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Author Topic: Stoneaxe's Update  (Read 47074 times)

joebloggs

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Re: Stoneaxe's Update
« Reply #195 on: August 10, 2009, 12:03:08 am »
Go Bob!! Whoop whoop!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

ppearl214

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Re: Stoneaxe's Update
« Reply #196 on: August 10, 2009, 05:36:41 am »
stitches coming out, shower and hair washing.... FAB news! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

stoneaxe

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Re: Stoneaxe's Update
« Reply #197 on: August 11, 2009, 09:00:03 pm »
Hehe...thanks all. Not like I have much hair to worry about. What I do have I went over with a buzz trimmer on #1 before surgery....My longest hair now is about 1/2".... ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

elliemae

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Re: Stoneaxe's Update
« Reply #198 on: August 12, 2009, 12:34:17 pm »
Well, Bob, I am VERY late in reading this! So sorry to hear about the infection!

But, I guess now that you've had your shower and shampoo, you'll be back out on the water soon.  As everyone else has said ... just be careful and try to keep that incision dry and comfy!

Elaine
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stoneaxe

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Re: Stoneaxe's Update
« Reply #199 on: August 31, 2009, 08:27:15 am »
Been awhile since I posted, been lurking a bit. Very busy tying up the loose ends of the CCBC and doc McKenna gave me the go ahead to get back on the water so I've been making up for a lost summer. My new get well present keeping me busy.

http://newenglandsup.wordpress.com/2009/08/28/vec-14-downwindrace-board/
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

NancyMc

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Re: Stoneaxe's Update
« Reply #200 on: August 31, 2009, 10:19:22 am »
Ur such a dude, Bob!
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

joebloggs

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Re: Stoneaxe's Update
« Reply #201 on: August 31, 2009, 10:54:43 am »
All I got were some crummy flowers as a get well present!  Actually they were very beautiful and I loved them and appreciated them... even though they weren't a board!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

NancyMc

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Re: Stoneaxe's Update
« Reply #202 on: August 31, 2009, 11:22:21 am »
Uh, JB, I saw your flowers, and they weren't exactly crummy!  You should have seen mine.  And you got jelly beans, too!  Well, I got a basket of goodies that are still lingering around by waistline.
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

leapyrtwins

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Re: Stoneaxe's Update
« Reply #203 on: September 03, 2009, 06:55:14 am »
Sweet board, Bob.

Sorry to hear about the infection - glad that's over with  :)

Happy paddling!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Stoneaxe's Update
« Reply #204 on: September 03, 2009, 08:20:44 am »
Thanks for the kind words all. This board is going to add so much to how I can have fun on the water. I'm waiting for some high winds to go out for a long downwinder. When the wind is 30-40 mph at your back and there are 3 ft ocean swells you can just fly!

Donnalynn...I hope that's the exchange rate!... :o. A brand new board here costs on avg...$1300 or so. A board like my ocean racer would be about $2500. Boards are expensive but when compared to some other things...not so bad. Skiing will cost you more in the long run and this is better for you than a gym membership.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

stoneaxe

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Re: Stoneaxe's Update
« Reply #205 on: September 17, 2009, 09:51:22 pm »
Together is definitely the more important thing. Hope you and Jim are finally enjoying yourselves. I'm glad Sue likes to paddleboard.... ;D

Sorry I haven't been on much lately folks. Very busy trying to get things back to normal. Speaking of normal...here's an update. My balance is so close to normal I can't tell the difference...only some slight wobble when I go from light to dark....NO headaches...haven't had a single one for over a month....soooo psyched! Facial issues are slowly getting better...eye is tearing (too much actually...sometimes drips... :'() Still problems with my mouth, nose, and face but improved for sure. Very, very happy with how things have gone since surgery. Dr. McKenna rocks!
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

moe

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Re: Stoneaxe's Update
« Reply #206 on: September 18, 2009, 08:59:29 am »
Great news Bob! So glad to hear things are going well. Enjoy your paddling while you can :)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Jim Scott

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Re: Stoneaxe's Update
« Reply #207 on: September 18, 2009, 12:23:27 pm »
Hey, Bob ~

I love reading posts about an AN patient getting back to normal and loving it!  Glad to learn how well your recovery is progressing. Keep up the good work.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

4cm in Pacific Northwest

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Re: Stoneaxe's Update
« Reply #208 on: September 19, 2009, 10:53:41 pm »
Bob,

If your ears were ringing today - it is because people were talking about you.  ;) ... Specifically the PDX ANA support group- which had people from both Washington & Oregon State present.  Know that you are an inspirational recovery story worth sharing!
 8)


DHM :)
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

leapyrtwins

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Re: Stoneaxe's Update
« Reply #209 on: September 19, 2009, 10:57:00 pm »
Bob -

sounds like your recovery is coming along quite nicely!  Excellent news!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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