I don't know where to start other than to say how bad I feel that you went through such an ordeal. Bless you!! Since you have not had such a hard time in the past, I would talk to my doctor to make sure he knew what went on and to see if he could prevent some of it from happening in the future. Let's hope and pray the growth is small and slow.
I know you must get tired of the annual MRIs, but you have to admit that you are so lucky to come through all the procedures you have had. Next time this might help: Since I have only 1 kidney, the blood tests for kidney function are very important to me. I have my 19-month follow-up MRI scheduled for Dec 09. I will get my blood test done locally the week before and take the results with me; this will prevent me from being stuck at Wake Forest - I also have bad veins. Also, for anyone with kidney issues, after all MRIs and CTs I ask the doctor ahead of time to approve me to be hydrated after the procedure - they give me a small bag of fluid to help flush out the contrast. I was lucky enough to find out about this my a great radiologist at Emory in Atlanta.
Please do forgo any testing you need. From what I have read on this site, most people go for annual MRIs. After my 6-month post GK MRI, my doctor told me I did not have to come back for 2 years. Due to various reasons, it will be 19 months between my MRIs. Perhaps it would have been OK for you to have semi-annual MRIs -- but that is shot down since they discovered this growth. For me, because of the contrast, it will be good if I can have MRIs every other year. I will have to see what this MRI shows before I am totally confortable with having them every other year.
Keep us informed.