ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: JLR on August 24, 2015, 04:02:34 pm

Title: 5 years post CK. NOW TRIGEMINAL NEURALGIA
Post by: JLR on August 24, 2015, 04:02:34 pm

Hi all hope all is well. Haven't posted in awhile. I'm having quite a bit if pain on right side of face. I have trigeminal nerve pain. Have been on predisone off and on. Sometimes it helps. I heard that Botox injected into that nerve relieves the pain. Any thoughts any suggestions please and thankyou. JLR

Title: Re: 5 years post CK. NOW TRIGEMINAL NEURALGIA
Post by: Wyoming Woman on June 12, 2017, 09:09:00 pm

Hello. I am 19 months post AN surgery with significant trigeminal neuralgia pain. I'm wondering if you found a solution.
Thanks much.

Title: Re: 5 years post CK. NOW TRIGEMINAL NEURALGIA
Post by: JLR on June 13, 2017, 04:49:49 am

Hello, I had surgery to debulk AN November 2016. And although I have no hearing on right side and facial paralysis, I have zero pain. The tumor was leaning on the root of the Trigeminal Nerve.  Was your AN totally removed or debulked.  I'm sorry your having pain. I know that type of pain is the worst.have you tried medication. Stay in touch, Joan