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AN Community => AN Community => Topic started by: stoneaxe on June 16, 2009, 07:06:46 pm

Title: Stoneaxe's Update
Post by: stoneaxe on June 16, 2009, 07:06:46 pm: Hello All,

T minus 12 hours and counting. All systems go....Sue and Jacqui have been baking. I've packed...I think I'm ready.
Sue and the girls will keep you updated as they remember. See you on the flip side.

Bob
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on June 16, 2009, 07:08:55 pm: Best of luck, Bob.

I'm confident things will go well.

I'll be looking forward to the updates.

See ya as a postie!

Jan
Title: Re: Stoneaxe's Update
Post by: CHD63 on June 16, 2009, 07:17:00 pm: Bob .....

My thoughts and prayers are with you!!

Will be anxious to get word post-op.

Clarice
Title: Re: Stoneaxe's Update
Post by: Tumbleweed on June 16, 2009, 08:44:05 pm: Best wishes for smooth sailing, Bob. We're all thinking of you.

Warm regards,
TW
Title: Re: Stoneaxe's Update
Post by: Kaybo on June 16, 2009, 09:08:09 pm: Bob~
I saw the title and thought, "oh my goodness - I thought his surgery was Wednesday - did I miss a WHOLE day?" (I have been off a whole day before - I'm sure that comes as no surprise! ;D)

You will definitely be in my thoughts & prayers TOMORROW!

Prayers for PEACE to you & yours starting NOW!!

K
Title: Re: Stoneaxe's Update
Post by: sgerrard on June 16, 2009, 09:13:13 pm: Rock it, man.

Steve
Title: Re: Stoneaxe's Update
Post by: epodjn on June 16, 2009, 09:53:24 pm: Here's to enjoying some good waves soon. You will be in my thoughts and prayers. Remind the women folk to keep us updated. We are a bunch of worriers!
Julie
Title: Re: Stoneaxe's Update
Post by: yardtick on June 16, 2009, 09:59:11 pm: Thinking of you and those ladies that love you!!!

Speedy recovery,
Anne Marie
Title: Re: Stoneaxe's Update
Post by: Keri on June 16, 2009, 10:12:22 pm: Hi Bob and Sue,
I'll be praying for you both.
Bob, I think you'll do great. Sue, he'll be in great hands, esp with all that stuff you baked!
Take care - many many thoughts and prayers for you.
Keri
Title: Re: Stoneaxe's Update
Post by: Vivian B. on June 17, 2009, 05:18:16 am: Hi Bob,

Best wishes to you and a speedy recovery.

Vivian
Title: Re: Stoneaxe's Update
Post by: tenai98 on June 17, 2009, 06:07:25 am: Best wishes and hope for a speedy recovery
JO ;D ;D
Title: Re: Stoneaxe's Update
Post by: nteeman on June 17, 2009, 06:21:53 am: Bob,

Here's another wish that all goes smoothly for you with a quick and pain-free recovery.

cheers,
Neal
Title: Re: Stoneaxe's Update
Post by: cindyj on June 17, 2009, 07:44:54 am: Wow, your day snuck up on me, Bob! Know you're glad to get this taken care of and know you'll do great! We'll see you as a postie!

Cindy
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 17, 2009, 07:46:05 am: Apparently it's about quarter to 10 in the morning in Boston, I'm guessing that means Bob is rocking it as I type this! I'm sending some rocking vibes his way through the ether.... WHOOOSH there they go!

xx
Title: Re: Stoneaxe's Update
Post by: The Boss on June 17, 2009, 08:07:52 am: Hello All,
Bob is currently in the OR and they have made the first incision at 9:20a.m. est. We will be getting updates from the OR nurse about every two hours with his status. T-minus 8hours and counting, until Norbit (aka Bob's tumor) is gone!! I'm here with our girls (Jacq and Nic) for the long haul. So I will try to post the updates accordingly. Thanks for all the support,
Sue
Title: Re: Stoneaxe's Update
Post by: CHD63 on June 17, 2009, 08:30:55 am: Sue .....

Love your username!!! That's the way it should be, right??? ;D

Thanks for the update ..... many prayers are going up right now!!

Clarice
Title: Re: Stoneaxe's Update
Post by: Jim Scott on June 17, 2009, 08:38:32 am: Boss ~

Thanks for the update on Bob. I'll check back later (and so will many others, I'm sure). :)

Jim
Title: Re: Stoneaxe's Update
Post by: GRACE1 on June 17, 2009, 09:40:32 am: Thanks for the update. Keep them coming.

Prayers and good thoughts are on my agenda today for all of you.

Grace
Title: Re: Stoneaxe's Update
Post by: alwaysthere on June 17, 2009, 10:01:41 am: Prayers are going up right now.

Patty
Title: Re: Stoneaxe's Update
Post by: SML on June 17, 2009, 10:32:03 am: Sue,

Thanks for keeping us updated. Rich and I are keeping all of you in our thoughts and prayers.

Scarlett
Title: Re: Stoneaxe's Update
Post by: elliemae on June 17, 2009, 11:46:24 am: Hi, Sue (Boss!)
I'll be thinking of Bob and you all as I ride by MGH on the T on my way home from work (in Cambridge).

Thanks for keeping us updated, and take care of yourselves too!

Elaine
Title: Re: Stoneaxe's Update
Post by: ppearl214 on June 17, 2009, 12:29:09 pm: Sue! Hi, its Phyllis from the Worcester brunch. I've been quietly lurking at this post today for the updates on Bob and sending wellness wishes from the Northshore to Boston .... thank you for taking time to keep us updated. Will check back in later to see how things have gone.

hang in there..... and hope to see you both in October.

Phyl
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 17, 2009, 12:30:07 pm: Hi, Sue and the girls.
Don't be discouraged if you don't get updates. Dave didn't hear a word until it was all over. (Same surgeons) Get a breath of this beautiful day's fresh air from time to time. Also, the library halfway to the entrance is a quiet refuge if the worry vibes get too intense in the family waiting room.
It will be so exciting for you to see him come out on the other side.
~~What did you bake?~~ Nevermind, just got caught up on the surgery date thread. Wow! Impressive. That should keep them goin'.
Kisses and hugs to all of you,
Nancy
Title: Re: Stoneaxe's Update
Post by: kenneth_k on June 17, 2009, 12:53:37 pm: I hope and pray all goes well. And things usually do.

Kenneth
Title: Re: Stoneaxe's Update
Post by: Rich56 on June 17, 2009, 01:34:26 pm: Hi Sue, Jacq, and Nic,

I've been in your seat before, well maybe not your seat but the first one on the left as you enter the waiting room, at the table ;D

It's now 3:00 p.m. and I believe the updates will stop. Don't let that alarm you, as I did, it is simply the end of the nurses shift, and they don't do the OR updates on second shift. The volunteers at the computers can only tell you when the surgery is over.

Try not to put a time on the surgery, that's the worst thing you could do. Just try to keep your selves busy, and like NancyMc (hi Nancy) said, walk around, check out the library, get a soda, or a bite to eat.

It can truly be a long day. Bob has the best in my opinion, MGH and Dr. Barker (I donÃ¢â‚¬â„¢t know Dr. McKenna).

Thank you for the updates.

You are all in our thoughts and prayers,

Rich and Scarlett
Title: Re: Stoneaxe's Update
Post by: The Boss on June 17, 2009, 03:28:56 pm: Bob is officially out of surgery!!! They were able to remove the entire tumor in under 8hours. He is currently waking up a bit so they can go over a few checks and tests then he will be transported to the ICU for an overnight stay. They have said that he is already moving his face and everything went perfectly! I just want to say thank you for all the support and all the doctors and staff at MGH for keeping us all in such good spirits and constant contact. Thanks again everyone! ;D
Title: Re: Stoneaxe's Update
Post by: Jim Scott on June 17, 2009, 03:41:41 pm: Boss ~

Fantastic news! Thanks so much for the positive end-of-surgery update! We're all thinking of, praying and pulling for Bob to have a splendid and complication-free recovery. So far, it seems as if he's well on his way. Tell him he's now an 'official postie-toastie' (has undergone both surgery and radiation). :)

Our support is freely given because we've been there and can empathize with AN patients and their families. Here's hoping Bob has a peaceful night in ICU.

Jim
Title: Re: Stoneaxe's Update
Post by: SML on June 17, 2009, 03:43:32 pm: WOW! Great news! We are so glad it's over and all went well.

Let the healing begin! :-*

Scarlett & Rich
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 17, 2009, 03:47:33 pm: Fabulous, Darlings! Carry on with the celebrating!
Title: Re: Stoneaxe's Update
Post by: Kaybo on June 17, 2009, 04:13:13 pm: GREAT news!! ...now on to paddleboarding!! As JB would say - HE ROCKED IT!! ;D

K
Title: Re: Stoneaxe's Update
Post by: cindyj on June 17, 2009, 04:44:12 pm: So glad to know he's done and doing ok! Give him our best, please,

Cindy
Title: Re: Stoneaxe's Update
Post by: CHD63 on June 17, 2009, 04:50:25 pm: Yeah, it's over and he did well, as we all knew he would!! Now for an uneventful recovery and back to paddleboarding!

Clarice
Title: Re: Stoneaxe's Update
Post by: tenai98 on June 17, 2009, 05:01:57 pm: great news
jo ;D
Title: Re: Stoneaxe's Update
Post by: Adrienne on June 17, 2009, 05:14:12 pm: Yay! congrats on the great news!
Title: Re: Stoneaxe's Update
Post by: nteeman on June 17, 2009, 05:52:35 pm: Very glad to read that everything went well!

Neal
Title: Re: Stoneaxe's Update
Post by: epodjn on June 17, 2009, 06:37:55 pm: WOOHOO!! THAT'S GREAT NEWS!
JULIE
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 17, 2009, 06:40:29 pm: Well I just woke up (yes, it's 10.38 and I can sleep in if I want to after all I am a brain tumour survivor!) and read this and I am SOOOOO happy! All sounds fabulous so far and dare I say it... he's rocked it's socks off! Good luck with tomorrow Bob...tonight you'll probably be out of it!

xx
Title: Re: Stoneaxe's Update
Post by: Vivian B. on June 17, 2009, 06:57:30 pm: Hi there,

Thanks for updating us. Very glad he did ok. He said he would.

Vivian
Title: Re: Stoneaxe's Update
Post by: ghenier27 on June 17, 2009, 07:15:10 pm: Wow, great news! And on his way on to recovery! :D Debi
Title: Re: Stoneaxe's Update
Post by: wendysig on June 17, 2009, 10:03:38 pm: Sue,

Glad to hear Bob's surgery went so well. I hope you and the girls are getting some rest too. It's harder on the family than the patient on surgery day. We just show up and go to sleep, everyone else has the hard part of waiting and hoping things turn out well.

Give him our best wishes for a speedy recovery,
Wendy
Title: Re: Stoneaxe's Update
Post by: sgerrard on June 17, 2009, 10:50:22 pm: I am a little disappointed there is no report of Bob getting back on the paddleboard yet. It's been hours now. What's taking him so long? ;D

Glad to hear it went well. Best wishes for a speedy recovery.

Steve
Title: Re: Stoneaxe's Update
Post by: kenneth_k on June 18, 2009, 01:18:06 am: Excellent news ;)
Title: Re: Stoneaxe's Update
Post by: Joef on June 18, 2009, 05:16:29 am: He'll be back on the water before you know it!
Title: Re: Stoneaxe's Update
Post by: Keri on June 18, 2009, 07:19:39 am: Good morning Bob and Sue,
I'm glad that parts over. Thinking of you and praying for you today as you begin your recovery (the FUN part!!)
Take care. Thanks, Sue, for posting. All of us mom types get concerned for Bob when he's out in the depths of the ocean with whales and seals and i don't even want to think about what else. Now we're concerned about him in his recovery. I'm hoping you and your daughters can get some rest as you support him and each other in the recovery part of things.

Keri
Title: Re: Stoneaxe's Update
Post by: ghenier27 on June 18, 2009, 10:09:18 am: Sue, I was just wondering if there are anymore updates on Bob? Is he up walking yet? iAnd have they said when he would be able to come home? debi
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 19, 2009, 05:38:47 pm: Thanks so much all for helping Sue and girls through this. You're a special crew.
Everything has gone pretty smoothly. Slight facial weakness. Not too noticable unless I smile. DR McKenna assured me it woulld return to normal. OH well, I was kind of hoping to come out looking like Brad Pitt.... ;)
(http://i197.photobucket.com/albums/aa317/stoneaxe/Image24.jpg)
(http://i197.photobucket.com/albums/aa317/stoneaxe/Image26.jpg)

Up walking, cleared to head home Saturday. Short posts reading/writing still slightly dizzying.

Thanks again all/
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 19, 2009, 05:42:38 pm: Hey, you look just like I did! You rocked it, kiddo. And you are just as handsome as any old Brad Pitt.
I checked out on Saturday, too, so we really are twins.
Is the balance good?
Tell Dr. McKenna and Dr. Barker I said HI! Did you have McCall and Tierney, too?
Did they love the basket of goodies?
Hey, I couldn't have posted on the second day. Don't you have double vision?
You're going to be back on that board next week, I'll bet. Remember, I went out paddling on the ninth day, but I was sitting down in a kayak.
Title: Re: Stoneaxe's Update
Post by: Keri on June 19, 2009, 05:49:00 pm: Hey, I've been wondering about you!
Saturday as in tomorrow??!! Great !

Keri
Title: Re: Stoneaxe's Update
Post by: Rich56 on June 19, 2009, 05:57:12 pm: Hi Bob,

Congrats on your postie status, it's over :)

We're glad to see your doing so well, that the Dr's gave you a thumbs up on the facial weakness being temporary, and that you will be going home Saturday. There's no place like home, there's no place like home ;D

Best wishes to you for a speedy recovery,

Rich & Scarlett

P.S. Hi to The Boss
Title: Re: Stoneaxe's Update
Post by: nancyann on June 19, 2009, 06:39:33 pm: Bob: Congratulations on your surgery outcome. I can see by your smile you will get movement back (you don't have the flacid look I did); & your eye looks
totally normal.
I am so happy for you ! ! Continued healing my friend, keep a peaceful heart.

Always good thoughts, Nancy
Title: Re: Stoneaxe's Update
Post by: epodjn on June 19, 2009, 06:45:39 pm: Wow, you look great! Your smile will be back in no time. I can't believe you are posting already. I certainly couldn't have done that. My balance wasn't too bad but my eye sight was horrible at that stage. Still isn't as good as it was but it's getting better all the time. You will be so happy to be home. I remember walking in the door and thinking it's true, there's no place like HOME!
Title: Re: Stoneaxe's Update
Post by: ppearl214 on June 19, 2009, 06:50:56 pm: Bob, you look great! Congrats on getting this done and now, just speedy wellness to you.... and glad to hear you are to go home tomorrow. Please take it easy... and hoping to see you and Sue at the brunch in October...

Congrats!
Phyl
Title: Re: Stoneaxe's Update
Post by: nteeman on June 19, 2009, 08:21:40 pm: Glad to see those pics. Again wishing you a smooth, speedy recovery!

Neal
Title: Re: Stoneaxe's Update
Post by: CHD63 on June 19, 2009, 08:42:31 pm: Bob .....

You look great and home tomorrow ..... WOW! Congratulations!!! Onward and upward ......

Clarice
Title: Re: Stoneaxe's Update
Post by: Keri on June 19, 2009, 09:10:43 pm: ... no paddle boarding tomorrow....
Title: Re: Stoneaxe's Update
Post by: yardtick on June 19, 2009, 09:30:57 pm: Brad Pitt has nothing over you Bob!!! ;D He could only wish!!!

You look great. A safe trip hoime tomorrow and please listen to your body. When it tells you to rest, you rest. I'm sure your lovely ladies will be there to remind you.

Anne Marie
Title: Re: Stoneaxe's Update
Post by: Mickey on June 19, 2009, 09:46:44 pm: Best wishes for a speedy recovery! Mickey
Title: Re: Stoneaxe's Update
Post by: sgerrard on June 19, 2009, 11:34:23 pm: Nice to hear from you, Bob. Glad to hear you are headed home already. Take care.

Steve
Title: Re: Stoneaxe's Update
Post by: Jackie on June 20, 2009, 12:03:20 am: Hello Bob,

So glad the surgery is over and that you are on your road to recovery!!! I think you should change your picture, since your surgery you look much younger and better looking too! Gee if surgery does that,hmmmmmmmmmm may I'll think about it!! ::) Keep on improving!!! Blessings coming your way....
Jackie
Title: Re: Stoneaxe's Update
Post by: suboo73 on June 20, 2009, 06:46:43 am: Bob,

You're lookin' good! CONGRATS on being a postie! ;D
Now on to the recovery so you can be paddling again real soon.

Sue- thank you for the updates! Take care of yourself and get some rest, too.

All my best and continued prayers for speedy healing.

Sincerely,
Sue
Title: Re: Stoneaxe's Update
Post by: doinoc on June 20, 2009, 07:00:36 am: continued well wiishing for a great recovery....God Bless over you and your family
Doinoc
(Deb)
Title: Re: Stoneaxe's Update
Post by: Jim Scott on June 20, 2009, 01:10:59 pm: Hi, Bob ~

Great photos and even better, the prognosis from your doctor that you'll very likely regain full facial mobility. By now, you're probably home and on the way to a complete recovery, just as we all expected. :)

Jim
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 20, 2009, 07:39:27 pm: Hello All,

Thanks, all the well wishes have meant a lot. Things went very well with the surgery. I'm home today well ahead of the curve on recovery. Feeling very, very, good. I did have a bit of double vision but its already gone. Wonky head but not bad...definitely something I'll be able to work out. My tinnitus has reduced to a single light tone, almost unnoticeable compared to previously and it didn't really bother me before. Headaches managed well so far and I'm hoping they dissapear with healing. No water for 6 weeks but I'll be training a lot inside. I'm going to have a hard time following those orders but the Boss will shoot me if I don't. No sense pushing it I guess. I'm sure of my ability to paddle across the bay.

Jb...I got your vid today....awesome. Sue and I watched it together....too funny and Thank you very much for sharing.

We'll definitely be at the brunch Phyl.

Thanks again to all of you for help and in particular for holding Sue's hand through all this. Still a ways to go to get our lives back to normal but the big step is taken.

Time for a nap.
Title: Re: Stoneaxe's Update
Post by: Kathy M on June 20, 2009, 08:05:49 pm: Best of luck to you in your recovery!! Being on the other side of this thing is a great relief - take it easy...or as easy as you can tolerate. You'll do great!!

Kathy
Title: Re: Stoneaxe's Update
Post by: Vivian B. on June 20, 2009, 08:24:02 pm: Hi Bob,

Glad you are doing ok. You look great. Best wishes to a speedy recovery.

Vivian
Title: Re: Stoneaxe's Update
Post by: Kaybo on June 20, 2009, 08:36:47 pm: Bob~
So great to hear you are doing so well!! Snaps for you!!

K ;D
Title: Re: Stoneaxe's Update
Post by: wendysig on June 21, 2009, 12:29:56 am: Bob,

You look marvelous! Billy Crystal used to say (as some character on Saturday Night LiveI " it is more important to look good than to feel good!" I don'r think that's really true so I hope you feel as good as you look! Rest and heal -- glad you made it home in time for Father's Day -- let the pampering begin!!!

Sending healing vibes your way,

Wendy
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 21, 2009, 01:00:27 am: Hey Bob, you look fantastic! Whoop whoop for that! Glad you and Sue liked the vid - it was fun making it! I wouldn't worry that you didn't come out looking like Brad Pitt - I think he's starting to look a bit squidgy round the edges and you look far better than him!

SO glad you're doing well. Yipee!

xx
Title: Re: Stoneaxe's Update
Post by: Joef on June 21, 2009, 07:38:06 am: Back already ? wow... doing great ! .. walking ok ?...

dont push for paddle boarding to fast.... you have to watch for cfs leaks... and I remember the first time I was in a boat in calm water... I was falling all the time... but it does come back... time and practice.... those sea legs just have to re-learn....
Title: Re: Stoneaxe's Update
Post by: Tumbleweed on June 21, 2009, 01:01:13 pm: Bob, I'm relieved and happy to hear everything went so well. Take care of yourself, okay? Here's wishing for a speedy and full recovery.

Best wishes,
TW
Title: Re: Stoneaxe's Update
Post by: MissMolly on June 21, 2009, 02:25:06 pm: Hey Bob,
Glad to hear you are home and well following surgery. I go in in the wee hours of tomorrow morning and am looking forward to my first hit of valium. This has been a sressful weekend!!! Did Sue tell you I stopped and gave her a hug while she was waiting?

Your pictures look great. I know improvement will be fast and furious.

You Rocked It!!

Congratulations!!

Miss Molly
Title: Re: Stoneaxe's Update
Post by: Seal on June 21, 2009, 03:08:36 pm: Hi Bob,

Congratulations on putting the surgery behind you. Happy Father's Day, and let the girls and your wife spoil you rotten for awhile! You deserve it. I'm sure your recovery will continue to be quick like mine has been. You have already been compensating for a long time, and the imbalance that you have now will come back quickly in the next several weeks and coming months. Just take it easy, and stay patient. The best is yet to come. I am sure you are relieved now!

Best regards,
Steve

PS: Update your profile.......you're a postie now!!!!!
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on June 21, 2009, 07:08:01 pm: Stoneaxe -

Brad Pitt or no Brad Pitt, you're looking pretty damn good for a guy who just had brain surgery ;D

Glad to hear things went so well - you'll be back on the board before you know it!

Happy Father's Day.

Jan
Title: Re: Stoneaxe's Update
Post by: Darlene on June 21, 2009, 08:26:21 pm: I am so happy for you and your family on your successful surgery! Best wishes for a continued speedy recovery.

Take care,
Darlene
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on June 21, 2009, 11:00:13 pm: Quote from: stoneaxe on June 20, 2009, 07:39:27 pm
My tinnitus has reduced to a single light tone, almost unnoticeable compared to previously and it didn't really bother me before.

THAT is great news! Congrats- now you are a postie at the other end.

DHM
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 21, 2009, 11:07:45 pm: Phew...long day today...tired. Makes a differnce in my face. More week tonight. Still closing eye OK though. A little blurry vision.. I've been up since 6 this morning. Mostly on the couch but some walking around too. Going to take a slow walk on the treadmill tomorrow while I do balance PT. We'll see how far I get. Going to be careful but I am planning on pushing it at least a bit.

Molly...yes Sue did say you stopped by...thanks so much!

OK...time for bed. Thanks again everyone... ;D
Title: Re: Stoneaxe's Update
Post by: Lilan on June 22, 2009, 06:54:37 am: Bob, missed most of your story as I was a bit waylaid last week myself. ;) But seeing enough now to know you're doing great. Congrats to another member of the Class of '09! :)
Title: Re: Stoneaxe's Update
Post by: cindyj on June 22, 2009, 07:11:06 am: Hey, Bob! Great to hear you're up and about - keep moving and napping, moving and napping...You will continue to progress day by day, but you may have some days that you feel like you took a step backward...that's normal and ok...I know you're going to be one of our model recoveries!

Cindy
Title: Re: Stoneaxe's Update
Post by: mk on June 22, 2009, 07:27:20 am: Bob,

congratulations on the excellent outcome.

Did the surgeons commented at all on whether the surgery was "more difficult" given that the AN was previously radiated? Did they say anything about "stickiness" etc? It sure seems that they didn't have any problems removing it, given how well you are doing, but I was just wondering.

My best wishes for a speedy recovery.

Marianna
Title: Re: Stoneaxe's Update
Post by: tsl on June 22, 2009, 07:45:14 am: Quote from: stoneaxe on June 21, 2009, 11:07:45 pm
Phew...long day today...tired. Makes a differnce in my face. More week tonight. Still closing eye OK though. A little blurry vision.. I've been up since 6 this morning. Mostly on the couch but some walking around too. Going to take a slow walk on the treadmill tomorrow while I do balance PT. We'll see how far I get. Going to be careful but I am planning on pushing it at least a bit.

Molly...yes Sue did say you stopped by...thanks so much!

OK...time for bed. Thanks again everyone... ;D
Hi Bob and Sue (aka The Boss),
So happy for you and your family that your surgery went so well. I have to agree with the others, Brad Pitt has nothing on you, Bob. Not many people can look ruggedly handsome after brain surgery!

It appears that your biggest problem will be NOT PUSHING IT. I think "The Boss" is going to have her hands full.

Again, I am so happy for you and all your family.

Take care,
Theresa (tsl)
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 22, 2009, 08:07:14 am: Bob,
Don't you get some kind of double postie status? Is there such a rank, and how many of you are there? Perhaps you learned something in that area pre-op or could ask the docs at your follow-ups.
I notice my facial weakness increases when I'm tired, so no worries in that department, okay? Looks like a string of nice weather headed our way for a change, so that will be a big mental challenge. How about a nice balance-challenging walk on the beach?
It seems like yesterday you were profoundly concerned about regrowth, and presto, it's gone! Imagine that . . .
Nancy
Title: Re: Stoneaxe's Update
Post by: SML on June 22, 2009, 10:24:14 am: Quote from: Jim Scott on June 17, 2009, 03:41:41 pm
Tell him he's now an 'official postie-toastie' (has undergone both surgery and radiation). :)
Jim

I like this "postie-toastie" status! ;D

I'm glad your feeling good Bob, but... IMO... this first week... you shouldn't be pushing, even if it's just a little. :-*

Scarlett
Title: Re: Stoneaxe's Update
Post by: The Boss on June 22, 2009, 11:10:41 am: Hi everyone, I hope you were all getting Bob's updates. Nicole was sending them. she is a much better writer than myself so she was in charge... I have a question.. Has anyone expereinced severe headaches when coming off of steroids? Bob is now down to 1 steroid and he feels awful today.. headaches, he says he feels like his face is drooping more, etc. I have been giving him the oxycodone for the pain but he seems to be really suffering. Any replies are greatly appreciated. Sue
Title: Re: Stoneaxe's Update
Post by: moe on June 22, 2009, 01:24:15 pm: Glad to see Bob is home now, I'm late!
The headaches could be due to the steroids or just more likely brain surgery. Don't be shy on the oxycodone. If he needs it, he needs it. I had headaches for 6 weeks, (which did go away.). Tylenol is good too, if it is not mixed with the oxycodone.
And cold press on the head. All those little extra special touches help.

Recovery is so different for everyone. I read something about the treadmill on a recent post????? Maybe should hold off on that.
How about nice quiet walks around the neighborhood?!

So make sure he doesn't overdo it, Boss!
Rest, walk, sleep, eat, rest, walk, sleep, eat, should be the order of the day for at least a week post op :) ;)

So glad to hear all is well. He just needs reminding that he just had brain surgery.
I knew he would rock it. :)
Maureen
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 22, 2009, 03:19:14 pm: Thanks everybody...yeah...I think I might have been a bit optimistic about the treadmill... ::). The boss has clamped down a bit on me too. I thought I was cruising on Saturday...must have been the feeling of coming home. I feel like I ran into a wall today.

I like the "postie-toastie" status..... ;D

Marianna....I didn't ask that question directly but will do so next week when I see Dr McKenna. The fact that it went "smoothly" and was quicker than anticipated would make me believe it wasn't that sticky but I'll find out.
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 22, 2009, 05:36:07 pm: Bob,
As you may painfully recall, I was very high on the steroids post-op. I had a prolonged regimen due to delayed facial weakness. Your quicker tapering schedule may be allowing the masked symptoms to rear their ugly heads. I became tired and without energy or motivation. You may simply have to treat each symptom as necessary until it resolves.
Wishing you free of pain,
Nancy
Title: Re: Stoneaxe's Update
Post by: SML on June 22, 2009, 06:41:11 pm: Hi Bob,

Sorry to hear your having headaches. I had only one day of steroids left to take when I got home, but I had severe headaches (especially during REM sleep) for the first three weeks every night. :( I felt like my head was going to explode! I found a Percocet and a Valium took care of the pain within half an hour or so. To this day I still get the severe headaches at night, but thankfully they are getting further and further apart. The ones I get during the day are controlled with Tylenol or Ibuprofen.
I hope your headaches donÃ¢â‚¬â„¢t take that long to go away.

Scarlett
Title: Re: Stoneaxe's Update
Post by: sgerrard on June 22, 2009, 08:55:13 pm: Quote from: stoneaxe on June 22, 2009, 03:19:14 pm
The fact that it went "smoothly" and was quicker than anticipated would make me believe it wasn't that sticky but I'll find out.

Actually if it went smoothly and was quicker than anticipated, it doesn't really matter if it was sticky. :) The real question is whether it made a difference in the outcome, which it appears it did not.

Sorry to hear about the headaches, though. I wonder if you came off the steroids too quickly? I had steroids before I was diagnosed, and they were certainly weird, anyway. I would be happy to attribute all sorts of powers to them, including the transformation of Nancy into the Energizer Bunny.

I think you are still in the "things can change day to day" stage, so it may not take long to get past this and on to the next thing. I hope so.

Steve
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 23, 2009, 01:11:29 am: Hey Bob,

Hope the headaches bugger off soon - I didn't have any and wasn't on any steroids when I first left hospital so can't really help. I can tell you I had a lot of rest when I got back from hospital - I was having a 2-3 hour nap in the afternoon every day for about a week after coming out then after that maybe an hour or so for a week. Occasionally I still have a little nap. Hope you're feeling a better soon,

take it easy

JB x
Title: Re: Stoneaxe's Update
Post by: Tumbleweed on June 23, 2009, 01:19:08 am: Bob, I hope you feel better soon!!!

Best wishes,
TW
Title: Re: Stoneaxe's Update
Post by: nancyann on June 23, 2009, 06:20:07 am: Hi Bob: I had a whopping migraine the day after returning home: vomiting & severe pain - I would have called 911 but my friend who is a neurologist stayed with me. The headaches continued for weeks afterward, but never as severe as the 1st one. I remember taking Tylenol extra strength around the clock (I kept a diary of the date/time taken - when I looked back, I realized I was writing April instead of June !).
I certainly hope you have medication that will squash the headaches.
Continued healing, always good thoughts, Nancy
Title: Re: Stoneaxe's Update
Post by: wendysig on June 23, 2009, 10:44:02 am: Bob,

Sorry to hear you are having such terrible headaches. I had them to for a little more than a week after surgery. I guess I was one of the lucky ones. If I was given steroids after surgery, it was intravenously and that my IV was removed two days after my surgery. They did ask tons of questions that would probably have told them if I had intercranial pressure but I guess I was lucky there too. I hope your headaches stop soon too.

It's okay to push yourself a little bit, but resting and taking naps are definitely a necessary part of the healing process too. Listen to your body and you'll do great.

Sending more healing vibes your way,
Wendy
Title: Re: Stoneaxe's Update
Post by: elliemae on June 23, 2009, 02:19:54 pm: Hi, Bob
I'm sorry to be so late in getting your updates and congratulating you on your recovery! But, as everyone else has been saying ... do take it easy for a bit! Hopefully those headaches will go away quickly, and you'll be back to normal soon...

Elaine
Title: Re: Stoneaxe's Update
Post by: anissa on June 23, 2009, 03:03:39 pm: Bob, so glad to hear that you had a successful surgery and that your recovery is coming along nicely. For me I was so pumped up on adrenaline on being well and ready to go home so I felt great but also hit a wall. As you start to relax into your recovery your body will start making the compensations. Give yourself time to heal in these six weeks so you can get back on that board as soon as possible! Sleep, eat ice cream, let people wait on you, you know, REST! Congrats on being a Postie!
Title: Re: Stoneaxe's Update
Post by: yardtick on June 23, 2009, 04:57:56 pm: Headaches....................SUCK :'( I live with them day and night! The dam headaches have tried hard to take away my cheery disposition, but I'm a fighter ;D When I have a really bad one my husband says a become a sarcastic *itch!! Oh well no one is perfect ::)

Please take care of yourself.

Anne Marie
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 23, 2009, 09:47:57 pm: Thanks All....the headache was bad enough to have Sue and I drive into Boston to see Dr. McKenna this morning. Back on the steroids, some ibuprofen and an occasional percocet. I'm headache free tonight. I'm thinking its the steroids. I have quite a bit of additional facial swelling and could feel the increase in pressure. Within a couple hours of talking the 1st steroid dose I was headache free. Feeling good at the moment. My walking is good when my head isn't pounding...up and down stairs ....slowly. Just wonky head a bit. Still some occasional double vision.

LOL...was going to post a scar picture but the camera broke taking the picture.....I'm not kidding....very funny.... ;D. I'll dig out my other one tomorrow and post.....wide angle lens.... ::)

Thanks again...Bob
Title: Re: Stoneaxe's Update
Post by: moe on June 23, 2009, 10:08:39 pm: Bob,
Glad to hear you got some relief today :)
So did the doc put you back on low dose steroid or are you done?
BTW what was the first thing YOU remember waking up from surgery? ;)
Take er easy,
Maureen
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 23, 2009, 10:20:39 pm: He put me back on another cycle of dosage for steroids.

1st thing I remember was being asked questions in the ICU. Docs and nurses but not even sure who was doing the talking? The 1st feeling of relief came when I heard Sue's voice...sank in that I made it and she was with me... :)
Title: Re: Stoneaxe's Update
Post by: moe on June 23, 2009, 10:33:33 pm: Yea, and no vomiting??? ;D
Great way to wake up!
Maureen
Title: Re: Stoneaxe's Update
Post by: Jill Marie on June 23, 2009, 11:02:08 pm: Hi Bob, So glad to hear that they found a way to relieve your headaches. I don't recall having headaches after my surgery but that was 17 years ago so perhaps time has done me a favor by forgetting some of the things related to the surgery. June is my anniversary month for the surgery and I find myself thinking back to what happened and how far I've come from then. I know it's going to be hard for you to take it easy so your body can heal but if you don't rest enough your body will take longer to recover. Be a patient patient! Jill :)
Title: Re: Stoneaxe's Update
Post by: Vivian B. on June 24, 2009, 05:21:18 am: Hi Bob,

Glad to hear that headaches are subsiding. I suffer from occasion migraines and they are not pretty. It's good to know you are doing better. One day at a time!

Vivian
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 24, 2009, 06:54:35 am: Hi, Bob.
Glad you were pro-active and got the relief necessary. It's interesting that when they saw me, looking very much like you post-op, they extended my steroids, but with you they didn't. There is no dictated protocol, I guess. I had no headaches after the first day and a half or so, and those I attribute to being kept awake all night and day by noises of machines, nurses, and other patients. One disoriented lady was screaming all night. Coulda done without that!
I had a very long course of steroids with a slow taper. Although I was the Energizer Bunny, it worked for me! I was running circles around Dave, my supposed caregiver, waiting on him, cooking and cleaning.
Go sit in that garden of yours between showers and meditate on the wonder of life!
Nancy
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on June 24, 2009, 08:56:55 am: Quote from: stoneaxe on June 23, 2009, 09:47:57 pm
. Back on the steroids, some ibuprofen and an occasional percocet. I'm headache free tonight. I'm thinking its the steroids.

Ew the Percocet...I remember the constipation that goes with that drug. Be sure to eat lots of fiber and take collace.

If the double vision continues you should be adamant about this with your physician. Sometimes this is caused by hydrocephalus (excess dura fluid putting pressure on the optic nerves) ... for me the most affective drug for the double vision was diamox (mega diuretic)

Here is a link that explains that drug (generic name Acetazolamide) and its purpose
http://en.wikipedia.org/wiki/Acetazolamide

... it will also take care for the constipation issues caused by the Percocet. (You are part of the AN family now- and yes we talk about BMÃ¢â‚¬â„¢s as these are issues, post treatment, that many of us hadÃ¢â‚¬Â¦ and constipation will only magnify the headaches.

Hang in there- it does get better. It is just imperative that you bring up ALL issues with the physician who is caring for you.

DHM
Title: Re: Stoneaxe's Update
Post by: moe on June 24, 2009, 09:05:12 am: Quote from: NancyMc on June 24, 2009, 06:54:35 am
Go sit in that garden of yours between showers and meditate on the wonder of life!

THAT is a great idea Nancy!

And we get to talk potty humor too? OK BOB drink lots of water, water, water, if you are having constipation and colace 2 times a day if needed. (Prunes are good too). A small amount of MOM even (that's milk of magnesia, not mother).....

I was on vicodin, and then percocet for my headaches. Couldn't get a handle on them (I am now headache free BTW).
I won't share my near death by bowel movement experience , but it wasn't pleasant :D
OK have a nice quiet day and enjoy your beautiful garden, weather permitting.
Maureen
Title: Re: Stoneaxe's Update
Post by: epodjn on June 24, 2009, 10:12:14 am: I also found that walking helped the headaches. I had them for about two weeks but the more I walked the better I felt. At 6 months post-op I've decided the cure for almost all my problems, and this is just my own thing, is EXERCISE. It has helped my balance, headaches, wonkie head, and constipation, haha. You need to sleep, rest and let your body recover but once you feel well enough I think it's important to move, even when you don't really want to. Of course, with Bob, Im preaching to the choir.
Title: Re: Stoneaxe's Update
Post by: texsooner on June 24, 2009, 11:25:12 am: I'm in the choir too, but I agree 100% and like hearing it!

Patrick
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 24, 2009, 03:37:40 pm: LOL...Sue and I were laughing about what have become common topics of conversation as we get older just last night.... Constipation and BM's (or the lack thereof) being one of the current topics... ;D. I haven't had it too bad...stayed on top of it from the beginning and cutting back on the percocets has helped. Headache just minor today, face swollen though and weakness continues. Things are very good though. We're going out for a walk tonight for an ice cream on the waterfront in Plymouth....good to get out... ;D.

Choir for sure...no question. Being in shape has helped tremendously.
Title: Re: Stoneaxe's Update
Post by: Captain Deb on June 24, 2009, 04:01:34 pm: Hey, Bob,

Glad to hear you are on the other side of your surgery and getting out some. Hope the headaches are not too bad and that they resolve with a little time. Enjoy your ice cream! Yum! Not too much though as it will plug you up a bit. Oops!

Hugs,

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate-3.gif)
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 24, 2009, 04:16:50 pm: Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D
Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D
Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D
Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D
Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D
Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D
Warning!!!....graphic photo alert...ie:..put down that slice of pizza first..... ;D

As I mentioned my other camera broke when trying to take this pic yesterday. I used my Go Pro so this is a wide angle shot....like my head needed to be made to look more like Charlie Brown's.... ;)

(http://i197.photobucket.com/albums/aa317/stoneaxe/ex-norgert-june242009.jpg)

and from the front...lol...I actually think I look better on the left.... ;)

(http://i197.photobucket.com/albums/aa317/stoneaxe/ex-norgert2-june242009.jpg)
Title: Re: Stoneaxe's Update
Post by: ppearl214 on June 24, 2009, 04:41:57 pm: Bob

Honestly, you look GREAT! The incision isn't bad at all and looks like its healing great! Truly!

You look fab! Hang in there.... I'm cheering you on!

Phyl
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 24, 2009, 05:02:53 pm: Looking good Bob - this'll sound weird but I think you're lucky to have short hair - Now that mine is growing back you can't tell I've had brain surgery which is a bit of a sadness! I am proud of my scar! If I tell someone I had brain surgery in March I want them to see my scar and say "Oh wow!", not look at me and say "Really?"!!! I need a t-shirt that says "I went and had brain surgery and all I got was this lousy scar on my tummy".
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 24, 2009, 06:33:58 pm: Thanks for the warning, Bob. Your suturing is identical to mine. I recognize Dr. McCall's work.
I like your shirt. Where did you get it? Don't tell me Maui.
Your face is looking good. You'll be all back sooner than I was.

JB,
You must be wearing one of those midriff baring t shirts!
Title: Re: Stoneaxe's Update
Post by: moe on June 24, 2009, 06:39:02 pm: COOL- impressive incision.
My husband called me "Franken-mom" after my surgery, in a loving and tender way of course. :D
Maureen
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on June 24, 2009, 09:00:52 pm: Your incision is a different shape to mine. Did you have the translab?

DHM
Title: Re: Stoneaxe's Update
Post by: epodjn on June 24, 2009, 10:22:20 pm: Mine's a differnt shape too and I had translab. mines more like a big 7. It goes from just above the front of my ear and then down behind my ear but it doesn't curve like yours does. I guess surgeons like to put their own spin on things.
Title: Re: Stoneaxe's Update
Post by: anissa on June 24, 2009, 10:53:52 pm: Quote from: joebloggs on June 24, 2009, 05:02:53 pm
Looking good Bob - this'll sound weird but I think you're lucky to have short hair - Now that mine is growing back you can't tell I've had brain surgery which is a bit of a sadness! I am proud of my scar! If I tell someone I had brain surgery in March I want them to see my scar and say "Oh wow!", not look at me and say "Really?"!!! I need a t-shirt that says "I went and had brain surgery and all I got was this lousy scar on my tummy".

I feel the same way!! And the lousy scar on my tummy really is lousy. I think it was done by a first year med student with his/her first opportunity to slice and dice.

Bob, you look great!
Title: Re: Stoneaxe's Update
Post by: sgerrard on June 25, 2009, 12:45:49 am: Maybe Bob and JB and Anissa should get the outline of their scars tattooed onto their head. Then you can show if off whenever you like. 8)

(The idea occurs to me because Bob's looks like a tattoo in the side view photo).

Steve
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 25, 2009, 05:24:42 am: That might be an idea Steve! Perhaps I just need to keep my head shaved and everyone will see it! I saw this story today on the BBC News site and I thought wow, she's got my post op haircut! I even had hair resembling dreds after all that time not washing it!

http://news.bbc.co.uk/2/hi/uk_news/magazine/8116876.stm

Mmm... Nancy - I can honestly say I have NEVER owned a midriff baring top and I'm pretty sure I never will! Especially now I'm post op - not only do I have this particularly unforgiving scar on my guts, I also have a significant muffin top going on due to my foolish post-op eating frenzy!

I think Bob should tell people a shark tried to take a chunk out of his head when he was out and about on the water. Never let the truth get in the way of a good story!!!
Title: Re: Stoneaxe's Update
Post by: NancyMc on June 25, 2009, 07:04:15 am: I feel better now. My tummy scar is unsightly. My eating was pre-op as I thought, Why would I diet through the holidays and on my tropical vacation if perhaps I didn't survive brain surgery? That would be a real waste of a good time. I'm paying for it now.
I love the shark idea! Up here it would be a snapping turtle.
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 26, 2009, 09:02:30 pm: LOL...my brother started a thread on the standup forum we frequent asking what I should do with the scar. Lots of interesting tattoo ideas, waves, fish, Cape Cod Bay Challenge logo. I was kind of wishing they had put in a waterproof cellphone/mp3 zip pocket.... ;D

Update 1 week + 2
Reducing steroids daily, percocet and Motrin as needed for pain.
Walking confidentally, gardens, stairs, sidewalks. No long walks yet (just one of 1/2 mile) but if we ever get enough sun... ;D
Only a slight stabbing pain in the ear occasionally. Headaches seem to be under control
Sleeping well. Eating like a horse....nobody mentioned the desire to clean refidgerators of food. Need to stop that!
Slight workout along with balance PT today. Very light weights, shoulder and bcep/tricep exercises while walking in place and doing balance PT.
Face is still very weak. Can close my left eye but only if I close the right as well. No smile on left. I can feel some improvement today though. Yesterday seemed like a low spot for face. Tough reading and using computer.

Time for bed!
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 26, 2009, 09:19:35 pm: Sounds like you're doing really well. Glad the headaches are under control - that's really important. It's hard to feel good when your head is pounding eh? I got that weird stabbing pain while I was still in hospital - it's weird isn't it? At least it doesn't last very long.

Anyway glad you're doing so well - maybe you should get a lock on the fridge??!!
Title: Re: Stoneaxe's Update
Post by: moe on June 26, 2009, 10:47:01 pm: Bob,
I sense progress! Maybe you will paddle after all!
Still listen to your body. It will tell you when you over do it.
Keep the faith with the face and smile. It'll be back.
Maureen
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on June 26, 2009, 10:59:38 pm: Stone -

nice scar. I like JB's shark bite idea - very credible.

Sounds like you're making great progress. You'll be back to paddling in no time ;)

Jan
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 27, 2009, 04:38:42 pm: Mowed the lawn today..5,000 sq/ft or so with a push mower. Felt great to be productive. Then I had a nice long nap in my hammock... ;). Going to get started on a couple of woodworking projects this week. Some new paddles and a surfboard (a first) for a friend.

There is no question about me paddling the CCBC in August! That's an absolute! Seeing Dr. McKenna on Monday to have stitches removed. Going to get word then about how quickly I can get back on the water.
Title: Re: Stoneaxe's Update
Post by: Kathy M on June 27, 2009, 04:48:18 pm: I'm glad to see you're doing so great. I loved the picture - what a beautiful scar!! Once you get those stiches out, it's amazing how quickly it will fade. Good luck on your projects. Kinda nice to have some time to devote to things you otherwise just can't work in!!

Kathy
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on June 27, 2009, 04:49:21 pm: Stone -

I can still recall the first time I mowed the lawn post op.

My yard isn't nearly as big as yours, but I got so dizzy :P

Congratulations on this milestone.

Jan
Title: Re: Stoneaxe's Update
Post by: joebloggs on June 28, 2009, 07:49:54 am: I'm going down to the bookies to place a bet you'll be on the board in 2 or 3 weeks..... I went out for about 45 mins today and thought of you - I sent you all my best paddling vibes - admittedly they're not very good but they're something!! I saw three jellyfish today too - a good incentive not to fall off!
Title: Re: Stoneaxe's Update
Post by: stoneaxe on June 29, 2009, 05:04:04 pm: Stitches out, facial weakness continues. Dr McKenna still assures me it should return completely. Got some ointment for my eye. Balance continues slow improvements. Interesting this time the balance is continuous/consistant. It used to vary a lot. I think getting rid of the nerve is going to be a good improvement.

Next appointment is July 13th...I'm hoping for the go ahead to hit the water then.
Title: Re: Stoneaxe's Update
Post by: Keri on June 30, 2009, 09:24:22 am: Good for you, Bob. You're doing great! Hope you can hit the water soon!

Keri
Title: Re: Stoneaxe's Update
Post by: Jim Scott on June 30, 2009, 03:56:11 pm: Bob ~

Kudos on your excellent recovery and positive attitude. I strongly believe that being motivated to get back to doing the things you love can be an immense help in recovery, assuming the physical ability is there. I couldn't paddleboard to save my life and have no interest in trying (sorry) but I did other things post-op that challenged me and, I believe, helped me recover faster than I may have, otherwise. I can't prove that but I believe it, based on mine and other AN post-op patient's accounts of running half-marathons, biking, etc. weeks after surgery.

I know I join many others rooting for you to 'hit the water' in a few more weeks as well as recover your full facial mobility. I know you'll do it, too. :)

Jim
Title: Re: Stoneaxe's Update
Post by: Seal on July 01, 2009, 07:49:11 am: Hi Bob,

Things are looking good, and as Jim says, the progress you make will depend on yourself and the motivation that you have to get back on the water. Be sure not to overdue it of course, and listen to your body when it calls for nap time. The naps though will get shorter and shorter. I saw a big difference in strength and endurance on weeks four through six. Hopefully, you will follow the same track; as they say, your mileage may vary. Now I'd better get back on that training schedule soon or you'll be overtaking me in the recovery department! Glad to hear you're doing well!

Best regards,
Steve
Title: Re: Stoneaxe's Update
Post by: Tumbleweed on July 02, 2009, 01:42:05 am: Bob, I love your attitude. You are an inspiration to us all. Keep getting well.

Best wishes,
TW
Title: Re: Stoneaxe's Update
Post by: tsl on July 02, 2009, 09:50:39 am: Hi Bob,
I've been away from my computer for a few days and have just caught up on your progress. Picture makes you look like a rugged Bruce Willis!

It's good to hear that you've come thru the rough patch. I know that THE BOSS is taking good care of you. Recovering from this type of surgery is hard. I'm glad that Dr. McKenna says that your face will return to its pre-surgery look. He has done so many of these surgeries he knows.
Take care,
Theresa (tsl)
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 08, 2009, 07:34:46 pm: Latest update: Things are proceeding very smoothly. I think my balance is better than before surgery already. PT says I'm doing so well she's changing it to one day/week. No headaches...off all drugs except occasional ibuprofen for swelling. Double vision almost completely gone. Things still do get a bit fuzzy as I get tired. I think I'm ready to get back into the world. I can drive without problem most of the time. My face is still unmoving but I've seen improvement in my eye for sure. Face looks a little less droopy according to Sue.

I have to say I'm very pleasantly surprised by how good I feel. Life is Good!
Title: Re: Stoneaxe's Update
Post by: nteeman on July 09, 2009, 06:37:48 am: Bob,

Good to read that you are coming along. Everyday it gets better and better.

Cheers,
Neal
Title: Re: Stoneaxe's Update
Post by: joebloggs on July 09, 2009, 07:03:30 am: Good one Bob - you're totally getting there! How long till you're paddling... THAT is the question!
Title: Re: Stoneaxe's Update
Post by: MissMolly on July 09, 2009, 07:21:06 am: Hey Bob,
Glad you are feeling well. Can't believe you mowed the lawn a few days ago!! Still woozy here in Merrimack, NH following surgery. I've had similar eye issues as well, though they seem to be dissipating slowly but surely. Face is still pretty lopsided. All things considered, I'm happy with my progress as you seem to be with yours.

Hope all is well.

Molly
Title: Re: Stoneaxe's Update
Post by: NancyMc on July 09, 2009, 10:01:20 am: Fantabulous!
Nancy
Title: Re: Stoneaxe's Update
Post by: Jim Scott on July 09, 2009, 01:48:11 pm: Bob ~

Good job! I always figured you would have a good recovery - and you are. Thanks for the inspiration you give to others. It's appreciated

Jim.
Title: Re: Stoneaxe's Update
Post by: Keri on July 09, 2009, 05:11:47 pm: Hey Nancy,
Thanks for that adjective...
Good to see you, Bob and JB on here! Bob, I'm so glad recovery's going pretty well and that you're looking forward for hopeful 'clearance' to do the paddling thing soon!
Keri
Title: Re: Stoneaxe's Update
Post by: Tumbleweed on July 11, 2009, 12:17:51 am: Glad to hear you're recovering quickly, Bob! That's especially terrific that your balance is better than it was before surgery. Think of how great it's going to be when you get out on the water again!

Best wishes,
TW
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 11, 2009, 10:16:34 pm: Thanks all....snuck back on the water today. Just a easy 1 mile paddle on flat water with Sue and the family. Big family get together at my sisters house in Falmouth. Brought 4 boards since everyone wanted to go out. Sue wasn't too happy with me but I coated a cotton ball with A&D ointment and stuck it in my ear..put a big waterproof bandage over my ear. Never fell in so it didn't get tested...came close a couple times. Only problem I had was when we turned around back into the wind...I had to paddle with my eyes closed often so that I could close my left eye...talk about a vestibular challenge. If the doc says I'm good to go on Monday I may need to wear a patch while paddling....I'll be the 1st standup pirate.... ;)
Title: Re: Stoneaxe's Update
Post by: joebloggs on July 11, 2009, 11:04:45 pm: That's fantastic Bob!!! So glad you didn't fall in! It's all onwards and upwards from here! Yay!!!
Title: Re: Stoneaxe's Update
Post by: sgerrard on July 12, 2009, 12:25:22 am: 24 days, surgery to paddleboard. Not that anyone is counting. :)

I think going a mile without falling off is an impressive first outing. I'm pretty sure I would not be able to do that. You still have a solid month to gear up for the big event in August. I'm betting you make it.

Congratulations on your recovery, Bob. You are back now. ;)

Steve
Title: Re: Stoneaxe's Update
Post by: NancyMc on July 12, 2009, 07:33:34 am: Goggles
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on July 12, 2009, 10:13:55 am: VERY impressive, Bob! ;D

Keep up the good work! ;D
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 12, 2009, 11:27:45 am: Quote from: NancyMc on July 12, 2009, 07:33:34 am
Goggles

Hehe...we thinks alike...we're headed out shopping shortly and goggles are on the list. Eye is bugging me today so I need to be careful. Once I got over the 1st little wobbles my balance was great. I tested it a bit with some quick turns and short sprints and felt really good.
Title: Re: Stoneaxe's Update
Post by: moe on July 12, 2009, 03:28:49 pm: AWESOME STONEAXE!
You're the man.
Keep up the good positive work and attitude!
Maureen
Title: Re: Stoneaxe's Update
Post by: Kaybo on July 12, 2009, 07:14:09 pm: WHOO-HOO...but keep listening to your body - it is OK to have a day that is not so great...

K ;D
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 13, 2009, 03:48:43 pm: Got the official go ahead to get back on the water from Dr. McKenna today....yeehaa! Have to protect the eye and use the cotton ball in my ear for another week. I'm going to try and paddle almost everyday between now and August 8th and I'm going to enter a 1 mile race on August 2nd. I'm feeling great...I drove in to Boston today! Of course I learned to drive there so that isn't as big a feat as it might sound to some... ;D. Now if only the eye/face would recover things would be great. Actually...I'll just settle for being able to tightly close my eye. I'd prefer not to have to wear protection when I get back to surfing.

We brought in two huge apple cakes in to MGH and one to MEEI today to say thanks for the great care. I'm so thankfull for the great skills of my doctors and the extraordinary care I've received from the nurses and staff at both hospitals.
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on July 14, 2009, 06:45:10 am: Official go ahead to get back on the water.

Now there's a milestone worth celebrating! ;D

Congratulations, Bob! ;D
Title: Re: Stoneaxe's Update
Post by: Kaybo on July 14, 2009, 07:05:20 am: YEA!! ;D

K
Title: Re: Stoneaxe's Update
Post by: Keri on July 14, 2009, 08:40:14 am: Great news! Glad it's official, esp since you already did a bit of paddling!
Driving in Boston - yikes!

Keri
Title: Re: Stoneaxe's Update
Post by: joebloggs on July 14, 2009, 09:03:29 am: That's so awesome Bob!
Title: Re: Stoneaxe's Update
Post by: tsl on July 14, 2009, 10:22:47 am: Bob,
I am really happy for you. Be careful in the water and try not to overdo it. You've made it thru the rough patch. There's no stopping you now.
Take care,
Theresa
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 15, 2009, 08:43:28 pm: 4 miles today with a couple of friends. Felt great if a bit off. Only real issue was my eye. I thought the sunglasses I bought with the gasket would be enough to keep the wind off...not. Got dry and irritated. I forgot to bring the clear eye patch Dr McKenna gave me. Should solve the problem...we'll see tomorrow.
Title: Re: Stoneaxe's Update
Post by: msmaggie on July 15, 2009, 09:27:08 pm: Driving in Boston? Gives me the willies just to think about it! So glad yo uare doing well and are back doing the things you love!

Priscilla
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 17, 2009, 12:09:52 pm: Thanks for the kind words all.

12 miles today with a few friends training for the CCBC. Eye patch works good. Makes things blurry when it fogs up but I manage. No falling anyway... ;D. I was very tired the last couple of miles. With only 3 weeks of training left before the event I have my work cut out for me.
Title: Re: Stoneaxe's Update
Post by: Helga on July 18, 2009, 07:12:09 am: You are the man! I am happy to be walking, and you zip around on the water! Well, I come from a long line of couch potatoes, and my plan for the future is to actually change that and beome a lot more active again, no more excuses. You are setting such a great example, thansk!
Helga
Title: Re: Stoneaxe's Update
Post by: cindyj on July 18, 2009, 02:03:58 pm: Way to go, Bob! Happy paddling to you!

Cindy
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 18, 2009, 06:01:54 pm: Thanks all...not so sure about being a great example...I just want to be like these guys when I grow up... ;D
http://vimeo.com/4601346 (http://vimeo.com/4601346)
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 22, 2009, 12:04:28 pm: Everythings been going so smoothly that i guess I'm spoiled. Just waiting for my facial nerve to join with the program so the eye problems will stop...hopefully.

I did have a bit of a scare this morning....potential CSF leak in my ear. Had some fluid come out. Called the doc and the nurse had me tilt my head to the side and strain...no more fluid though. Doc says it may just be some of the fat put in after the surgery has liquified. It was only a few drops with a little blood mixed in. Not leaking anymore. Doc said if it comes back and is worse to call. Fingers crossed. Was surprised after 5 weeks to have something happen.
Title: Re: Stoneaxe's Update
Post by: joebloggs on July 22, 2009, 03:20:28 pm: Jeez, that's a bit scary! Glad you're ok though. I wish the fat in the rest of my body would liquify and pour out!
Title: Re: Stoneaxe's Update
Post by: NancyMc on July 22, 2009, 07:36:07 pm: ;D then get that pink sprinkly donut out of your face, silly

Bob,
Dr McK asked me to swab gently with alcohol after each shower. I usually get a bit of yellow coloration on the swab when it is withdrawn. I wonder if that is fat. :o ???
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 22, 2009, 09:50:43 pm: LOL...yeah me too JB...me too. I must admit though I'm feeling pretty good about the shape I'm in despite the weight gain of steroid induced indulgence....never thought I was going to stop eating! i've already burned off most of it with my training. Hope to be at 250 lbs for the event.

Nancy...I've been diligent with the alcohol at least once a day and always after showers. I was getting the yellow discoloration too but I thought the damn thing was pretty much all healed. Also seems to be a bit soft/spongy within the confines of the big incision. If I touch it I can feel the pressure transfer to the inner ear plug...feels weird. Going to keep close watch on it. Hate to have something happen now that would require more work and keep me off the water for the CCBC.
Title: Re: Stoneaxe's Update
Post by: NancyMc on July 23, 2009, 09:31:37 am: Eeeeuuuuwwwww!
Title: Re: Stoneaxe's Update
Post by: stoneaxe on July 25, 2009, 08:04:21 am: Disturbing development after yesterdays surf session. Last night I noticed that I was leaking from my incision. More than I had leaked from the ear. Wiped it off with alcohol and it seemed to stop. Then last night some coyotes howling in the backyard woke me up. Noticed my pillow was wet (I was sleeping on the AN side). Turned the light on to find a significant damp spot and what looked like some puss on the pillow...gross. Cleaned the incision with alcohol...quite a bit of junk there. This morning everything seems OK but I did notice that the swelling on the side of my head was gone and its no longer spongy. Whatever leaked out must have been causing the swelling. Gotta go call the doc. Was hoping to hit the waves again today but I'll see what he says.
Title: Re: Stoneaxe's Update
Post by: NancyMc on July 25, 2009, 08:45:31 am: Let us know what the doc says. Have you been IN the water at all? My post-op directive included no swimming for 6 weeks. Good luck. Thinking of you.
Title: Re: Stoneaxe's Update
Post by: moe on July 25, 2009, 10:17:41 am: Hope this doesn't curtail your paddling plans, Bob.
You are such a trooper! Let us know what the docs say.....
Maureen
Title: Re: Stoneaxe's Update
Post by: Keri on July 25, 2009, 12:18:44 pm: Hi Bob,
I think I asked about this on your other thread... (the leaking ear / incision thing).
I hope it's much better and all in the past.

Keri
Title: Re: Stoneaxe's Update
Post by: Crazycat on July 26, 2009, 09:09:48 pm: Hey Bob,

Sorry I wasn't around during your surgery. Looks like our friends at Mass General did another great job! As you know, I as well as a growing number of other folks on this forum can attest to that!

Looking forward to seeing you in October!

Paul
Title: Re: Stoneaxe's Update
Post by: stoneaxe on August 01, 2009, 02:22:58 pm: I'm one bummed out ANer. I haven't been on all week because I was admitted to Mass Eye and Ear last Saturday with and infection and just got home today. The leak ended up making me go in and see the doc. Expected to get a scrip for antibiotics and go home. Ended up being admited right away. Spent the weekend and early part of the week trying to treat it with intravenous doses of heavy hitter antibiotics. Finally after much consideration by all I went back under the knife to clean it out on Thursday. Dr McKenna had given great consideration to my wanting to paddle on the 15th but in the end the only solution was to clean it out. I'm back at square one....no paddling for at leat a few weeks. They had to remove a portion of the fat graft and replace it wuth more. Hardest part is that I still feel great...no balance issue...no headaches. Thought the only thing I had to worry about was the facial weakness and even that seemed to be getting slightly better. Looks like I'll be sitting on the boat drinking beer.... :(

My time on the water had nothing to do with the infection. The fat graft didn't take near the surface (possibly due to the previous radiation scar tissue) and was dying. We (docs and I) had noticed the swelling 2 weeks after surgery...before I ever went into the water. Surfing may have opened up the incision and made a closer look necessary so if anything that may have helped keep it from becoming a bigger problem by allowing it to drain and forcing the issue.
Title: Re: Stoneaxe's Update
Post by: NancyMc on August 01, 2009, 02:33:27 pm: Well, then, I'm bummed out, too. I'm so glad you went in to see McKenna, though. And I'm glad it's so hard for you to still feel great! ::) Most of all, I'm glad the consolation prize is sitting on the boat drinking beer. There are much worse things, much, much worse.
So, at least you got a frenzy of paddling in there for a while and know you'll be back soon. This time stay out of the water for six weeks, okay?
Title: Re: Stoneaxe's Update
Post by: stoneaxe on August 01, 2009, 02:41:01 pm: I know sitting on the boat drinking beer doesn't seem bad but it will actually be a serious form of torture for me.... ::)

What an amazing person Dr. McKenna is...he had given me his personal cell # to call in case of problems. When I called Saturday evening he was actually on vacation in Florida with his son at a baseball tournament. He called MEEI and Dr. Macaul (sp?) to arrange for my arrival Saturday night. Great to have someone with his skill and compassion on your side.

Even though the paddling surfing had nothing to do with it I am not going to force it. I hope the fall surfing is great this year.
Title: Re: Stoneaxe's Update
Post by: CHD63 on August 01, 2009, 02:42:40 pm: Bob .....

That truly is a bummer, but so glad you sought treatment before it got any more out of hand. At the risk of sounding like your mother, this time listen to your body and ease off on pushing quite so aggressively with your recovery program.

I'm sure you will be the #1 cheerleader for the event even though you will not be paddling this time ...... enjoy the boat and the beer!

Clarice
Title: Re: Stoneaxe's Update
Post by: msmaggie on August 01, 2009, 04:14:42 pm: Hey, Stoneaxe,

I can sympathize w/you on the bumpy road to recovery, but I am glad it is all taken care of. Infections can be pretty tenacious. Have fun on the boat and remind yourself how much fun it will be when you can participate w/out any worries at all!

Priscilla
Title: Re: Stoneaxe's Update
Post by: Jim Scott on August 01, 2009, 04:24:34 pm: Bob ~

I'm sorry to learn of this unwanted development that puts a dent in your paddle boarding plans but I share the opinion of others that have posted before me that taking care of it in hospital was a sensible idea. Your Dr.McKenna seems to be the kind of doctor we all want (my neurosurgeon is just like him - concerned and compassionate). Recover and enjoy the day as best you can. Life goes on and you know you'll be back on the water in no time! :)

Jim
Title: Re: Stoneaxe's Update
Post by: yardtick on August 02, 2009, 12:15:38 am: Bob,

So sorry to hear about your unexpected, extended vacation in the wonderful 5 star resort ;)
Very happy to hear the staff took such good care of you.

Enjoy your beer from the boat, and stay healthy!!

Anne Marie
Title: Re: Stoneaxe's Update
Post by: sgerrard on August 02, 2009, 12:19:59 am: Quote from: stoneaxe on August 01, 2009, 02:22:58 pm
I'm one bummed out ANer.

I think of you more as a bummed out paddle-boarder. :(

These post surgical infections are strangely random, just sort of picking people from the supply of AN patients without rhyme or reason. Rats. You will make a good coach for the other paddlers in the big event, and I know we will be seeing some of those ice paddling pictures later this year. Given our 100+ degree week here in the Northwest, those sound pretty good right now.

Take it easy and enjoy a month of being a spectator. You'll be back at it soon.

Steve
Title: Re: Stoneaxe's Update
Post by: MissMolly on August 02, 2009, 08:31:38 am: Hey Stonaxe,

I am so sorry to hear of your complication, but very very glad it was taken care of aggressively and in the hospital. I'm sure the treatment circumvented any, more serious issues. However, I'm also disappointed for you that you can't paddle. I know how much you were looking forward to it.

As for facial issues, Dr. Martuza sent me to Dr. Hadlock at MEEI. She has specialized PTs who work on the facial stuff. I've regained most if not all my movement since seeing her and doing the prescribed exercises. It might be worth a request....

Hugs,

Molly
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on August 02, 2009, 10:30:37 am: Bob (Bob Bob Bob BOB :-\ ),

This is really just a short window of timeâ€¦ you need to slow down and restâ€¦ eventually you will get back behind the paddlesâ€¦ but right now you need to â€œwhoa there boy!â€ â€œShort term pain for long term gain!â€

I am sorry you had to have a re-entry surgery â€¦ but you needed to nip this in the â€œbudâ€. (BTW speaking of â€œbudâ€ I do not think it is a good idea for you to sit on the dock and drink beerâ€¦ nag-nagâ€¦ mother-mother â€¦nag-nag ;) ;D )

Know that 2 summers ago I was also leaking CSFâ€¦ that went on for 2 + months. This last 2 weeks I was up at Crater Lake (wonâ€™t deny though I had total wonky head at 6,000 + ft elevation which I never suffered from before surgery â€¦so my rock climbing days in the Canadian Rockies, of my youth, I will have to put behind me and now I am thinking river rafting might be cooler http://www.wildrogue.com/ â€¦However I will only do it if they let me wear a helmet on the raft)â€¦.also I was kayaking in Honeyman State Park Lakes â€¦ and now taking early morning Polar Bear dips â€¦

This was not ACL knee surgery- this was â€œbrainâ€ surgery. It WILL take longer to recover- and more so if you push yourself too hard. If you do not get to surf this fall on the east coast- know that there is always the west coastâ€¦ and you will eventually get back to it, as you are so motivated to do so. In the meantime try to be more motivated to just slow down and heal- you adrenalin sports nut you! (Tease HUG :-* )

Enjoy the surf from the beach and avoid the beer for a whileâ€¦ you are dealing with all sorts of fluid issues- Do NOT add alcohol at this time. You WILL get back onto the board- then you can bring out the champagne. In the meantime- no to alcoholic bevies and find other stuff to keep you happyâ€¦ there are other adrenalin rushes you can get in dryer land sportsâ€¦

DHM :)
Title: Re: Stoneaxe's Update
Post by: joebloggs on August 02, 2009, 01:26:05 pm: Awww Bob,

Sorry to hear about this, that super sucks. I totally understand why you're so bummed. So great that you've got the infection sorted though - the one place I would imagine you don't want an infection is in or around your brain oui? I've found a guy nearby who has a board I can try out tomorrow in Cambridge so I will go out paddling tomorrow night after work and think of you. You know at times like this you just need to get out of the funk and get back to the "it could always be worse" mindset - then you'll be right. You can race again next year - and you'll be back paddling in no time and that's the main thing!
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on August 02, 2009, 08:36:48 pm: Bob,

How about when you are up to it ...you come to Portland and teach our Oregon ANA support group how to surfâ€¦ it would be great vestibular therapy.

I would truly love to lean how to do this- and hey this outfitter (in today's Oregon news video) provides helmets to cover the ole craniotomy hole.

http://videos.oregonlive.com/oregonian/2009/07/surfs_up_in_oregon_recent_boom.html

What ya say?

DHM
Title: Re: Stoneaxe's Update
Post by: cindyj on August 03, 2009, 08:41:48 am: So sorry you had to make another trip back to the hospital and the knife again...and really sorry that you'll be sidelined for the big event - know you are disappointed. Just remember there will be next year, and you will be better than ever, and this will all be way behind you!

I know you'll see the bright side of this before it's over,

Cindy
Title: Re: Stoneaxe's Update
Post by: Seal on August 03, 2009, 08:54:19 am: Hi Bob,

I just wanted to add my regrets to hear about your set back. However, you are lucky to have such a caring and compassionate surgeon as Dr. McKenna; he really is a great guy. I guess sometimes our bodies just decide to take over and make us stop whether we like it or not. The good news is that Dr. McKenna gave you the straight story on why you had the infection and that it was unrelated to the paddling. I have also wanted to get back to my favorite sport - road biking -- but the balance is still a little off, although improving. So I'll join you in that beer this month, and we can just enjoy what's left of our New England summer as we progress down the road to final recovery. Think of how good you'll feel by this time next year! I'm sure there is plenty of paddling & biking in our futures.

Best regards,
Steve
Title: Re: Stoneaxe's Update
Post by: Kaybo on August 03, 2009, 06:36:36 pm: Bob~
Just to echo the others and say that I am so sorry things have worked out this way - I was so rooting for you to get out there and kick some AN booty!! I can honestly say (from MANY years of experience with this thing) that things don't always turn out like you want them to - no matter HOW BAD you want it & are willing to work for it - but if you will look back (when YOU are ready) and really SEARCH, you will find a reason there somewhere. I know you will be the BEST supporter there for all your friends!

K
Title: Re: Stoneaxe's Update
Post by: cin605 on August 03, 2009, 06:51:21 pm: Sorry to hear of the set back Bob......you know the sayin' here two steps forward three steps back....but its the first two forard that
really count!
Title: Re: Stoneaxe's Update
Post by: ppearl214 on August 03, 2009, 06:55:32 pm: Bob

I know I'm late chiming in... but I'm so sorry to hear about the setback. You have been through so much during your AN journey and I'm sending you those wellness wishes (and the infamous hugglez to "The Boss") as you get back on your feet.. .and back to your paddleboarding.

Hang in there Bob! Cheering you on!

Phyl
Title: Re: Stoneaxe's Update
Post by: Keri on August 03, 2009, 10:41:19 pm: Bob,
I've been out of town and am not up to date on what's going on...
I'm glad you are getting better with the infection and all but i'm also SO BUMMED about your not getting to do the paddle boarding challenge / event.
I know it'll be there next year too, but it's still got to be so rough. : (
Best to you and Sue,
Keri
Title: Re: Stoneaxe's Update
Post by: tsl on August 04, 2009, 08:40:12 am: Bob,
I've been away from the site and just found out today about your setback. I am so relieved that Dr. McKenna made sure that you taken care of and put into good hands.
Take care,
Theresa
Title: Re: Stoneaxe's Update
Post by: stoneaxe on August 04, 2009, 09:07:42 am: I can feel the good vibes from here...thanks all.

In the grand scheme of things this is just a small bump...a very frustrating bump but a bump none the less. There is some silver lining. I'm getting all the loose ends tied up for the event. Seems kind of foolish to complain about spending a summer day on a boat having a few beers with friends and family and coming in to a great party (don't worry DHM, I don't plan on having to many... ;D)
Title: Re: Stoneaxe's Update
Post by: ppearl214 on August 04, 2009, 01:28:19 pm: Just get well, will ya? ;D

(hang tough Bob!)

Phyl
Title: Re: Stoneaxe's Update
Post by: moe on August 04, 2009, 11:00:04 pm: Bob,
Sorry to hear about the hospital setback :'( And glad to hear it wasn't related to your paddleboarding!
So just take it easy, man you hear? ;)
Here's to no more leaks in the head.....
Maureen
Title: Re: Stoneaxe's Update
Post by: stoneaxe on August 09, 2009, 07:30:28 pm: Stitches out tomorrow and a shower....time to wash my head!
Title: Re: Stoneaxe's Update
Post by: moe on August 09, 2009, 10:44:36 pm: yEA, bOB!
Stitches out. Take it easy, keep an eye for any infection. Keep it clean and dry!
Maureen
Title: Re: Stoneaxe's Update
Post by: joebloggs on August 10, 2009, 12:03:08 am: Go Bob!! Whoop whoop!
Title: Re: Stoneaxe's Update
Post by: ppearl214 on August 10, 2009, 05:36:41 am: stitches coming out, shower and hair washing.... FAB news! :)

Phyl
Title: Re: Stoneaxe's Update
Post by: stoneaxe on August 11, 2009, 09:00:03 pm: Hehe...thanks all. Not like I have much hair to worry about. What I do have I went over with a buzz trimmer on #1 before surgery....My longest hair now is about 1/2".... ;D
Title: Re: Stoneaxe's Update
Post by: elliemae on August 12, 2009, 12:34:17 pm: Well, Bob, I am VERY late in reading this! So sorry to hear about the infection!

But, I guess now that you've had your shower and shampoo, you'll be back out on the water soon. As everyone else has said ... just be careful and try to keep that incision dry and comfy!

Elaine
Title: Re: Stoneaxe's Update
Post by: stoneaxe on August 31, 2009, 08:27:15 am: Been awhile since I posted, been lurking a bit. Very busy tying up the loose ends of the CCBC and doc McKenna gave me the go ahead to get back on the water so I've been making up for a lost summer. My new get well present keeping me busy.
(http://i197.photobucket.com/albums/aa317/stoneaxe/newenglandsup/vec14005.jpg)
http://newenglandsup.wordpress.com/2009/08/28/vec-14-downwindrace-board/ (http://newenglandsup.wordpress.com/2009/08/28/vec-14-downwindrace-board/)
Title: Re: Stoneaxe's Update
Post by: NancyMc on August 31, 2009, 10:19:22 am: Ur such a dude, Bob!
Title: Re: Stoneaxe's Update
Post by: joebloggs on August 31, 2009, 10:54:43 am: All I got were some crummy flowers as a get well present! Actually they were very beautiful and I loved them and appreciated them... even though they weren't a board!
Title: Re: Stoneaxe's Update
Post by: NancyMc on August 31, 2009, 11:22:21 am: Uh, JB, I saw your flowers, and they weren't exactly crummy! You should have seen mine. And you got jelly beans, too! Well, I got a basket of goodies that are still lingering around by waistline.
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on September 03, 2009, 06:55:14 am: Sweet board, Bob.

Sorry to hear about the infection - glad that's over with :)

Happy paddling!

Jan
Title: Re: Stoneaxe's Update
Post by: stoneaxe on September 03, 2009, 08:20:44 am: Thanks for the kind words all. This board is going to add so much to how I can have fun on the water. I'm waiting for some high winds to go out for a long downwinder. When the wind is 30-40 mph at your back and there are 3 ft ocean swells you can just fly!

Donnalynn...I hope that's the exchange rate!... :o. A brand new board here costs on avg...$1300 or so. A board like my ocean racer would be about $2500. Boards are expensive but when compared to some other things...not so bad. Skiing will cost you more in the long run and this is better for you than a gym membership.
Title: Re: Stoneaxe's Update
Post by: stoneaxe on September 17, 2009, 09:51:22 pm: Together is definitely the more important thing. Hope you and Jim are finally enjoying yourselves. I'm glad Sue likes to paddleboard.... ;D

Sorry I haven't been on much lately folks. Very busy trying to get things back to normal. Speaking of normal...here's an update. My balance is so close to normal I can't tell the difference...only some slight wobble when I go from light to dark....NO headaches...haven't had a single one for over a month....soooo psyched! Facial issues are slowly getting better...eye is tearing (too much actually...sometimes drips... :'() Still problems with my mouth, nose, and face but improved for sure. Very, very happy with how things have gone since surgery. Dr. McKenna rocks!
Title: Re: Stoneaxe's Update
Post by: moe on September 18, 2009, 08:59:29 am: Great news Bob! So glad to hear things are going well. Enjoy your paddling while you can :)
Maureen
Title: Re: Stoneaxe's Update
Post by: Jim Scott on September 18, 2009, 12:23:27 pm: Hey, Bob ~

I love reading posts about an AN patient getting back to normal and loving it! Glad to learn how well your recovery is progressing. Keep up the good work.

Jim
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on September 19, 2009, 10:53:41 pm: Bob,

If your ears were ringing today - it is because people were talking about you. ;) ... Specifically the PDX ANA support group- which had people from both Washington & Oregon State present. Know that you are an inspirational recovery story worth sharing!
8)

DHM :)
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on September 19, 2009, 10:57:00 pm: Bob -

sounds like your recovery is coming along quite nicely! Excellent news!

Jan
Title: Re: Stoneaxe's Update
Post by: stoneaxe on September 23, 2009, 06:50:23 am: Hehe...my ears are always ringing...does that mean someone is always talking about me?... ::)

I'm happy my recovery has inspired some folks. I just wish everyone could have the same good fortune. I understand all to well how the bad days can get you down.
Title: Re: Stoneaxe's Update
Post by: Keri on September 24, 2009, 06:34:16 am: Hi Bob,
Glad to hear things are good and always getting better!
Keri
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on September 24, 2009, 06:39:50 am: Incredible profile picture, Bob.

Is this pre or post op?

Jan
Title: Re: Stoneaxe's Update
Post by: stoneaxe on September 24, 2009, 07:39:32 am: Hehe...that picture is pre-op and its also photoshopped. It's a combination of a drawing I did of Hokusai's "Great Wave of Kanagawa" and a picture of me. That said, I am surfing again, was out last Friday and had a blast....haven't had a chance to get on any really big waves yet but that's only because there hasn't been any since the docs said I could get back on the water. I did a 10 mile paddle yesterday in heavy winds and felt great. Life is good.... ;D
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on September 24, 2009, 08:07:47 am: Actually you changed the picture! Although I love this one, the one I was asking about was you with water crashing down all around you - looked like you were inside a huge wave.

Jan
Title: Re: Stoneaxe's Update
Post by: stoneaxe on September 24, 2009, 07:02:55 pm: Oh!...you mean this one.
(http://i197.photobucket.com/albums/aa317/stoneaxe/newenglandsup/PICT0823.jpg)

That is pre-op last Feb. in Maui. Nice 4-5' waves with my brother at Kanaha beach. Very fun day.
Title: Re: Stoneaxe's Update
Post by: NancyMc on September 25, 2009, 06:23:21 am: That's crazy. How'd you do dat?
Title: Re: Stoneaxe's Update
Post by: Adrienne on September 25, 2009, 01:11:18 pm: That is an AMAZING picture! LOVE it. Hope you have it up somewhere in your house. If it were me, I'd love to look at it!
Title: Re: Stoneaxe's Update
Post by: nancyann on September 25, 2009, 04:21:15 pm: I couldn't have stood up to that wave, I'd have dove under it ! !
I've been afraid to brave the ocean - maybe I'll give it a try ! I loved body surfing.
Now it's swimming in the condo pool, but exercise is exercise !

Always good thoughts, Nancy
Title: Re: Stoneaxe's Update
Post by: leapyrtwins on September 25, 2009, 09:39:31 pm: Yep! That's the picture! ;D
Title: Re: Stoneaxe's Update
Post by: stoneaxe on September 25, 2009, 10:02:15 pm: You'll notice the horizon is in the bottom right corner. I have a Go Pro camera attached to my paddle. It shoots a picture every 2 secs. You're bound to get some that are pretty interesting. I remember that fall well. I was flying along and caught the edge at the top of the wave....did a half sumersault into the water.....notice the nice hole my head is making.... ;D
Title: Re: Stoneaxe's Update
Post by: 4cm in Pacific Northwest on September 26, 2009, 08:14:14 am: You'll notice that this post is now over 3000 reads. 8)

I think you inspire others!!! ;)

Keep enjoying life... more photos?...

DHM
Title: Re: Stoneaxe's Update
Post by: stoneaxe on October 19, 2009, 10:44:46 pm: 5 months post-surgery. Went to see Dr McKenna today. He's very pleased with the progress of my face. Getting better all the time. He did suggest I make an appointment with facial therapy to help mitigate potential for synkenisis that is showing up (tears instead of saliva when eating) no muscle synkenisis yet but then I don't have much movement yet, just return of tone.
Other than the minor facial issues everything is great. Also went paddlesurfing today in wild wind and waves (6'+ waves with 2-3' chop mixed in and 15-20 mph winds) and had a blast. Quite a few falls but even folks with full function would have had a hard time of it today.
Title: Re: Stoneaxe's Update
Post by: ppearl214 on October 20, 2009, 05:57:40 am: Bob

Me thinks we need to celebrate your follow up! :) "Day by day, inch by inch...."....... and you still be riding them waves! Well done!

See ya Sunday!
Phyl
Title: Re: Stoneaxe's Update
Post by: another NY postie on October 20, 2009, 07:45:46 am: Bob, that photo is unbelievable! You should enter it in a photo contest. I wanted to add that I read your other 15 page post on paddleboarding under Balance the other day and was blown away by it. I watched the videos....I showed my children...truly inspiring. I actually went and found a place that gives lessons near Cape May, NJ where we vacation and am planning on trying it next summer. I also live right next to to two rivers - one being the Hudson River which I don't think I will try but the other is small and we all swim in it and I think I can do this there! So I am yet another ANer truly inspired by you and your balance post surgery! Keep posting those photos for us to enjoy.
Cheryl
Title: Re: Stoneaxe's Update
Post by: Seal on October 20, 2009, 06:04:01 pm: Hi Bob,

Glad to hear that you are making some progress and that McKenna is following up with you. I'm sure it has its frustrating moments, but you seem to be thriving despite the issues. Hopefully he gave you more info on what will come over the winter months as the nerves continue to heal. Nerves are funny things as they reconnect and heal. Weird pains that come and go, and sensations that were never there before. Oh well, at least we are all here to compare notes!! That is a great pic by the way. I spent a week of my honeymoon at Kanaha about 15 years ago with my understanding wife. The only reason she let me windsurf every day that week was because I had arranged for her to take lessons from a local guy who had the body of Greek god, shoulder length hair, and the face of Fabio! She never minded me getting on the board as she trotted off to her "windsurfing lesson" !!!! ;D ;D ;D

Keep it going!

Steve
Title: Re: Stoneaxe's Update
Post by: stoneaxe on October 22, 2009, 12:36:56 pm: Phyl...can't wait for Sunday...already have the Pats game set to record... ;D

Cheryl ...thanks...and happy to hear you'll be trying it out. You can paddle anywhere there is water...even the Hudson. Seapaddle NYC is a huge event...paddle around Manhattan for autism awareness. I couldn't do it this year but very likely next year.

Seal...small world...sounds like Giampalo Cammarota...if it was a very funny italian guy that's him. My brother knows him well and I've met him a couple of times. It was one of his online videos that first got me interested in SUP.
http://www.youtube.com/watch?v=reSSURXJCJQ (http://www.youtube.com/watch?v=reSSURXJCJQ)
Now that I think of it...not sure GC has been on Maui that long....but he does give windsurf lessons there.....and looks something like Fabio if you squint... ;)
Title: Re: Stoneaxe's Update
Post by: ppearl214 on October 22, 2009, 12:49:03 pm: Quote from: stoneaxe on October 22, 2009, 12:36:56 pm
Phyl...can't wait for Sunday...already have the Pats game set to record... ;D

what are you doing indoors and online on a day like today :o :o ... where its absolutely gorgeous out and you should be catching some waves? :)

See ya Sunday... and FYI.... this weekend, UK change their clocks for the season, hence, on Sunday, will be a 6 hr time difference to the "good" coast! Make sure the VCR/DVR is recording accordingly! :)

Phyl
Title: Re: Stoneaxe's Update
Post by: stoneaxe on February 27, 2010, 11:04:44 pm: Been a long time since my last update. Lots happening. I'm pretty much back to normal. My face is back to its normal ugly mug. If anything there is a slight tightening on the AN side. Not absolutely symmetrical but close enough that its hardly noticeable. Some synkineses...when I eat my left eye tears and my nose starts to run...have to eat with an extra napkin. No headaches still...couple of normal ones is about it in the last few months. Very rare to have any wonky head. If it happens at all its usually accompamying a head cold. I do notice that my surfing has suffered a bit. I think that's because my balance was better pre-surgery except that i would occasionally lose it completely. That doesn't happen anymore but its not as good as it was before when it was good....if that makes sense... ;D
Back to work...very happy about that...being productive is important. I have a ton of things to catch up on. Finally starting to get back in shape...joined a gym, working out at least 3-4 times/week, surfed for 5 hours today in rough conditions and big waves....sore tonight but its a good sore.
Hard at work planning CCBC #3...going to be BIG this year...we're hoping to raise $100,000...setting our sights high. Can't wait to paddle this year. Going to be as meaningful to me as the 1st year to step ashore.

I just read through all the responses in this post. What a wonderful caring community. I couldn't have done this without all the wondeful support. My best wishes to all of you...hope you all realize your dreams.
Title: Re: Stoneaxe's Update
Post by: moe on March 01, 2010, 11:37:51 pm: Great update!
congrats on getting on with your life :)
Maureen
Title: Re: Stoneaxe's Update
Post by: Debbi on March 02, 2010, 08:50:10 am: Another good report!! Bravo, Bob!

Debbi
Title: Re: Stoneaxe's Update
Post by: Keri on March 04, 2010, 11:31:32 pm: So glad you're gearing up and planning for CCBC #3. I felt so bad for you when you couldn't do it last year. I wanted to say some 'mom' thing like... well there will be next year. And now it's happening! YAY!