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Author Topic: Did I open a whole new bag of worms??  (Read 10742 times)

Brendalu

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Re: Did I open a whole new bag of worms??
« Reply #30 on: February 11, 2008, 02:10:43 pm »
Hugs to you too Phyl, I think you are totally amazing and you "rawk"!! :o
Hugs,
Brenda
thank you, Jan.  I think it is the Cymbalta!!!
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Larry

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Re: Did I open a whole new bag of worms??
« Reply #31 on: February 17, 2008, 03:31:40 pm »
Hugs Brenda,

i would probably share your view on radiation. You may want to check the issues with a baha or transear as they use bone conductivity.

cheers


laz
Logged
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

matti

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Re: Did I open a whole new bag of worms??
« Reply #32 on: February 17, 2008, 08:57:00 pm »
Brenda,

I've been away from the forum for awhile and just read through your thread. I am so sorry you are dealing with another AN. You know we are all here for you.

Sending a big hug to you.

Cheryl
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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Lorenzo

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Re: Did I open a whole new bag of worms??
« Reply #33 on: February 19, 2008, 11:50:28 pm »
Oooops, missed this one!  Gulp. Sorry Brenda, that's terrible to face into. I know you have a great attitude, and the AN is small, so radiation is a good option. As Cheryl said, we're all here for you!
Hugs!  Lorenzo :)
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CK, Stanford, Drs Chang and Hancock, Dec 04,
doing great now.

Static

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Re: Did I open a whole new bag of worms??
« Reply #34 on: February 20, 2008, 04:45:04 pm »
Brenda,
I think you are right about the cymbalta.  I have so many things going on in my life but have been able to deal with them without freaking out and I swear it is because of the cymbalta. 
~Karen
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3.5cm AN removed 1-21-04
CSF leak repaired 5/04
SSD Right

Brendalu

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Re: Did I open a whole new bag of worms??
« Reply #35 on: February 21, 2008, 05:54:14 am »
I need an extra dose of Cymbalta!  I went to the doctor yesterday because I was having a lot trouble walking and my legs are swolen and purple looking.  She said they are retaining fluid and have to be drained.  Anybody have that done before?  I know it is none evasive, but does it hurt................I'm really done with pain?  She did say that myheart is in good shape so she ordered tests to figure out what is causing it.  Can't take Lasik because of a sulpha allergy and even though Lasik don't have that in them they sometimes cause the same reaction.  Just way too much going on right now.
Just sign me tiredddddddddddddddddddddddddddddddddddddd,
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Kate B

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Re: Did I open a whole new bag of worms??
« Reply #36 on: February 21, 2008, 06:17:22 am »
Hi Tiredddddd,

I do not know anything about your most recent condition, but wanted to acknowledge your new round of tests for your legs. When it rains, it pours; but then the sun comes out:)  After a brain tumor, the rest is just like a pesky mosquito..
Seriously, I hope all goes well. When are your tests?

Kate 

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Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

AROBTEK

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Re: Did I open a whole new bag of worms??
« Reply #37 on: February 21, 2008, 07:35:58 am »
Hi Brenda,
So sorry to hear about your current state of tiredness and all.  I will keep you in my thoughts and prayers AND I will try not to complain about my trivial 'stuff'.  Hang in there, you will see the sunshine before long.

Hugs &  :-* :-* to you,

Annette
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2.6 cm AN L side
Diagnosed 12/10/07
Surgery date: 1/24/08
Dr. Doug Mattox & Dr. Jeff Olson
Emory University Hosp. - Atlanta

Kaybo

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Re: Did I open a whole new bag of worms??
« Reply #38 on: February 21, 2008, 07:47:45 am »
Brenda~
Happy thoughts to you today -- hope today is better and you get some much needed rest.  You are definitely in my thoughts and prayers.
Sometimes there is a rainbow with the sunshine!!  8)

K
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Lorenzo

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Re: Did I open a whole new bag of worms??
« Reply #39 on: February 21, 2008, 08:18:11 am »
HI Brenda,

Still thinking of you... Even more now!  :)

Ciao, Lorenzo
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CK, Stanford, Drs Chang and Hancock, Dec 04,
doing great now.

Brendalu

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Re: Did I open a whole new bag of worms??
« Reply #40 on: February 21, 2008, 10:07:26 am »
I feel all warm and fuzzy now.  I go for compression therapy on Tuesday.  It just sounds like so much fun.  I had blood work done today and and EEG and EKG this afternoon.  They like to keep me busy I think.  I also had the flu over the weekend and I'm over that and feeling much better.  Thank you all for your good thoughts.   ::)
Hugs,
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Omaschwannoma

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Re: Did I open a whole new bag of worms??
« Reply #41 on: February 21, 2008, 10:22:13 am »
Brenda,

I've been away from the forum as I'm in recovery from "total annihilation" better known as labyrinthectomy of my left inner ear and working with PT to regain my balance.  I, like everyone here, am shocked to read your post.  :o   I have you in my thoughts, my heart goes out to you dear and yes, you do have incredible inner strength.  Now, next time you are going to have popcorn (my favorite snack) and vodka, please invite me cause I like a party!   :-*
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Cheryl R

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Re: Did I open a whole new bag of worms??
« Reply #42 on: February 21, 2008, 10:48:05 am »
Karen,     I was thinking of you recently and wondering if you had had your procedure.      Do you think it has helped or too soon to tell?                I hope it does work for you.
    Good luck with your recovery.                             Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Captain Deb

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Re: Did I open a whole new bag of worms??
« Reply #43 on: February 21, 2008, 01:57:33 pm »
Ahoy Brendalu-wench!

Jeez, I leave the forum for a week and all health hell breaks loose! Please know that the ship's sick bay will take good care of you while you are under the weather and the crew will buoy you up while you are feeling down.  Remember that surrounding youself with others in the same boat helps keep you afloat.

We'll all be sending evil thoughts to that other nasty bugger and cursing him to shrivel up and die, or at least stay PUT!

Big Hugs to You!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

amymeri

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Re: Did I open a whole new bag of worms??
« Reply #44 on: February 22, 2008, 04:30:19 pm »
CAN a doctor just choose NOT to tell a patient a very significant piece of medical information?  I don't believe that kind of information is theirs to withhold.  Count me as completely shocked and a little umm....upset that your doctors would make a decision about what you can handle.

It's one thing if there is an incidental finding that has no bearing on life/treatment/decision making...but I think a second tumor doesnt fall under the category of incidental.  I find that behavior ethically questionable, to put it mildly.

On the other hand....your attitude is admirable and your doctors are lucky to have you!

Best, best, best luck.

Amy
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Amy

4 cm right AN removed restrosigmoid 4/13/06
Partial facial paralysis, SSD and trigeminal numbness for now
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