Author Topic: 15th annual MRI  (Read 11063 times)

sgerrard

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Re: 15th annual MRI
« Reply #15 on: November 24, 2008, 11:55:56 pm »
Trudging off to the MRI lab for another scan - tedious.
Having techs play pin the tail on the donkey with your veins - outrageous.
Spending a day getting one hour of testing done - ridiculous.
Getting a phone call from Dr. Brackmann saying "still small" - priceless.

Good news, Marie, I hope it stays that way. :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

LisaP

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Re: 15th annual MRI
« Reply #16 on: November 25, 2008, 06:21:07 am »
Hi Marie,

Sorry to hear about you bad experience.  I go for my 3rd MRI in Jan of 09.  Mine is at 8 by 8 by 12, still considered small but reminds me everyday that it (my kids have named it "billyjean") is there every day.   Keep strong.

LisaP
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Omaschwannoma

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Re: 15th annual MRI
« Reply #17 on: November 25, 2008, 07:50:14 am »
Mariie,

Steve did a great job summing up your awful experience very well. 

I'm happy for you W&W is still a viable option.  May you have many more years of the same (not the MRI day, just the snail-pace growth)! 
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

marie

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Re: 15th annual MRI
« Reply #18 on: November 25, 2008, 06:00:28 pm »
Very well said, Steve. 
Thank you all .  I'm back on a more level plane now.  Had to turn my attention to re-renting houses. 
surgeries : back of head 1967,1987
               translab 1991
               bone reduction 2002
               7/12  1968
               temporalis transplant  1969

ChipsFL

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Re: 15th annual MRI
« Reply #19 on: February 12, 2009, 11:13:46 am »
Just had my 3rd MRI with no issues but I always opt out of the contrast and the 12 X 12 mm brat seems to show up just fine.
4-2012,  CK, Wellington, Fl
11-2012, Followup MRI- "no Sig. change"
10-2015 Followup MRI- Tumer Shrunk In Size

EJTampa

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Re: 15th annual MRI
« Reply #20 on: February 12, 2009, 09:24:57 pm »
My physician says he prefers no contrast.  Says the CSF is the "contrast" and he showed me how easy it is to see the tumor against the fluid.  Guess it depends on the physician.
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

LisaP

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Re: 15th annual MRI
« Reply #21 on: February 15, 2009, 05:57:24 pm »
Hi Marie,

Glad to hear that it is still small, I had a tougher time with my thrid MRI,  I found the first two a breeze but my third harder.  I think it is because my symptoms have gotten worse.  But I would rather be on watch and wait then have surgery. 

Take care

LisaP ;D
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Rc Moser

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Re: 15th annual MRI
« Reply #22 on: February 22, 2009, 12:05:56 pm »
Marie, your my hero! anybody that can put up with this crap for 41 years got to be a strong person.  When I want to whine or feel bad I will think of you.
9/17/03, 4.5CM, Translab, OU Medical Center, Dr. (the ear man) Saunders and Dr. B. (the BrainMAN) Wilson  along with about 4 other Doctors that keep me going for 18 hours.

marie

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Re: 15th annual MRI
« Reply #23 on: February 27, 2009, 05:16:25 pm »
I figured out how to quit worrying about A N s.   Starting a few days after Thanksgiving, 2008:
  1. Get a virus that leaves one with head congestion for more than a month
  2. Start taking blood pressure medications that cause weird side-effects
  3. Have an ice storm roll in that leaves every tree damaged or totally ruined, cuts off the electricity for 5 days---no heat, no cell phone, no computer, trees down
      in driveway, so couldn't get out.  I did have warm clothes and blankets, have a fireplace, was able to light my gas cooktop with a match.
  4. Have  bad tenant problems.  (They left their cat locked in the house without food and water!  I've never had that happen before--have only seen it on tv.)
« Last Edit: March 01, 2009, 06:47:52 pm by marie »
surgeries : back of head 1967,1987
               translab 1991
               bone reduction 2002
               7/12  1968
               temporalis transplant  1969

wendysig

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Re: 15th annual MRI
« Reply #24 on: March 14, 2009, 10:10:15 am »
Marie,
I can certanly see how all of the above would distract you from your AN issues.  How are things now and how is the cat.  You should report your tenants to the ASPCA.  Were you able to get in their apartment and give the poor thing food and water?

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

marie

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Re: 15th annual MRI
« Reply #25 on: March 14, 2009, 03:16:33 pm »
We called Animal Control and they put a notice on the door and fed and watered the cat for a few days.  Someone got the cat before the time limit so I think it was probably the former tenant.  They had left the back door unlocked.

I'm changing blood pressure meds.   

Most of the damaged trees have been cleared up, pulled to the curb, and are being removed.  Taking care of the tree damage sure costs a lot of money!  I did have some good luck with this:  my personal home didn't sustain any damage.

Everything is gradually getting back to normal.
surgeries : back of head 1967,1987
               translab 1991
               bone reduction 2002
               7/12  1968
               temporalis transplant  1969

Brendalu

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Re: 15th annual MRI
« Reply #26 on: April 24, 2009, 03:14:08 pm »
Marie,

I think it sounds like pretty good news from your 15th annual MRI!!  Keeping you in my prayers for more good news.

Steve,

You have a wonderful way with words!!

:-)  Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

 


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