« previous next »
Pages: 1 [2] 3 4 ... 16

Author Topic: Stoneaxe's Update  (Read 47041 times)

CHD63

  • Hero Member
  • *****
  • Posts: 3235
  • Life is good again!!
Re: Stoneaxe's Update
« Reply #15 on: June 17, 2009, 08:30:55 am »
Sue .....

Love your username!!!  That's the way it should be, right???  ;D

Thanks for the update ..... many prayers are going up right now!!

Clarice
Logged
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: Stoneaxe's Update
« Reply #16 on: June 17, 2009, 08:38:32 am »
Boss ~

Thanks for the update on Bob.  I'll check back later (and so will many others, I'm sure).  :)

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

GRACE1

  • Full Member
  • ***
  • Posts: 249
Re: Stoneaxe's Update
« Reply #17 on: June 17, 2009, 09:40:32 am »
Thanks for the update.  Keep them coming.

Prayers and good thoughts are on my agenda today for all of you.

Grace

Logged
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

alwaysthere

  • Jr. Member
  • **
  • Posts: 53
Re: Stoneaxe's Update
« Reply #18 on: June 17, 2009, 10:01:41 am »
Prayers are going up right now.

Patty
Logged
Diagnosed 1/09 1.6cm left side
5/09 2cm
hearing & balance problems
Surgery Date June 25, 2009 St. Mary's Hospital in Rochester, Mn
Surgery went great, can still hear!!!!

"This too shall come to pass and life will go on"

SML

  • Full Member
  • ***
  • Posts: 204
  • If wishes were like horses, we would ride.
Re: Stoneaxe's Update
« Reply #19 on: June 17, 2009, 10:32:03 am »
Sue,

Thanks for keeping us updated. Rich and I are keeping all of you in our thoughts and prayers.

Scarlett
Logged
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

elliemae

  • Full Member
  • ***
  • Posts: 122
Re: Stoneaxe's Update
« Reply #20 on: June 17, 2009, 11:46:24 am »
Hi, Sue (Boss!)
I'll be thinking of Bob and you all as I ride by MGH on the T on my way home from work (in Cambridge).

Thanks for keeping us updated, and take care of yourselves too!

Elaine
Logged

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7449
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: Stoneaxe's Update
« Reply #21 on: June 17, 2009, 12:29:09 pm »
Sue! Hi, its Phyllis from the Worcester brunch. I've been quietly lurking at this post today for the updates on Bob and sending wellness wishes from the Northshore to Boston .... thank you for taking time to keep us updated.  Will check back in later to see how things have gone.

hang in there..... and hope to see you both in October.

Phyl
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

NancyMc

  • Hero Member
  • *****
  • Posts: 857
  • One year and all is well, almost.
Re: Stoneaxe's Update
« Reply #22 on: June 17, 2009, 12:30:07 pm »
Hi, Sue and the girls.
Don't be discouraged if you don't get updates.  Dave didn't hear a word until it was all over.  (Same surgeons)  Get a breath of this beautiful day's fresh air from time to time.  Also, the library halfway to the entrance is a quiet refuge if the worry vibes get too intense in the family waiting room.
It will be so exciting for you to see him come out on the other side.
What did you bake? Nevermind, just got caught up on the surgery date thread.  Wow!  Impressive.  That should keep them goin'.
Kisses and hugs to all of you,
Nancy
« Last Edit: June 17, 2009, 12:33:41 pm by NancyMc »
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

kenneth_k

  • Guest
Re: Stoneaxe's Update
« Reply #23 on: June 17, 2009, 12:53:37 pm »
I hope and pray all goes well. And things usually do.

Kenneth
Logged

Rich56

  • Full Member
  • ***
  • Posts: 241
  • a caregiver's 2-cents
Re: Stoneaxe's Update
« Reply #24 on: June 17, 2009, 01:34:26 pm »
Hi Sue, Jacq, and Nic,

I've been in your seat before, well maybe not your seat but the first one on the left as you enter the waiting room, at the table ;D

It's now 3:00 p.m. and I believe the updates will stop.  Don't let that alarm you, as I did, it is simply the end of the nurses shift, and they don't do the OR updates on second shift.  The volunteers at the computers can only tell you when the surgery is over.

Try not to put a time on the surgery, that's the worst thing you could do.  Just try to keep your selves busy, and like NancyMc (hi Nancy) said, walk around, check out the library, get a soda, or a bite to eat.

It can truly be a long day.  Bob has the best in my opinion, MGH and Dr. Barker (I don’t know Dr. McKenna).

Thank you for the updates.

You are all in our thoughts and prayers,

Rich and Scarlett
Logged
SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

The Boss

  • New Member
  • *
  • Posts: 4
Re: Stoneaxe's Update
« Reply #25 on: June 17, 2009, 03:28:56 pm »
Bob is officially out of surgery!!! They were able to remove the entire tumor in under 8hours. He is currently waking up a bit so they can go over a few checks and tests then he will be transported to the ICU for an overnight stay. They have said that he is already moving his face and everything went perfectly! I just want to say thank you for all the support and all the doctors and staff at MGH for keeping us all in such good spirits and constant contact. Thanks again everyone! ;D
Logged

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: Stoneaxe's Update
« Reply #26 on: June 17, 2009, 03:41:41 pm »
Boss ~

Fantastic news!  Thanks so much for the positive end-of-surgery update!  We're all thinking of, praying and pulling for Bob to have a splendid and complication-free recovery.  So far, it seems as if he's well on his way.  Tell him he's now an 'official postie-toastie' (has undergone both surgery and radiation).  :)

Our support is freely given because we've been there and can empathize with AN patients and their families.  Here's hoping Bob has a peaceful night in ICU. 

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

SML

  • Full Member
  • ***
  • Posts: 204
  • If wishes were like horses, we would ride.
Re: Stoneaxe's Update
« Reply #27 on: June 17, 2009, 03:43:32 pm »
WOW! Great news! We are so glad it's over and all went well.

Let the healing begin! :-*

Scarlett & Rich
Logged
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

NancyMc

  • Hero Member
  • *****
  • Posts: 857
  • One year and all is well, almost.
Re: Stoneaxe's Update
« Reply #28 on: June 17, 2009, 03:47:33 pm »
Fabulous, Darlings!  Carry on with the celebrating!
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Stoneaxe's Update
« Reply #29 on: June 17, 2009, 04:13:13 pm »
GREAT news!!  ...now on to paddleboarding!!  As JB would say - HE ROCKED IT!! ;D

K
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!
Pages: 1 [2] 3 4 ... 16
« previous next »