Author Topic: Here's a provocative question  (Read 23783 times)

leapyrtwins

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Re: Here's a provocative question
« Reply #30 on: August 06, 2008, 05:18:32 pm »
I'll bet his parents didn't put him in a car seat, either  ;D

Actually when you think of today's world, it's amazing we all lived long enough to be diagnosed with an AN.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Joef

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Re: Here's a provocative question
« Reply #31 on: August 06, 2008, 07:06:32 pm »
LOL ... funny you should say that .. I did end up in ER as a kid (7 yo?) ... hit my head on the pavement.....  :'( and was out cold for a while ... gave my parents a good scare.....  :'(
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

wendysig

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Re: Here's a provocative question
« Reply #32 on: August 09, 2008, 10:26:38 am »
David,
Interest question -- I'll play too.  I'm a real melting pot baby, English, Irish, Native American (Blackfoot Sioux) on my mother's side.  Austrian on my father's side.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

GM

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Re: Here's a provocative question
« Reply #33 on: August 09, 2008, 01:58:40 pm »
Good post !!

Lets see...basically I'm a mut...Irish, German, Scotish, and Cherokee Indian.

Gary
Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

Rivergirl

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Re: Here's a provocative question
« Reply #34 on: August 09, 2008, 03:26:37 pm »
I think the ethnic thing is very interesting........  I am Scotch-Irish-Hungarian-Sweedish also grew up pretty much on a river and live on one now........FISH.......I love to fish!!!  How about a chocolate connection are any of you addicted? 
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

AMD

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Re: Here's a provocative question
« Reply #35 on: August 09, 2008, 03:45:07 pm »
Hmmmmmm..... Scot-Irish here.  Grew up on a river town (Nasty Ohio river to be exact) 
Left side 1.7 cm AN diagnosed 7/30/08
Misdiagnosed for 8 + years
Surgery, Sub-occipital, 11/17/2008 at Indiana University Hospital
Left SSD
Tumor much larger than expected. Facial nerves intact, but had RARE swelling resulting in brachial plexus injury and tracheostomy after surgery.

Esperanza

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Re: Here's a provocative question
« Reply #36 on: August 09, 2008, 04:12:23 pm »
See there is a lot of variety going on here, I am English but have a London/Yorkshire/Welsh mix!  Grew up eating a lot of cod roe, rollmop herrings and chocolate though, oh dear  :P
Profoundly deaf suddenly on AN side with vertigo January 3rd 2008.
12mm left side AN diagnosed 20th Jan. 2008.  MRI  in July shows no growth. What do I do now?????

lori67

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Re: Here's a provocative question
« Reply #37 on: August 09, 2008, 08:23:33 pm »
Maybe we found a possible cause of AN's.... could it be related to chocolate addiction?  I think a lot of us suffer from this!   ;D

Let's hope that's not it - I don't want to have to give up my chocolate - I'm REALLY addicted!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

sgerrard

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Re: Here's a provocative question
« Reply #38 on: August 09, 2008, 10:40:22 pm »
Grew up eating a lot of cod roe, rollmop herrings and chocolate though, oh dear  :P

What a lovely combination - does that dish have a name?   :D

Steve (English)
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

chocolatetruffle

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Re: Here's a provocative question
« Reply #39 on: August 10, 2008, 01:20:10 am »
i am seriously addicted to chocolate, it is my 6th food group - i believe we stumbled upon an AN connection here!!
chocolatetruffle


2.8 cm left AN
Translab @ House/St Vincent's 11/27/07
Drs. Brackmann, Schwartz, Wilkinson, Stefan

wendysig

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Re: Here's a provocative question
« Reply #40 on: August 10, 2008, 10:08:05 am »
I hope chocolate has no connection to ANs.  I am as addicted to it as the rest of you.  I can give up a lot of things but chocolate would be next to impossible!  Sometimes chocolate is the only thing that helps when I'm feeling down.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

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Re: Here's a provocative question
« Reply #41 on: August 10, 2008, 01:30:10 pm »
It IS the chocolate!  It just has to be.  It's the only food group that counts.
M
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Kaybo

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Re: Here's a provocative question
« Reply #42 on: August 10, 2008, 02:17:36 pm »
Then there must be a LOT of people walking around that are undiagnosed!!!!!!    ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Here's a provocative question
« Reply #43 on: August 10, 2008, 04:50:04 pm »
Well, then if we've all been diagnosed and/or treated, then it must be safe to eat all we want!

Hey David, how did your provocative question turn to chocolate?   ;D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

MAlegant

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Re: Here's a provocative question
« Reply #44 on: August 10, 2008, 05:50:55 pm »
A hijacking gone bad...or, rather, good? 
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.