I thought I would post an update on the 12 months post CK results from Stanford & local tests. Ok so overall I am doing very well, in summary:
The acoustic neuroma lesion appears slightly smaller on the scan.
The acoustic neuroma measures 31 mm x 29 mm x 28 mm. (originally Size: 3.2 x 2.5 x 3.0 cm )
No change in the cystic component, no change in ventricle size, and the necrosis is still present in the center of the tumor, and is unchanged. Dr Chang has no concerns at this point. Good news!
Hearing in LHS declined (was all good before CK)-- they wont put a % loss here, but chatting in groups/ cafes is challenging.
Enlarged 4th ventricles that appeared in Feb 2016 (6 months post CK) -still there- but stable.
Opthamologist results-- eye pressure etc at the high end but stable - no better, no worse - a good sign as things are stable.
Tinnitus about the same as at the start (or maybe I'm just used to it - except at night).
Facial Numbness about the same (or maybe I'm just used to that too).
Balance a bit wonky sometimes (was not an issue before CK).
Sleeping better (less stressed out about what to do, as it's done).
next MRI is due Feb 2017
I'm aiming to stay as healthy and as positive as possible. I've also been making some life changes to simplify my life and be grateful for the good things I get to experience every day.