I've procrastinated about writing this post -- but acceptance of reality is part of moving forward so here we go... the summary for 2018 so far is:
06 August 2018 MRI : "stable left vestibular schwannoma but slight further increased ventricular size"
22 Aug Ophthalmology exam: "significant increase in optic nerve swelling" --this is papilloedema.
17 Sept another Ophthalmology exam: "papilloedema is stable" -- same as previous, ie its still there.
Ok so what does this all mean? The build up of fluid pressure in the brain (hydrocephalus) is what is causing the vision findings. The solution to this : surgery to insert a shunt to relieve the build up of Cerebrospinal fluid (CSF) fluid.
Next steps: I am very grateful to live in a major city and have access to the medical expertise of my neurosurgeon in Sydney, he is also really aware of my aversion to any surgery; that said, if it's needed there really is no other recourse. The good news (!) is I'm not exhibiting outward symptoms such as headaches, gait disturbance etc. In light of this, he has decided to retest me again in 8 weeks, both another MRI and Opthamology examination.
So now again my focus is on stress management, healthy eating, sleeping better (trying) and a hope and a prayer; any other tips are very welcome too....
Please lets hope this is one of the many things that comes and then goes with AN treatment.