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Author Topic: 5 years post CK. NOW TRIGEMINAL NEURALGIA  (Read 3542 times)

JLR

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5 years post CK. NOW TRIGEMINAL NEURALGIA
« on: August 24, 2015, 04:02:34 pm »
Hi all hope all is well. Haven't posted in awhile. I'm having quite a bit if pain on right side of face. I have trigeminal nerve pain. Have been on predisone off and on. Sometimes it helps. I heard that Botox injected into that nerve relieves the pain. Any thoughts any suggestions please and thankyou. JLR
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Wyoming Woman

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Re: 5 years post CK. NOW TRIGEMINAL NEURALGIA
« Reply #1 on: June 12, 2017, 09:09:00 pm »
Hello. I am 19 months post AN surgery with significant trigeminal neuralgia pain. I'm wondering if you found a solution.
Thanks much.
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JLR

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Re: 5 years post CK. NOW TRIGEMINAL NEURALGIA
« Reply #2 on: June 13, 2017, 04:49:49 am »
Hello, I had surgery to debulk AN November 2016. And although I have no hearing on right side and facial paralysis, I have zero pain. The tumor was leaning on the root of the Trigeminal Nerve.  Was your AN totally removed or debulked.  I'm sorry your having pain. I know that type of pain is the worst.have you tried medication. Stay in touch, Joan
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