Author Topic: My AN Story – Sydney to Stanford CK  (Read 9609 times)


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Re: My AN Story – Sydney to Stanford CK
« Reply #30 on: October 07, 2017, 03:16:43 pm »
Thanks for your kind words ANSydney!!

I hope that you are doing really well. It's always interesting to read your comments and updates on this forum.

the advice i got from Stanford was that it was okay for me obtaining future MRIs without GAD contrast as long as the images include a sequence called a FIESTA sequence, so they can visualize the tumor well without the contrast. 
My local specialist has confirmed that they indeed do this sequence at St Vincent's where i get my MRI's done.

I'm happy to wait again another 12 months, as over the last 3 years I've had about 10 MRI's.

2.9 cm Left-side AN (Aug 2017)
3.2 cm Left-side AN (Aug 2015)
CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)


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Re: My AN Story – Sydney to Stanford CK
« Reply #31 on: October 08, 2017, 03:53:04 pm »
Hi Stella,

I'm doing very well. With someone with a large tumor and no treatment, it's somewhat unconventional.

I'm glad you like my posts. It's an interesting field to research. And in my case very pertinent.

My MRI was a T2-weighted turbo spin echo. I'll have to research how that differs from FIESTA sequence. (You'd think the radiologist would be the experts on getting the best picture!)

Good luck going forward.