Hello all, I'm a newcomer to this forum (and to having an AN)
Some background: I'm almost 60 and I'm a professional violist. I got diagnosed with a 1.1cm AN in Nov. 2020 (the day after the election). I saw an ENT (Wade Chien) and a radiation oncologist (Brandi Page) at Johns Hopkins in Bethesda, MD and they both suggested to just keep an eye on it. In May 2021 it had not grown, but in July 2022 it has grown nearly 3mm so I'm being advised to get it treated.
I've lost like 90% of high frequency hearing so can't really make out speech in that ear, but still hear low frequencies, so still feel I can hear adequately in a music setting. For now. As I've read and conferred with the two above specialists, the surgical option feels like a no-go. Even at best it only offers a small chance of preserving my already-compromised hearing; and even without the additional risks it seems like a tough recovery. Whereas the radiation seems likely to ruin the remaining hearing, though gradually so I'll hopefully be able to adjust.
I think for now my most important questions are: 1) What would be 2 or 3 good places to contact for second opinions? I'm gathering that clinics run by surgeons are much more likely to recommend surgery so I'd like to find docs who have a global, balanced view of AN treatments and outcomes. 2) In re stereotactic radiation of AN, who are the leading practitioners? (Dr. Page specializes in brain tumors, but I don't know that she has done that many ANs specifically)
Thank you if you've read all this. I promise to get better at prioritizing and writing shorter posts.