23

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  • My "Magic AN Scarf" l day after surgery!
Re: Age of AN patients: UPDATE with data so far
« Reply #80 on: September 14, 2007, 08:20:40 pm »
63 -1.2cm diagnosed in Feb.  On the watch and wait till appt on Nov. 14th.

Sue/NH
SueL/from NH
Retrosigmoid Surgery 8/6/2008 DHMC, Lebanon, NH 7.5 hrs.
Dr. Erkmen - neurosurgeon
Dr. Morrisson - neuro-ostology
Loss of hearing 70% in left ear.
Vision and Balance issues...Taste!!

aardvark

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Re: Age of AN patients: UPDATE with data so far
« Reply #81 on: September 14, 2007, 08:51:42 pm »
64 when diagnosed w/ 1.5cm after months of balance problems.

aa
1.5cm X 1.0cm Left Side AN  Dx 8/05
CK at Stanford 9/05   Drs. Chang & Gibbs

chrissmom

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Re: Age of AN patients: UPDATE with data so far
« Reply #82 on: September 15, 2007, 06:11:10 pm »
I'm amazed at this data.  Thanks Pembo for the survey.  I wish there was a way to screen our young people before these tumors reach such a critical mass. 

lori78

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Re: Age of AN patients: UPDATE with data so far
« Reply #83 on: September 15, 2007, 08:11:04 pm »
Any data on why **some** pepole get 'em so young (age 28, almost 4x4 cm)?  I hear ya on the hormones, but I am now 29, no kids/never (not yet I mean!!)  :)
Lori, Left AN,  2 translab surgeries and GK radiation, 3.5 cm x 3.5 cm, Dr. Singh Sahni and Drs Fred and Wayne Schia, Chippenham Johnston-Willis, Richmond, VA. Deaf in left, temp paralysis post surg 1/07

Dana

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Re: Age of AN patients: UPDATE with data so far
« Reply #84 on: September 15, 2007, 10:57:47 pm »
57 - 1.5 cm
1.5 cm AN diagnosed June 2007.   GammaKnife July 19, 2007 at Univ. of Washington/Harborview GK Center, Drs. Rockhill, Rostomily. 
After yearly MRIs for 5 years, it hadn't died. So I'm now leaning strongly toward surgery.

Omaschwannoma

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Re: Age of AN patients: UPDATE with data so far
« Reply #85 on: September 16, 2007, 05:34:50 am »
Diagnosed at 49 years with a size of 1.5 cm. 

This particular survey I am thinking is difficult, at best, as many people would be diagnosed at a considerably much younger age had they had an MRI at the first sign of strange symptom.  Also, since AN's can stop growing, or grow at a much slower rate than 1 mm/year, perhaps some of us had our AN's in our earlier years of growing up.  Maybe some were born with them and were at a cellular size (undetectable) until their teens when they had a one-time "burp" so to speak, that baffled doctors, with the AN growing, stopping, and growing through their young years until the AN reaches such a size and the patient is of older age.  I also question the doctors saying that these tumors grow at a rate of 1mm/year when they will also tell the patient that it can stop growing.  Just wondering guys.
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Raven

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Re: Age of AN patients: UPDATE with data so far
« Reply #86 on: September 16, 2007, 05:56:59 am »
Diagnosed at 48 two months ago

left side - 1.1CM x 0.5CM
Right side - 0.8CM x 0.7CM

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

sloxana

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Re: Age of AN patients: UPDATE with data so far
« Reply #87 on: September 16, 2007, 06:01:20 am »
age 51....1.5 cm
1.9 cm AN
Diagnosed Jul 9 2007
Surgery will be 9/14/10 with Dr. Haynes and Dr. Thompson at Vanderbilt

Peggy

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Re: Age of AN patients: UPDATE with data so far
« Reply #88 on: September 16, 2007, 08:06:57 am »
I'm 49 Female, diagnosed July 2007, 2.0 cm

Pembo

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Re: Age of AN patients: UPDATE with data so far
« Reply #89 on: September 16, 2007, 08:40:25 am »
Updated 9/16/07
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006